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  1. #11
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    Update:
    Had my lap yesterday. My FS found stage 4 endo and my uterus was completely stuck to the front of my stomach. He thinks my uterus may have healed stuck to my stomach after my c section with my DD 3 years ago. He is going to contact the hospital I had her at to see what else he can find out. I'm in a fair bit of pain as he cut out so much endo. He got my uterus 90% unstuck but he wouldn't risk the last bit or bowel area without a second surgeon and he would need ti go in a different way.
    So Definately glad I got a second opinion as he was pretty disgusted that I hadn't been sent for a lap ages ago based on my pain and symptoms.
    Not sure what this means for being able to conceive yet. I need to see FS in two weeks so I guess I will find out then.

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    Vivre  (07-07-2012)

  3. #12
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    Wow no wonder you were in so much pain Jez! That sounds absolutely horrible. I hope you're not in too much pain now. You just need to take it easy for about a week that's what I found best. Also a heat pack is a godsend! I'm crossing my fingers for you that this will help you

  4. #13
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    Oops hit send too quick! I meant to say I hope this helps you on your way to becoming a mummy again! It certainly did for me I was so pleased I had it done. Please keep us updated on how you are going xxx

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    jez  (05-07-2012)

  6. #14
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    that's awful! I'm sorry you had to wait so long to be diagnosed. I was similar, I had 3 laps - 1St took one look and refused to touch me, refered me to a specialist. He did a lap, diagnosed stage 4, put me on a 6mth course of zoladex then another lap where he cut it all out, mobilised everything (womb, bowel and pouch of Douglas were all bound up) and I lost half an ovary due to damage. that was 12 years ago, I went on the pill for years and 5 years ago we conceived dd1 naturally. they said I would need ivf but they also said there was not much damage to my tubes so I'm guessing that's why I conceived naturally.
    So it all depends I think but you can definitely have advanced endo and preserve your fertility. I know how devastating it can feel to go through all this but there is hope, just try to look after yourself and recover as well as you can
    Last edited by Gothel; 05-07-2012 at 12:21.

  7. #15
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    Quote Originally Posted by MrsTiggyWinkle View Post
    that's awful! I'm sorry you had to wait so long to be diagnosed. I was similar, I had 3 laps - 1St took one look and refused to touch me, refered me to a specialist. He did a lap, diagnosed stage 4, put me on a 6mth course of zoladex then another lap where he cut it all out, mobilised everything (womb, bowel and pouch of Douglas were all bound up) and I lost half an ovary due to damage. that was 12 years ago, I went on the pill for years and 5 years ago we conceived dd1 naturally. they said I would need ivf but they also said there was not much damage to my tubes so I'm guessing that's why I conceived naturally.
    So it all depends I think but you can definitely have advanced endo and preserve your fertility. I know how devastating it can feel to go through all this but there is hope, just try to look after yourself and recover as well as you can
    Thanks for your posts. Do you mind me asking what zoladex is? and what it did for you.

  8. #16
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    I hope I got the name right. Itwas an injection into my abdomen (yuck) that put me into chemical menopause for 6 months, which killed off the endo. When they went back in for the 3Rd lap, there was far less endo to cut out.

    Eek I know what I'm in for when I get the real thing now, those hot flushes are fairly unpleasant!

  9. #17
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    Btw I hope you are feeling a bit more comfortable today. Have you shoulder pain or mostly in your stomach?

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    Quote Originally Posted by MrsTiggyWinkle View Post
    Btw I hope you are feeling a bit more comfortable today. Have you shoulder pain or mostly in your stomach?
    The shoulder pain comes and goes but it's not that bad today. The incision in my belly button and the one on the pelvis don't hurt but the third incision on my lower right hurts a lot. The right side of my stomach is much more swollen and painful than my left too so I'm guessing that's where most of the work was done. The gassy feeling is pretty uncomfortable at the moment

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    Poor you, its so unpleasant. Hopefully it passes soon and its all worth it. keep us updated on how you go, I think you said you see the fs soon?

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    Hi Jez

    I've been away from BH for a while and was glad to see some progress with your journey when I logged back in. I'm glad to hear that you have some answers, but really sorry that you are in so much pain

    It took me 2 months to recover from my 2nd or 3rd lap, the one where she removed the most endo. I had open surgery last op, scar from belly button to pubic bone, in february, and it didn't take as long to recover go figure...

    I recommend moving around as much as you can, as hard as it may be, gentle walking and at least 2 litres of water a day will help. The movement and fluids help deal with the gas they put in your tummy for the op. I was also told that movement will help stop anything sticking to something else while it's healing, though don't know if this is current thinking or just my old Dr.

    It sound like he dealt with a lot, so MrsTiggyWinkle (love your name) has a good suggestion, Zolodex may be a good option, it's something I wish I could have tried a few years ago, had I known about it. I have read heaps of stories of success post Zolodex.

    I have heard that whether or not they have dealt with it all, you are still most fertile for 6 months after the surgery. Apparently this is because the 'trauma' causes an exaggerated or 'super' healing response, which puts everything in a better place for that time. I'm sorry I can't remember all the technical explanation, but I was told there is one!

    Things have been tough for you for too long, so I hope that you are able to celebrate this, in some small way, as a victory and move on with your journey as soon as possible.

    Amabel

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