I have never used or joined anything like this before so please excuse my ignorance but i am desperate for some help and advice and medically have just hit wall after wall so figured that some mums that have been where i am or are there may be able to help.
My beautiful baby girl is now four months old. She is on home oxygen and has a NG tube, despite MRI and other tests she has undiagnosed reason for global development delay, hypotonia, bilateral wrist drop.
She was on ECMO immediately after birth and in NICU for first 5 weeks of her life. We are desperate to get some advice about trying to encourage her to feed from a bottle so that we can move onto solids and avoid getting a Peg if possible and that maybe helping trying to get some strength in her back may also assist with this?
Gosh there are so many issues ...... does anyone have some advice please ??