I cannot believe that I am here again with the heaviest heart after losing another little precious angel.
Our beautiful baby Elise... her story. As many of you know we lost our baby boy Callum over 3 years ago due to an incompetent cervix.
So after 8 rounds of IVF, having a trans –abdominal cervical stitch placed we finally fell pregnant with our girl. Fortnightly scans showed my cervix was perfect and doing what it should. Our risks came back so low at 12 weeks that no further testing was required.
I bloomed and glowed though this pregnancy, our little dancing girl, always responding to our touches with kicks and dances. Special touches for her dad when his soft hands warmed my belly.
Then around 24 weeks her growth started to slow, especially around her head, it seemed to have stopped growing at 22 weeks. Further scans showed my body was feeding her and doing all the right things. Yet scans also showed abnormalities with her heart.
I was sent off at 27 weeks for an amniocentesis and the results via a phone call changed our world forever, part of the world broke apart. She has a severe case of Trisomy 13, every cell and so forth in her beautiful little body was damaged from the day she was created... a shocking 1 in 15,000 chance and we were that one.
Elise started to weaken from that point in time, her dancing decreasing to only a few soft movements as we knew her body was giving way. My body was also reacting, my blood pressure shot up, I lost 3 kilos over 4 days and I was getting painful contractions. Sometime on Wednesday 13th June she passed.
We were admitted into the Freemasons Epworth, into their ‘overflow’ area away from the maternity hospital. I was taken up to surgery as I had to have a caesarean, the hospital was amazing, allowing my husband Derek constant access right until they took me in. Due to my extreme distress I was knocked out nice and early, last memory was saying ‘I love you’ to Derek.
They also let him in intensive care right away, so in my drug induced daze I awoke (I have no memory of this) and he sat holding my hand with tears streaming down his face. He said even the hardened theatre nurses softened. He was given a queen bed in our massive room and stayed every night, the first night such disturbed sleep with hourly checks.
Meeting Elise... on Friday I was able to sit up and meet our daughter, I was warned that trisomy 13 had caused deformities to her face but no matter what she was still the most beautiful precious little soul I have ever seen. We spent ages with her, stroking her gorgeous head of ash blond hair, her beautiful little face just so soft, knowing no more pain.
It broke my heart and still does though when Derek held her, tears streaming down his face and all he could see was the most perfect angel in his hands.
We spent Sunday morning saying our farewell... the church bells started ringing.
We cannot believe that our angel was taken from us from the very start.
She has her brother Callum to look over and protect her now.
Our precious dancing angel forever in our hearts and souls.