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  1. #11
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    ours was only a day surgery but DD stayed overnight because of other issues.

    From memory we had a check up about a week later to see how she was doing, then 6 weeks later to check on the spica and it got removed, and a brace was put on (velcro'd on and off so she could bath etc). Then 6 weeks after that she went back and didnt need the brace anymore.

    After that the check ups were 6 monthly, then one a year later and now she has the all clear. We did do abit of physio but that may be able to be done closer to where you live rather then 4 hours away.

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  3. #12
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    I am sorry to hear Refresh. Thank goodness it has been picked up now and your child is being treated. What have they said to you, or what stage are you at?? Where abouts are you?

    TheMadHouseMumma, we then went into the brace for 6 months at 23 hours/7 days a week and then about 5 months of night time only. How is your child going?

  4. #13
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    Quote Originally Posted by Refresh View Post
    There was a kerfuffle with the referrals, etc so we only had Xrays today but we knew all along what it was. No idea when the surgery will be. We will have to go to Brisbane (4 hours away) which will be tough - DD is number 5 and we both work. How long did you guys stay in hospital for? How often did yoyu have to go back for checks, etc?
    Ours was only day surgery too. We had a couple of checks in the Spica. One was a concern of a pressure point, but turned out ok. Be prepared that usually the Spica is 12 weeks. When we moved into the brace we were on 3 monthly checks. Once we got the all clear which was about a full year of spica/brace we went to yearly checks. We just had one in December and he is that happy with it, we have one last check when she is 5. We went to the Childrens Hospital at Westmead under a brilliant Ortho Paed too. His specialty is hips...

    I can only imagine how you're feeling.

    Whilst I imagine it will probably be harder with a toddler, I do agree that it was probably harder on us than our child....

  5. #14
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    We have only just had Xrays today, I guess I have to go back to a doctor now - we don't even have a family doctor out here! I just feel so bad for her at the thoguht of it....she is the youngest of 5 and my kids are so active and sporty, she is always running around and dancing with them. I also run a swimming pool and she wont be able to swim for so long She'll have to sit there and watch.

    How did you guys go with carseats? Pram? Clothing? Do you think it would be easier if they were toilet trained or in nappies. DD is ready to be toilet trained now so I am wondering if I should do it or leave it...

  6. #15
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    Quote Originally Posted by Refresh View Post
    We have only just had Xrays today, I guess I have to go back to a doctor now - we don't even have a family doctor out here! I just feel so bad for her at the thoguht of it....she is the youngest of 5 and my kids are so active and sporty, she is always running around and dancing with them. I also run a swimming pool and she wont be able to swim for so long She'll have to sit there and watch.

    How did you guys go with carseats? Pram? Clothing? Do you think it would be easier if they were toilet trained or in nappies. DD is ready to be toilet trained now so I am wondering if I should do it or leave it...
    I am so sorry darl! I know you can't see it now, but there will be an end to this... Try and cling to that. They just seem like words, as I so know where you're at right now and remember it so clearly.....

    We had to turn the carseat around. You will have an Occupational Therapist assist you with the car. They put towels as padding under our DD's butt to help raise her in line with the cast so she had support. Leave that worry to the OT people. Look, I don't actually know about the toilet training. Seen you haven't started, maybe leave it as it might be too much for your LO to cope with. In saying that, you know your babe better than anyone, so trust your own judgement. Mine was in nappies and it was very hard with the little gap you have to force a modified nappy up. It can get very messy, but we did get there with a relatively clean and intact cast. The pram was the same deal as the cast, you will need to put support under the cast to help raise her. In the cot, you will need support under her legs to bring in alignement with her body so there's no pressure or weight anywhere. Being a toddler, try and make sure you have plenty of craft thing, books, DVD's to help keep her entertained.

    You probably feel so daunted, but YOU WILL find your way and work out very quickly what does and doesn't work....

    xxxx

  7. #16
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    I agree with everything 3InATub has said.

    The OT will be very helpful. Mofidying carseats etc. We just had to take our carseat in and the OT fixed it for her while she was having the spica put on. I used rolled towels to hold DDs legs up. I also found the best place to sit her was in the stroller.(we had a bertini shuttle which is nice and wide) and used blankets/towels to hold her in 'place'.

    I wouldnt try and TT till youve seen a specialist about if/when the op will be. in the grand scheme of things, a month or 2 not being TT isnt going to make any difference to anything, and if might just make life alot easier for you if she does get a hip spica. My DD didnt TT till she was 3 anyway

    I used newborn nappies to tuck into the 'gap' and then over the top I put a toddler size nappy to hold it in place around the spica.

    The first few weeks is very nerve wracking just worrying your doing it right, her legs are the right level etc, but by the end you will be a pro at it.

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  9. #17
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    I was just thinking it might be easier if she was TT, all mine have been TT'd by 2. I don't care if she does it until after all this has finished though.

    What if she falls out of bed because of the cast?? I wonder how long it will take to get her booked in for surgery? I am really hoping to get it done before 1st September when the pool opens again.

    Thanks for all your advice and kind words girls, I am sure I will have lots more questions. My poor DD, she had meningitis at 12 days old, then whooping cough a oouple of weeks later and now this

  10. #18
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    My DD was diagnosed at 2 and a half and operated on just after her 3rd birthday. She was in a cast for 6 weeks and coped reasonably well! She was in hospital for 3 nights then we didnt go back till the cast came off. That was almost 2years ago!
    Being older my DD was toilet trained but wore nappies after surgery but on the 3rd day she asked to go to the toilet so no nappies after that! I got some undies and cut down the sides and sewed velcro onto them!
    She went back to daycare by week 3 in her cast and they were so supportive of her needs.
    Good luck xoxo

    Sent from my LG-P920 using BubHub

  11. #19
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    Thankyou That all sounds fairly positive. DD doesn't go to daycare or anything, just hangs out with me and her siblings at the pool all day How severe was her hip dysplasia?

    How is she now? Can you tell she ever had it?

  12. #20
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    Wow, your poor DD has been through alot the poor little munchkin....

    You might find that because her legs are so spread apart it will be hard to flip over, especially with the weight of the cast. However, near the end of our time in the cast, DD had learnt to crawl with the cast. In the brace, she was standing and walking along holding onto things. It really is amazing how resilient they are and how they work out to do things.

    Fingers crossed you get booked in asap, the quicker you start the quicker your journey will be over.

    No worries at all... I usually jump on every few days, so feel free to pm me and I will get back to you asap.

    Thinking of you and your DD...

    XXX

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