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  1. #1
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    Default Fructose intolerance

    My DD has recently been diagnosed with fructose intolerance. I am struggling to find appropriate things for her to eat. She has also been diagnosed as lactose intolerant too but that is a bit easier as there are lactose free products such as milk and yoghurt available. She can have cheddar cheese so this is one thing she can have and loves.

    Does anyone else have a child with fructose intolerance or have it themselves?

    I have been avoiding wheat as it contains fructans and so have been giving her rice/quinoa pasta and gluten free biscuits.

    Any ideas or suggestions please?
    TIA

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    I haven't, but I was just wondering what her symptoms are and how you found out?? My DS has had lifelong issues, he is now GF and lactose free, but his poos are still really bad and I'm wondering if I'm missing something? If you dont' feel comfortable talking about it on here could maybe you pm me?

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    No that's ok. She has had a really swollen belly for much of her life but worse since she started solids. She has lots of wind and very frequent poos, often explosive out the top of her nappies. This has settled down quite a bit since we excluded fructose from her diet but I know if she has a sensitive food now as I accidentally gave her sweet soy sauce (about 1 tsp) recently at lunch and she was very unsettled that night and pooed during the night all through her pajamas which is unusual for her. I have been more careful since...
    For people with fructose intolerance the worst foods are apple pear and honey but there are lots of other things to avoid.
    Has your little one been diagnosed with coeliac disease - is that why you are gluten free?
    My DD is currently being tested for coeliac and also sucrose intolerance.
    Have you also had problems with weight gain? My DD has always been very small for her age.
    Food intolerances are frustrating aren't they?!

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    Quote Originally Posted by happy2bmum View Post
    No that's ok. She has had a really swollen belly for much of her life but worse since she started solids. She has lots of wind and very frequent poos, often explosive out the top of her nappies. This has settled down quite a bit since we excluded fructose from her diet but I know if she has a sensitive food now as I accidentally gave her sweet soy sauce (about 1 tsp) recently at lunch and she was very unsettled that night and pooed during the night all through her pajamas which is unusual for her. I have been more careful since...
    For people with fructose intolerance the worst foods are apple pear and honey but there are lots of other things to avoid.
    Has your little one been diagnosed with coeliac disease - is that why you are gluten free?
    My DD is currently being tested for coeliac and also sucrose intolerance.
    Have you also had problems with weight gain? My DD has always been very small for her age.
    Food intolerances are frustrating aren't they?!
    He came back borderline on the biopsies, there was damage, not enough to say for sure that it's coeliac, but I am coeliac and so is my mother so its likely. After he went Gluten free he stopped vomiting every day - and hasn't ever again, so I am sure he is. But his poos are still up and down, he still goes through periods of mucousy explosions. He has been GF for 18 months and Lactose free for his whole life. So I am at a loss as to why he still isn't 100%

    When he was on gluten he used to look pregnant - such a big belly. Ugh. Food issues suck!

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    Quote Originally Posted by beebs View Post
    He came back borderline on the biopsies, there was damage, not enough to say for sure that it's coeliac, but I am coeliac and so is my mother so its likely. After he went Gluten free he stopped vomiting every day - and hasn't ever again, so I am sure he is. But his poos are still up and down, he still goes through periods of mucousy explosions. He has been GF for 18 months and Lactose free for his whole life. So I am at a loss as to why he still isn't 100%

    When he was on gluten he used to look pregnant - such a big belly. Ugh. Food issues suck!
    Yes, the pregnant belly! I know what you mean. My DD used to sit there and rub it as it was in the way of her doing things
    Yes my DD has been lactose intolerant her whole life too. That's much easier to deal with though.
    Maybe see if you can see a difference in him after he has apple or pear? That is very likely to bring on the symptoms of FI if he has it.
    My DD has had hydrogen breath tests to confirm both the LI and FI. Maybe ask your doctor for the FI test?
    I have noticed that my DD is much better when she avoids wheat as it was pasta that we first noticed that caused problems.
    I really hope she grows out of this and she doesn't have to worry about this her whole life.

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    Double post
    Last edited by CookingMonster; 18-06-2012 at 11:28.

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    I have fructose and sorbitol intolerance and went to an information evening about what I could and couldn't eat (mine diagnosed through the breath test as well). I was given a booklet about it all, if I can find it do you want me to email it to you? It tells you what foods have fructose or fructans in them so which to avoid and I think from memory it gives you alternatives as well. I wasn't lactose intolerant but I think I have the booklet for that too if you want it. PM me if you're interested.

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    Big culprits here for bloating are cows milk protein (not just lactose), gluten (we cant do oats or barley either), eggs (for me littlest one), addatives (preservatives, colours, flavour enhancers, etc) and soy (soy is a huge one especially if they have issues with dairy).

    Then you have food chemicals and sugars such as: fructose, salicylates, amines, glutamates, sorbitol, and the list goes on.

    Personally I would start with the simple ones first before looking at food chemicals.

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    Hi ladies,

    Hope you don't mind if I hop on here.

    My hubby has Fructose Malabsorption diagnosed by hydrogen test, we only got him tested on advice from our paediatrician when my DD was super sensitive to food coming through my BM and an exclusion diet helped her...

    Now she is older we assume from symptoms that she has the same and feeding her is a minefield of late nights, sore tummies and bad sleep.

    I notice some of you have said your kids have been tested, I was under the impression they couldn't be until they were 3??? Could you let me know how old they were when they got tested? And was it just a breath test? I would love to know for definite what is going on with her tummy! I would hate to be limiting her food and not giving her a balanced diet for no good reason.

    On a side note she is lactose intolerant too but that we can deal with, she tolerates yoghurt and cheese but does look quote bloated a lot of the time so from reading earlier posts maybe I need to limit the dairy!

    Would appreciate any advice out there! Thanks in advance

    Em

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    Default Fructose intolerance

    Hi there em. Yes my DD has had the lactose, fructose and sucrose hydrogen breath tests. She had her first at about 9 months and her last one last Monday and she is now 18 months old. I am really glad that she has had them done as it has confirmed what she can and can't eat quite clearly. She still has a bloated tummy but she is having testing for ceoliac disease at the moment so it could be that causing it.
    My DD is lactose intolerant too and she can tolerate hard cheese like cheddar but can only have lactose free yoghurt - a low sugar one. I would steer clear of yoghurt as it is generally high in lactose.
    I hope this helps.


 

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