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  1. #21
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    I think I will be getting that book, MsMummy as I've heard alot of good things about it! Hopefully by the time we go to see the paed his behaviour is a bit better. I honestly think he will mature a bit more by then too and have longer concentration levels as its almost six months away... In all honesty I'm not sure how many 3 year olds sit and listen in a class setting, but maybe by 4 they do? I can only hope haha

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  2. #22
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    Quote Originally Posted by 2Bboys View Post
    Jo, you may have more luck on the Gold Coast getting into a paed.
    We will definitely look into that, haven't thought of going elsewhere! Thank you


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    My nephew is 5 and autistic, it was a year ago my sister started the investigative process. He's always been a bit different but the sweetest boy in the world, very affectionate.

    He seemed to have a lot of trouble following directions. I made my sisters life a lot harder by not agreeing when she thought he had a problem. I thought he was just being naughty but when I volunteered at his kinder I realised he was different from the other kids. He couldn't sit still on the mat and would often be in his own world. Couldn't follow as instructions his young sister had no trouble with.

    I guess I had trouble believing it because he was so smart. He's a whizz on the ipad, able to chat away to anyone. I guess I was ignoring other symptoms like his complete lack of stamina, constant fidgeting, chewing on his collar etc.

    As others have mentioned getting the diagnosis is hard. Lots and lots of appointments with different specialists, often with huge waiting lists. She had to miss a lot of work and it was a hell of a lot of work. Unfortunately it's not just as simple as a doctor saying he has it.

    He's in prep now and my sister choose a small country school where the other kids look out for him. She also bought a tracker that looks like a normal watch so she knows if he runs off she can find him on a map.

    He's been approved for level 2 funding so has an aide working with him a couple of days. He's enjoying school but just doesn't have the stamina for it. He often has a 2 hour nap during the day and the teachers let him go.

    The funding is really difficult with only certain amounts being used for certain things over a certain time (the others obviously know more than me). So just make sure you keep on top of the appointments and keep pushing through. You can also get a carers allowance from centrelink. There's a waiting period so apply before you get a diagnosis so it comes through when you do.

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    Johanna82  (19-03-2012),onkybear  (20-03-2012)

  5. #24
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    I cringe when that book is mentioned/recommended in the special needs section. (nothing against those who mentioned it) but in certain cases that book is dangerous to parents who don't really have an understanding of autism, and have a fear of it. I know so many mothers who allowed that book to hinder their child's dx.

    I mean the first chapter has a story of a mother who was late to the class because her child flipped out over there being loose threads on his socks, and then she needed to twist and turn and take off the socks and put them back on again and again, until it was just right for him. That's not spirited. That's a sensory issue!!

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    So what do you recommend I do in the meantime, Diamond Eyes? I feel like I'm walking on eggshells at the moment with regard to discipline with DS...

    If he is autistic then I'm assuming there are different strategies I should be using for his behaviour, but I guess we won't know for ages if he is autistic or not so this book sounded good until you said something.

    I try to be calm and use positive parenting strategies most of the time, but sometimes we use time out etc. when nothing is working. And that doesn't seem to help either...

    Feel a bit stumped to be honest



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    Read the book if you want, I apologise if my post came off as something mean instead of constructive (I actually have a copy, which I don't mind sending you as it was no help to me here with my two). Its not really my place to tell you what to do at all, so I'm sorry if that's how it sounded.

    If you are interested in a free copy, shoot me a pm

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  10. #27
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    Hi

    that you have to wait so long to get into a Paed ... can you put your name on a cancellation list?? or even ring the office every day to check if there has been a cancelled appointment (its how I got into a specialist months earlier for a surgical issue .. I swear they just got me an appointment to shut me up )

    Can I just link you to this site - http://www.spdaustralia.com.au/does-my-child-have-spd/

    SPD is sensory processing Disorder - and even if you just have a look at the list, and use it as a tick / flick type thing, it will really help you when you do get into an appointment. Often its hard to demonstrate behaviours in a setting, kids rarely 'perform' when you want them to (for want of a better term?!) - but if you go in with a list of behaviours that you have observed etc it really does help them know what you are feeling/ seeing at home. I really feel that often GPs/ Specialists dont read letters, but if you go in with dot points that they can skim read, they are more receptive.

    Regarding a sensory book - try searching for 'The Out of Sync Child" its a brilliant book that has a break down of each sensory system, and how to work with them (how the child could be feeling etc) as well as activities that you can do with your child to help them gradually improve their sensory processing behaviours.

    The sooner you can get into a specialist the better, if for no other reason other than to rule out ASD because if he starts prep next year, and he does have Autism you could get access to a day a week at an ECDP (early childhood developmental program), as well as getting access to therapists BEFORE prep .. which will improve his prep-readiness.

    Please keep us in the loop

    Jen
    Last edited by Veve; 19-03-2012 at 23:01.

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    You didn't sound mean at all, Diamond Eyes, I'm just a bit emotional at the moment and taking things the wrong way. Thank you for your offer of the book thats very sweet! If I decide that it's something I want to read I'll let you know

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    Quote Originally Posted by Johanna82 View Post
    You didn't sound mean at all, Diamond Eyes, I'm just a bit emotional at the moment and taking things the wrong way. Thank you for your offer of the book thats very sweet! If I decide that it's something I want to read I'll let you know

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    just wanted to send you some

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    Quote Originally Posted by Johanna82 View Post
    You didn't sound mean at all, Diamond Eyes, I'm just a bit emotional at the moment and taking things the wrong way. Thank you for your offer of the book thats very sweet! If I decide that it's something I want to read I'll let you know

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    It's completely understandable you feel this way *hugs* I lost the plot when both of my boys were dx. But a dx isn't a death sentence, it doesn't define a child. Just helps explain. And right now your not getting any help and are trying to figure out what to do on your own, so it probably seems scary and unimaginable..but If it turns out to be something, you will get a tone of strategies, support, help etc. It will get better.

    Pm me any time.

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