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  1. #1
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    Default Failsafe/RPAH elimination diet journey

    I'm pretty sure DS1 is intolerant of histamines and other amines, but we started the proper RPAH elimination diet last week to make sure there are no other intolerances.

    I started a blog about our journey, as when we started I found it very hard to know what to do/cook for the family. I thought I'll share the blog with you in the hope it will help others in the same situation.

    The blog is at: http://foodintolerancessuck.blogspot.com.au/?m=1

  2. #2
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    thanks for sharing - I'm really keen to hear how everything goes

  3. #3
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    Quote Originally Posted by faith72 View Post
    thanks for sharing - I'm really keen to hear how everything goes
    Thank you :-) I try to update the blog every few days

    Currently I'm at the stage I wish someone would just shoot me :-D I find it very hard, especially as DS's eczema although minimal is still not going away. I know it can take a while and it's been just a week - and I've already made a mistake, but patience is definitely not one of my strong characteristics.

    I'm getting close to stopping the breastfeeding for a Lindt ball :-) (he already has milk only before going to sleep at night) I know it's only a week and there's the withdrawal symptoms and all, but it's just so hard.

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    I'm reading too!

  5. #5
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    Well, we're off the RPAH/failsafe diet. After 2.5 weeks on it, it seems to have made DS1's eczema worse, and made him congested at night and snotty during the day :-(

    So we're back to a low histamine diet, but also eliminating deadly nightshades, rice and legumes (I'm 99% sure the rice made him snotty and red on the edges of his lips). We're having wheat and dairy again which is great - and his skin is improving! It's so nice to be able to have some of the high sal foods like olive oil, onions and blueberries! I don't want to touch a pear or a golden delicious apple in weeks.

    It's a long and difficult journey, but hopefully we're getting somewhere. It is nice to have to put just a smidge of cortisone on him rather than having to do the back of his knees, side of his knees, inner thighs, shoulders etc. hopefully soon enough I won't have to put anything on him.

  6. #6
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    Hey Jakes Mum! Cant believe I missed this thread before - I'm off to have a look at your blog. We are additive free (mostly) but soon to start failsafe. Do you think the effects you found could be withdrawals. It must be super hard to see them getting worse, but I read something that said the kids often get better quickly, then seem to get worse around the end of the first week and through the second week, and then seem to pick up again after week 3-4. They say its the body detoxing essentially and going through withdrawals from what its missing.

    There is a facebook support group run by Sue Dengate that has lots of helpful info - not sure if you've seen it? I can pm details if you are interested.

    I'd also love to know if you did it with the help of a dietician or not? And if not did you find it manageable? We are about to start it but will be doing it solo as we cant afford a dietician at the minute and while our GP is on board and happy to support us she wont refer to a dietician in case the food thing doesnt work long term and we need to see further specialists. Gp is happy to support us but upfront that she knows nothing about these elimination diets and I must admit I'm a bit nervous about doing it alone

  7. #7
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    Also just saw your other post about NAET, and although I dont personally know anything about it, there was a discussion in the group I mentioned above about some people who had done it - some with success, some without. You might b interested in that? There is also another support group for biomedicine which they say helps find the medical reasons behind food intolerances. Again I relaly dont know much about it, only just hear it being discussed

  8. #8
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    Cant wait to read your blog, we are doing failsafe with DD who is nearly 3. Just wondering if you have been taking probiotics and fish oils - remember once the allergen has gone the gut needs to repair or it will start becoming intolerant to other things.
    Cooking sux doesnt it, I think we are nearly there though, waiting on allergy test results.

    Sent from my LG-P500 using BubHub

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    Errin, I suggest finding a well educated Naturopath, if you are in Bris I can give you a name.

    Sent from my LG-P500 using BubHub

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    erinn  (22-06-2012)

  11. #10
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    Thanks Mumma OJ - not in Brisbane, but a naturopath is something I am considering. I also think it might be worth it.

    Wow Jakes Mum, your poor little boy really has had the run around with it. Sorry to hear it has affected him so badly Very scary about the lips swelling and stuff. I must admit that would probably frighten me off doing the diet esp if you werent having those issues before. Just wondered I think I saw on the first page that you mainly only cut amines not the other 2. Could it be that you are eating more of the other stuff to compensate for no amines which is then triggering a reaction in him?


 

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