Hi so about 2 weeks ago I went to work and started displaying stoke like symtoms.. Im 27 years old with 4 kids.
Sent to the hospital who ruled it out.. But confirmed after Mris and Ct scans I have A very LARGE Syrinx and a Arnold Chiari Malformation Type 1.
Got sent to a bigger hospital. Where they scheduled me for surgery the following TUesday so a few days.. By the afternoon I went to the hospital I had almost no feeling at all over my left hand side. Including mouth.
The surgery that they are doing is only tofix one of those problems...The arnold chiari.. To do that they had to remove 3/4 of my first vertebrae and take out My foramen Magnum Bone (the bottom of my skull) They didnt replace them either.. They were just trying to make the hole between my brain and spine bigger so the fluid could flow more freely..
If this surgery works we may not need to fix the syrnix as the fluid will have more room to move and will hopefully lessen.. Because to fix a syrnix you need to go through the spinal cord which can paralys me amongst other things.
Anyway I had the surgery last Tuesday and I just got home today on a crap load of pain killers..
(BTW they told my husband and I the surgery would take 2 hours pus 1 hour in recovery.. He and my parents thought id died because I was in surgery for 7 hours and one in recovery and not once did they tell him what was happening or my parents when they asked)
DO any of you have any advice about these Surgeries because Im told there are alot of risk factors after this surgery.. (the one i had)
The OTHER BIT OF ADVICE I was after.. Is we are a double income family.. Centrelink stopped our payments completely a few months ago because they stuffed up when we updated our FTB.
Im not allowed to work for 8 weeks minimum and thats from my surgery date... Not from when I first got off work from being sick a week prior.. Thats as a minimum to... If I dont need the other surgery
But now Im not working and Iv already now run out of leave..
Is there anything we can get my husband has to go back to work..He is on Tuesday cause he had to have the time off to look after our kids and be there for me..And he will of run out of leave..
I cant walk yet or only around our house so Im in a wheelchair if I need to do something longer than less than 5 minutes.. we have to buy a wheelchair because for how long I need to rent it Aldi is selling them tomorrow.
We are gonna end up going bankrupt with me not being paid.. We will run out of food we wont be able to pay rent and we wont be able to pay for our car loan>>
Is there different payments we can get from Centrelink? Or anywhere? I am so frightened that because I got sick im gonna stuff my families lives up..
Any help of any kind would be great/