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  1. #1
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    Default Endometriosis diagnosis?

    Hi all,
    so I may stressing about nothing but I have been feeling sharp pains on and off just above pubic bone. My period was also really heavy the first two days of my period. Everywhere I read online it says that these are symptoms of endo.

    I had a hysteroscopy at the start of February to remove a polyp. Do you think if I had endo my FS would have been able to spot it during that procedure? Or is lap surgery the only way to find out if I have it? I really don't want to have to have that, I hate any type of surgery! Not to mention money is extremely tight

    I know that I won't be able to fall pregnant if I do have endo, but do you think I'm worrying over nothing since my FS has never mentioned it to me and I've had heaps of scans plus the hysteroscopy surgery?

  2. #2
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    I've had so many ultrasounds over the years & they never picked up my endo. Having the lap done by my FS was the best thing I ever did. Everyone has different symptoms with endo & even if you don't have endo, you can have a cycle thats heavier or more painful than normal. My symptoms were more bowel related & my periods were actually really light.

    Try not to stress about it being endo as I'm sure your FS would have mentioned having a lap if they felt you needed it. Also, having endo doesn't mean you won't get pregnant. Yes it can make it harder for some people, but not everyone.

  3. #3
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    Hey I have moderate endo and I'm up to 7th Ivf cycle 3 early misscarriages tr scar tissue makes it hard for embryo to implant. Could never tell I had it in ultrasounds but lap picked up loads of it. I'm struggling to get pregnant but dOnt know if it's endo related. I know loads of women falling with endo. HoPe you don't have to wait to long xx

  4. #4
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    Thanks for your responses girls

    Westiechappie, did you have to ask your FS to get the lap done or was there something that suggested you needed it?

  5. #5
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    I never knew I had it until last year when they had to remove my appendix. The pain didnt go away when they removed my appendix so was send to a endo specialist to get it diagnosed via a lap. I have also had plenty of ultra sounds and they never picked up how bad it was. On a ultra sound my right ovary looks normal, bit when they went in they saw it was destroyed. They are giving us 6 months to conceive naturally after that we will go onto medication and probably IVF. They are giving me 2 years before I am infertile. They dont always pick it up when they dont look for it. Until they are actually looking for it they wouldnt know if you have it.

  6. #6
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    Hey dande, surgery is the only way to confirm endo. Sonya suspected I had endo so put me on the waiting list at the mater so I didn't have to pay (she charges around $5000 for lap surgery plus private hospital fees and anaethetist). The referral was sent on November 3, first consult was on December 16 surgery on February 3 and was I completely recovered within a week. I got in quite fast as a new dr was starting and didn't have a very long waiting list, but the waiting list at the mater is approx 3-4 months for gynae surgery. But I can assure you that you can get pregnant and have a completely healthy baby with minor endo (one of my friends has severe endo and has had 3 laps & 2 open surgeries to remove it as it was as far up as her lungs and adhered to her bowels, she is almost due to have her bubba). Pregnancy can actually reduce endo symptoms in some cases.
    Last edited by Ngaiz; 10-03-2012 at 20:06.

  7. #7
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    I'd had a lap done a few years ago by a different gyno and he told me I had adhesions, but not endo and to go see a bowel specialist for my problems. So after 4 years of more pain and 9mths of ttc with no luck, I searched for an FS that knew more about endo. He was fantastic and suggested straight away that I needed a lap because of the previous gyno saying I had adhesions. My endo was classed at about stage 3-4. Thankfully, about the only part that wasn't affected was my tubes.

    Maybe just bring it up with your FS next time you see them to clear your mind. But try not to stress about it because we all have those strange cycles that might be heavy or more painful than normal, or longer/shorter than normal. It might just be one of those odd cycles you've had.

  8. #8
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    I had my first bubs at 17 And then was diagnosed with endo at 18. I met my current partner at 19 and he was willing to stay around even though I told him it would be hard to have his baby. We actively started trying when I was 21 and three years later I was feeling defeated and we put the idea out of our heads. Then bang the un expected happened and I had dd2, followed 16 months later by ds. So long story short, while it may take time, endo does not mean you can't or won't have children xoxo

  9. #9
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    Ngaiz - I can't believe its 5 grand!!! Is that out of pocket or can it be claimed through private health/medicare? Im glad you didn't have very long to wait with other doctor x

    How much did everyone else pay for their lap surgery?

    Thank you all for giving me hope that if I do have it,its not impossible to have a bub. Hopefully I am worrying about nothing though

    Sent from my HTC Desire HD A9191 using BubHub

  10. #10
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    Sorry, forgot to mention, no private health for me.


 

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