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  1. #31
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    Quote Originally Posted by wanabemum View Post
    Hi Lindyloolove

    Like you I have Hashimotos. I am currently going through IVF and I had a miscarriage last year. I wonder if my Hashi had anything to do with it. Anyway, do you think that getting rid of your thyroid helped you get pregnant? Any advise on hash's and pregnancy/conception would be great.
    Hi wanabemum, I am so sorry to hear you are having trouble falling pregnant. I hope that your journey is not a long one!
    I had my thyroid out about 2 years before my husband and I decided to start trying for a baby- so I really don't know if it would have hindered our ability to fall pregnant.
    I do know that not maintaining the right levels (Tsh, T3, T4) in pregnancy could be harmful to Bubs if way out for too long, so it is possible I guess that it may affect chances if conceiving.
    What does your FS or endo say?


    Lindy

  2. #32
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    I too have been diagnosed with Hashimoto's disease.

    I started on 100 mcg thyroxine three months ago, but after two months, I continued to have symptoms (hairloss, always tired, no energy, dry skin - just general feeling like crap). Endo told me "i was fine because TSH is in the normal range". I went back to GP who upped my dose to 150 mcg. I am four weeks into taking the higher dose and I still have the symptoms. I am at a loss. GP was sure that I would feel better once I was on thyroxine. Yeah right

    I'm meant to do blood work follow up on Jan 28th, so we'll see what that says.

    Going to ask GP to check whether I might be gluten intollerant. Because over the last few months I have experimented being gluten free on and off for a week, and I do notice a slight improvement but I'm not entirely sure whether thats because I was on holidays.

    DH and I decided that if there still is no BFP by June (when I turn 30) then I will ask to get tested for autoimmune implantation dysfunction / NKcells in uterine lining. I'm really worried that my eggo actually met the sperm but just never actually able to implant.

    I'm at a loss I really don't know what to do to feel better / fall pregnant. The Endo doesnt want to do anything to help me because TSH is in normal range. Endo obviously thinks their job is done. Doesnt matter my symptoms persist and I feel like a zombie and I am still not pregnant.

    being autoimmune sucks

    Anyone in the same situation? Anyone who had their BFP in the end? any glimmer of hope / advice would be nice to hear

  3. #33
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    I have hashimotos never had a weight problem. I'm on 100mcg daily. Fell pregnant first month- miscarried and then fell pregnant first go again (currently 23 weeks pregnant with a healthy baby girl).

    I am gluten intolerant. Apparently almost all people with hashimotos are. I have cut out all gluten over 2 years and feel soooooooooo much better for it. I thoroughly reccomend it.

  4. #34
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    hi all

    bluelips - thank you for letting us know that it is possible! Good luck with your pregnancy. That is truly wonderful.

    someone I would definitely get those tests done. Suggest you might also want to test your vitamin d levels as these can run low in people with Hashi's and low vitamin d affects fertility. Other supplements that I take include melatonin (helps me sleep and is good for fertility) fish oil (helps dry skin etc) a probiotic (keeps me regular) and a good multivitamin for women.

    Hashi's isn't a straight forward disease were you can pop a pill and feel fabulous as you and I have both found! There can be a lot of side issues going on. In my experience, there are two kinds of approaches to treating this: 1. traditional western medicine and 2. alternative approaches.
    The best way to go is to take the best of both.

    For 1. I have found an endocronologist who also has a strong focus in fertility. She has actually said that because I want to be pregnant my normal range needs to be slightly lower than other people so my thyroxine has therefore been increased. She also gave me the vitamin d blood test and a few other tests.

    In response to 2. I have found a local general practitioner who is also trained in natropathy and chinese medicine with an interest in fertility.

    As a result I am on chinese medicine and acupuncture. I also have a number of vitamins and supplements (such as vitamin d, zinc, magnesium etc) that support my thyroid, my general wellbeing and my fertility. She also made me do a series of expensive blood tests that arent covered by medicare to test things like allergies, vitamin D levels, thyroid antibodies and not just the t3 and t4 that medicare cover.

    I have found it a very slow process trying to get on top of hashi's. I am not pregnant yet but I certainly feel a lot better with my energy levels and my moods since I have been really focussed on recovering.

    I tried going off bread. My blood tests showed that there are certain grains that I am really intolerant/allergic too such as durum wheat so I am steering well clear of these but I personally cant at this point give up bread. So I am just very careful in the kinds of grains that I eat.

    Be aware that no matter what you do, this disease doesnt go away. You will have days were you are tired and feel down no matter what. As long as you know it will pass and you will generally feel better again it will be ok and once you have tweaked your treatment you will feel a lot better again.

    Hope this helps.
    Last edited by wanabemum; 10-01-2013 at 09:24.

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  6. #35
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    Quote Originally Posted by someonesomewhere View Post
    I too have been diagnosed with Hashimoto's disease.

    I started on 100 mcg thyroxine three months ago, but after two months, I continued to have symptoms (hairloss, always tired, no energy, dry skin - just general feeling like crap). Endo told me "i was fine because TSH is in the normal range". I went back to GP who upped my dose to 150 mcg. I am four weeks into taking the higher dose and I still have the symptoms. I am at a loss. GP was sure that I would feel better once I was on thyroxine. Yeah right

    I'm meant to do blood work follow up on Jan 28th, so we'll see what that says.

    Going to ask GP to check whether I might be gluten intollerant. Because over the last few months I have experimented being gluten free on and off for a week, and I do notice a slight improvement but I'm not entirely sure whether thats because I was on holidays.

    DH and I decided that if there still is no BFP by June (when I turn 30) then I will ask to get tested for autoimmune implantation dysfunction / NKcells in uterine lining. I'm really worried that my eggo actually met the sperm but just never actually able to implant.

    I'm at a loss I really don't know what to do to feel better / fall pregnant. The Endo doesnt want to do anything to help me because TSH is in normal range. Endo obviously thinks their job is done. Doesnt matter my symptoms persist and I feel like a zombie and I am still not pregnant.

    being autoimmune sucks

    Anyone in the same situation? Anyone who had their BFP in the end? any glimmer of hope / advice would be nice to hear
    Firstly, I'm so sorry you find yourself in this situation

    I was diagnosed with Hashimoto's early last year after a missed miscarriage. My FS believes after testing that the untreated Hashi's is what caused the miscarriage as it was highly likely that my antibodies attacked my growing baby instead of my thyroid.

    I started seeing a naturopath who put me on a product called Rehmannia along with Vitamin D (as I was dangerously low), selenium, fish oil, a potent probiotic and heaps more but I can't remember exactly. At one point I was popping 16 pills a day! Within six months all of the above helped in halving my antibodies reading and I was definitely feeling better but felt I needed more. I was seeing my FS at that time so he put me on 50mcg of Thyroxine. My TSH at the time was hovering around 3.8. Within two weeks I was feeling better but still lethargic so I was upped to 100mcg and within one month I got my BFP. My TSH now sits at 0.88 and my FS is very happy with that. I am now almost 22 weeks pregnant so it can happen!

    I know how heart breaking it can be month after month to not only be feeling like crap but to have to stare at a negative pregnancy test so I do feel your pain.

    Also, as PP's have said, when I remove gluten from my diet I feel much better but I just love my bread!

    Are you in Sydney? I can recommend you an amazing fertility naturopath who I'm sure can help you.

    Feel free to PM me if you'd like or ask any questions you may want answered
    Last edited by FirstTimeMummy2012; 10-01-2013 at 09:56.

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  8. #36
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    Thanks for all the encouragement.

    I know what you mean about not being able to imagine bread out of your diet. Not to mention pasta that I love so much.

    FirstTimeMummy: Im in QLD, so your suggestion of a naturopath in Sydney sadly won't help for me. But thanks anyway

    I was actually getting sick of feeling like crap today, so I booked an appointment with GP tomorrow. I am getting back blood test results for vit B12 and iron, so at least I will know about that.

    I feel like I am walking on rubber legs too. So sluggish. But I do think it may be the gluten.

    But like I said before too, my endo seems to think that her job is done as I am in normal range now. Mind you that was TSH at 2.7 last month. Two more weeks till I'm allowed to do my follow up blood test.

    So tomorrow I will ask about the celiacs and the vit D and all the other questions I have.

    On the up side, I'm about to O, I feel the twitch on my left side. I never actually had any issues with Oing. Over the time we have been TTC I can point out three cycles where AF was super late. Once i got a faint BFP but blood test didnt show a thing and then AF showed up anyway. I have read an article that said with autoimmune implantation dysfunction you will not get a BFP. I do believe on those occasions DHs swimmers have caught the eggo. Sure enough after all this time they must have met already since my tubes are all clear. I just think it never actually implants for whatever reason and it gets washed out

    to all and hope we all get our answers soon

  9. #37
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    hi someone you might want to consider sharkeys healing centre as they are naturopaths that specialise in fertility.

    If you are looking for an integrated GP (ie a registered doctor who also does things like naturopathy, chinese medicine etc.) have a look at this site:

    http://www.naturaltherapypages.com.a...olistic_Doctor

    Im not recommending either of these by the way. They are just suggestions in case your GP doesnt cooperate. Let us know how you go.

    Firsttimemummy thanks for the info! I will be looking up Rehmannia. Spirulina is another thing that my gp has also put me on. It is supposedly low in people with thyroid problems.
    Last edited by wanabemum; 11-01-2013 at 08:58.

  10. #38
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    Default Hashimoto's and Hypothyroidism

    Someone, get a new Endo!

    I have been where you are and am now mum to two gorgeous kids. Thyroxine is not the wonder drug that most GPs and Endos think it is, nor does it work for everyone. For the 12 years it made me sick, I was always sluggish and yes it kept my TSH stable but I still felt sick on it (plus acute diarrhea). Swapped to Tertroxin, it's a T3 supplement rather than a T4, and boom, feel better, have an energetic 3 year old and a gorgeous 9 month old. My TSH is also stable.

  11. #39
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    Quote Originally Posted by davally View Post
    Someone, get a new Endo!

    I have been where you are and am now mum to two gorgeous kids. Thyroxine is not the wonder drug that most GPs and Endos think it is, nor does it work for everyone. For the 12 years it made me sick, I was always sluggish and yes it kept my TSH stable but I still felt sick on it (plus acute diarrhea). Swapped to Tertroxin, it's a T3 supplement rather than a T4, and boom, feel better, have an energetic 3 year old and a gorgeous 9 month old. My TSH is also stable.
    Interesting to know this thank you! I find I am still much more sluggish than I would like to be but it could be because I'm pregnant so I'll have to see how I go after the birth of my girl. I had read all about Tertroxin before and asked my endo/FS if I should try it but he said to see how I go with the Thyroxine. I've also been thinking about switching to desiccated thyroid as it seems to have better results. We have a friend who owns a compound chemist so it makes it just that much easier to get
    Last edited by BH-tech; 06-01-2015 at 16:36.

  12. #40
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    Well this GP visit was a total waste of time. (my usual GP is on annual leave and so I had to see one of her colleagues) - basically i told her im still tired, my hair is falling out, my skin is dry, i feel like i have rubbery legs and arms, etc. I told her when i reduce gluten intake as experimented the last few months on and off that i feel better, and I purposely had a lot of gluten this week (pasta's, bread etc) that I feel worse when eating gluten. I burst to tears because I dont know why i feel like crap that way and i dont know why (anyway i burst to tears cuz im really vulnerable lately I have had to have soooo many invasive tests done with total strangers - dye test for tubes etc, I constantly get poked with needles for bloodtests and no one can tell me what is wrong other than "you are in the normal range" bull****

    Anyway she said i have 'clinical depression'?????????????? im like, im not depressed lady. i have never been happier in my life, stable relationship, happy with what i do, recently got a new job and less stress more pay, recently bought land to build a house etc etc. Yes, there are things in my life that are not how it should be, but i make a conscious effort to see the positive in everything. this GP is full of ****. I have never been happier in my life right now and in my life choices. This woman simply refused to keep listening. She didnt even want me to do a blood test to at least see about the gluten intolerance and told me that "there is a lot of misconception about gluten intake and Hashimotos blablabla" well why do i feel better when i dont eat gluten and totally worse when i do eat gluten??

    Mind you this GP was of the older generation, probably in her 50s. My regular GP is about my age and way cool and understanding. So I have to wait and see my regular GP for follow up blood work in two weeks time when she is back from leave.

    this appointment feels like a total waste. I cannot believe how this woman tried to tell me to take anti-depressants. Hells no!! i feel so angry right now, she simply did not listen

    i cried during doc appt, but wouldnt you feel on edge when you really want to feel normal again and you desperately want a baby and all your friends fall pregnant by just sneezing and everyone has new born babies, and you are getting needle pricks all the time, and you have to do a dye test for your tubes with a male radiologist (so uncomfortable) etc etc etc??? This does not equal depression IMO


 

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