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  1. #21
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    Hi everyone,

    Thank you so much for your hugs and suggestions. I think the Losec is starting to work as she's not screaming after feeds now which is good.

    The only thing is she still has really bad wind. It wakes her up every 1 to 2 hours each night. Last night I managed to settle her down through most wakings, but still had to feed her twice, but that's normal for her.

    Any suggesstions on the wind? I've tried all the suggesstions everyone ever makes (bicycle legs, massage, tummy time, gripe water, infacol, infants friend etc) We are still waiting to see a paediatrician as we think she could perhaps have some kind of food allgergy, but it's hard to tell as I'm mix feeding. 3 bottles of nan ha gold a day and the other 3 or 4 feeds breastmilk.

    It's such a shame that it takes so long to get into see a paed given GPs always just think I'm being paranoid and don't think her wind or reflux is a problem as she's gaining weight so I'm not a priority to get an early appointment.

    Thanks again everyone!


  2. #22
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    Hi again!

    Sorry to be stalking you. My guess would be constipation. Reflux is a motility disorder and it often affects the entire GI tract - ie top to tail. My little one is on osmolax (prescribed by paed gastro) and has been on a form of laxative of some kind since about 3 months. She simply can't pass a usual quantity without out it and if we are late with it or don't give enough she still screams and crys trying to pass what she needs to (including wind). My little one didn't really settle down much until we had her on a pretty high dose of meds and laxative. Even then she still didn't eat. Ended up on an NGT (nasal gastric tube) at 7mths for failure to thrive (read: severe malnutrition) , then NJT (nasal jejunal tube), we were running 24hr drip feeding up until surgery to repair a hiatus hernia and insertion of a button into her tummy which we still have to supplement her through 7 months later.

    My point in telling you this is there are mild cases of reflux for which chiro and very simple measures like elevating the bed will work - but there are also far more severe cases where none of those things will work.

    I promise I know what I'm talking about. If you have a feed refuser you need to get on top of the reflux and pain management as quickly as possible. If you can't get to the bottom of it with your paed, get a referral to a paed gastro. At the same time, depending on the severity, consider seeing a speech therapist who specialises in paed feeding issues.

    I'm saying this as someone who is still battling food refusal after major stomach surgery 20mths down the track. I really wish someone had told me.

    Here;s an article on feed refusal:
    http://www.reflux.org.au/risasite/in...1:article-text

    Thinking of you. Its hard. If you would like to talk to other reflux mums who've travelled this journey, consider the RISA forums as well as bub hub. Just a bit more specialised support...

    Cheers and good luck

    Jo Matthews
    President
    RISA

  3. The Following User Says Thank You to JoMatthews For This Useful Post:

    MissMuppet  (21-06-2012)

  4. #23
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    Cuddles, i really feel your frustration.
    Jo, thats really helpful information. Im glad i came across this post. I have a 4 month old DD who suffers from reflux. She started medication at 7 weeks because feeding was a nightmare & she wasnt putting on much weight. Took about 2 weeks before showing signs of improvement. She no longer has the pain from spitting up etc but she does still suffer from constant bad belly aches. Even after a good size bm she still pulls her legs up & whinges like she still needs to go. Every gp and child health nurse that has seen her at checkups tell me its normal! But i dont feel it is when its all the time. Haven't seen a paediatrician yet.

  5. #24
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    Could it be possible bub has a milk intolorance? How are her poo's, any rashes??

  6. #25
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    Hi Jo, don't worry you aren't stalking, I appreciate your concern and advice.

    Its definitely not constipation, she has borderline dioreah (sp?) as its thick but still runny.

    Alima I think it is a milk intollerance due to her wind, bloating, poo consistence and she does get a few rashes on her face.

    It just seems there is nothing I can do until my paed appointment in 1.5 weeks time.

    Miss bubble, your situation sounds identical to mine! Hence the title of my post - I think it is irresponsible for there to be advice from GPs and child government support agencies to spout the - they will grow out of it line!!! Jo is case in point! Your poor bubby having to go through that pain and surgeries

    Does anyone know if there is an over the counter formula that isn't based on cows milk, goats milk or soy?

  7. #26
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    Are you breast feeding??

  8. #27
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    Ypu will probably be given a formula called neocate. You will need a script from dr.

  9. #28
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    You could try pepti jnr (from the chemist) before your paed appt. It's milk proteins are partially broken down.
    It's expensive though, but if it helps, the paed can give you a script and you can get 6 tins for about $35

  10. #29
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    Alimia I am currently mixed feeding. I'd fully formula feed but not on the current formula if she does infact have a milk allergy, I don't want to make her worse than she already is.

  11. #30
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    What other kind of symptoms would a milk allergy show? I am ebf and a midwife did tell me when dd was 4 weeks to go off dairy to see if there was any change. I went off for 2 weeks like she suggested but there was no change. She also thought her bm's would be more greenish if there was an allergy, is this correct? Because my dd's bm look normal for a bf baby. She just really struggles to pass them or gas.


 

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