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  1. #1
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    Default Diagnosing PCOS

    HI

    I was wondering if anyone might be able to help me with a few questions i have.
    It's nearly been a year since we started TTC and i have started investigating things.

    In January i had blood tests to check everything was ok. i had FSH, LHO DHEAS 170HP, Estradrio and Progesterne. These were all fine.

    i had them done again two weeks ago minus the progesterne i think.

    I also had an ultrasound done on Friday, my right ovary looked like a chocolate chip cookie, there was maybe 20 blacks dots on it.

    My left one was taken up fully with two black dots, each half the size of my ovary.


    does any of this sound like PCOS? I though that with the doctor telling me my blood sugar was fine it would mean no PCOS but then the two completely different appearances of the ovary's confused me.

    Also i was thinking that i might need to have glucose test where i drink the sugar drink but my doctor hasn't suggested it yet. I get my results Wednesday earliest i could get in.

    Thanks in advance

  2. #2
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    I think it's important to know that there is a difference between having polycystic ovaries and having the syndrome.
    If your bloods were fine but the ultrasound wasn't I'd be more inclined to think you just had the PCO.

    Also just because your blood sugar was fine it doesn't necessarily mean you don't have PCOS. I have it but am not insulin resistant.

    Can you see another doctor and get repeat tests done?

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    HowCrazyCool  (18-06-2012)

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    They told me PCOS is diagnosed by having 2 out of 3 of the following:
    -ovarian cysts
    - irregular/ absent periods
    -hormone imbalance (seen through eg. Difficulty losing weight, hair km areas you usually don't find it eg on stomach)

    The glucose test is done as often ladies with PCOS have insulin resistance so that's just to check everything's ok in that area- doesn't mean you have PCOS.

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    HowCrazyCool  (18-06-2012)

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    thanks

    I have normal periods, no excess hair, i find it hard to losing weight but i think that is because i am lazy.

    So i can just have cysty ovaries but it's not classed as Pcos?
    It's all very confusing, on Wednesday im going to ask for a referral to see another doctor who specialises in this sort of thing.

    Did you conceive naturally with your twins Brooke88?

    Thank you both for your help

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    Quote Originally Posted by HowCrazyCool View Post
    thanks

    I have normal periods, no excess hair, i find it hard to losing weight but i think that is because i am lazy.

    So i can just have cysty ovaries but it's not classed as Pcos?
    It's all very confusing, on Wednesday im going to ask for a referral to see another doctor who specialises in this sort of thing.

    Did you conceive naturally with your twins Brooke88?

    Thank you both for your help
    I sure did
    I didn't actually even get diagnosed until after I had them. I'd been quite sick as a teenager but wasn't diagnosed until 21.
    And yes you can have cysts but not PCOS.

    ETA following a low GI diet and exercising regularly can help reduce the size of cysts as well. Most women with PCO or PCOS will fall pregnant naturally after losing weight.
    I'm sure you have already heard that and it's definitely frustrating because it's obviously not easy but it can help.

    Good luck with TTC
    Last edited by brooke88(mum2b09); 18-06-2012 at 19:50.

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  9. #6
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    Ya for natural! Seems a bloody miracle that babies happen at all with everything that can go wrong.

    I can see how easy it would be to be diagnosed later, there are no symptoms that point to PCOS directly.

    I have been very wishy washy with losing weight, but i have an appointment with Jeny craig after my doctor's app (have a freind who has lost a lot of weight, been a hard slog but she is doing great) I really can't afford to do ivf-ish stuff at the weight i am. And the plan is to lose weight and try naturally then head down that path if need be.

    Thanks for your help, i have been away from Bubhub for about 8 months and it's nice to have the extra help again!

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    Hi crazy cool, just know that you don't necessarily go straight to IVF to treat PCOS - there are a lot of steps to try before the really expensive stuff like IVF. Certainly see a doctor specializing in PCOS - endocrinologist and see what they have to say but if your ultimate goal is a baby can't hurt to see a fertility specialist straight up? I too have PCOS - have tested negative for insulin resistance and I'm thin and have been put of metformin anyway. Read up on metformin, it's pretty common on here for those with PCOS to be on it to help regulate cycles and also weightloss. Something to keep in mind too, some of these specialists have long wait times so you might get a referral now but not get an appointment for 3 months. Hope it all works out for you and you don't have the syndrome. Best of luck xx

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    HowCrazyCool  (18-06-2012)

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    Thanks greenfairy!
    I have been doing a lot of reading lately, other then diet and wieght lose, is metaformin the first step they use? And they wait time thing concerns me a bit i have waiting a year + about 6 years. I really don't want to wait longer then necessaray but i want to get to a healthy weight.
    How is the metaformin to take? what are the side affects? Because i am 93kgs at the moment, and any help in losing the weight would be good.

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    Hi, I have PCOS. Lots of cysts, irregular cycles even when on the pill, a little more hair than most, a little overweight and acne at 26 all my hormone levels were fine. PCO is defined as more than 12 cysts on one ovary and as pp have mentioned, PCOS is when you have a number of symptoms. I was diagnosed a year ago after ttc for two years, I have since had endometriosis removed and my left tube is blocked. This year we embarked on our IVF journey as my DH also has oliogospermia (we're a match made in heaven, lol). If weight loss is a concern for you, I lost 17kg through a massive change in diet and exercise. I did an hour of cardio each night (eventually working up to running 9km daily) and cut out ALL sugar. I changed to eating whole grains, lean meat and lots of green veggies, and by eating more than I've ever eaten in my life. I lost 12 of my 17kg in 9 weeks. I believe (and this is only my opinion) that those with PCO can't tolerate/metabolise certain foods due to the insulin resistance which is why we find it harder to lose weight. Since changing my diet and losing the weight, my PCOS has improved dramatically and my skin (isnt perfect) has improved also. I wish you all the best.
    Last edited by Ngaiz; 18-06-2012 at 21:12.

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    HowCrazyCool  (18-06-2012)

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    Awesome work on the weightloss ngaiz, sounds like you've done really well.
    Crazy cool, I waited 3 months to see my specialist but not everyone has long waits. I was put on metformin straight away and clomid as well.

    Metformin was a bit yuk at first and I have to admit I'm not great taking it always when I'm supposed to, was supposed to get to 3 a day but have only really been doing 2. That costs about $6 for 100 tablets.

    Clomid was about $35 for 10 x 50 mg tablets, first cycle I was on 50 mg so only 5 tablets, second cycle I was on 100 mg so 10 tablets (I did day 2-5).

    After 2 cycles nothing happening I've now moved onto injectables. Even now injections are only costing about $35 per cycle. First round of injections I got 1 big follicle but unfortunately bfn.

    Obviously this is just my situation and experience and every fs does things differently but just didn't want you worrying that your only option if you do have ovulation issues is IVF.

    The biggest cost I've had so far is all the fs appointments - usually $150 for an appointment and scan but I get 65 back from Medicare. Depending on what treatment you're having you may have a few appointments or lots.

    Anyway hope that helps a bit - id go see a specialist ASAP and at least find out if you've got it or not first. Happy to answer any other questions if I can help. Take care

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    HowCrazyCool  (18-06-2012)


 

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