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  1. #1
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    Default Severely asthmatic kids

    Just wondering if anyone else has kids diagnosed with asthma? My DS who is 4 in May, was diagnosed officially in Nov after his first admission to hospital for asthma. When he was 6 months old he was diagnosed as anaphylactic to dairy and egg, so we've had concerns and suspicions he'd be asthmatic too, but the docs basically ignored my concerns and didn't refer me to a specialist to discuss the issues. Anyways, we now know he has asthma and how severe it is. He had another attack on Monday and just got out of hospital today (Friday) so 5 days in hospital. He's also now on a daily preventer medication to help control it so he doesn't have another attack. It's really difficult to manage at times and he was very nearly put into ICU and intubated as his oxygen sats were only 83% which is really very bad. It wasn't until a few days of being in hospital i realised the severity of just how bad asthma is and how life treatening it can be if not treated as soon as the onset of symptoms present. Disappointed in the health care system for not listening to my concerns earlier. And also now have to really keep a very close eye on him when he is symptomatic. Does anyone else have a young one with asthma, how do you manage it?

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    DD1 has asthma, and food allergies. She was diagnosed it with it when she was three and needed to be put on a preventer.

    We found out after that she had developed an allergy to dustmites which is a huge trigger for her. We moved to a house with no carpet at all which helped heaps and I wash all of her bedding regularly.

    After moving though we still couldn't get her off her preventer which was a pain because she was supposed ot only need it through the cold months but every time we took her off it she was needing ventolin every day again.

    So I started researching and discovered that sulphites (preservative 220-228 but 220 in the big one for us) makes people more susceptive to their triggers. We cut out sulphites completely and were able to take her off her preventer.

    Then early 2011 I went to listen to an international health researcher talk and afterwards I spoke to him about DD1. His big tips for asthma were to only give her water to drink (she gets soy milk to drink when we're out at a restaurant but otherwise water) and for every 10 glasses of water sprinkle a pinch of salt on to her tongue at bed time. So we did that. Last winter she had to go on her preventer for one month only and she had her best winter to date with asthma. No big coughing fits causing her to vomit and only used her ventolin when she got a cold.

    Hope that helps.

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    What food allergies are her triggers? That's good that being on the preventer has improved her management and avoiding the triggers. Cam's allergic to dairy and egg, so we avoid it here and generally it's ok. I'm just a bit worried, we have to wake him up to administer his ventolin and keep up his preventer, thankfully he's really good with it all, but we have to set alarms to make sure its done just for the next 24 hours. I'm glad i cosleep so i can hear him through the night incase he gets worse, fingerscrossed he doesn't need to be readmitted. I shall be weary of sulphites too, thanks for the tip. Also interesting about the only drinking water etc. DS drinks oat milk, but not as a drink, only mixed in stuff or with cooking etc, but he mainly drinks water, apple juice and sometimes lemonade. Is your DD school age yet? Cam is going to school next year and i really have to get ontop of his management so that they're all clued up with him and incase of an emergency having to have support people there to help with the other kids etc is hard as DH can't drive or do too much due to his disability.

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    A has extremely bad asthma & food allergies.

    She was dx at 10 months after a hospital admission with RSV & countless other hospital trips. The last month has been our biggest battle, she's been in & out of the GP's office & hospital. Last trip was Tuesday night & Wednesday afternoon.

    She's attacking multiple times a day & very tired from coughing so much.

    We've all had enough.

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    Quote Originally Posted by V8 View Post
    What food allergies are her triggers? That's good that being on the preventer has improved her management and avoiding the triggers. Cam's allergic to dairy and egg, so we avoid it here and generally it's ok. I'm just a bit worried, we have to wake him up to administer his ventolin and keep up his preventer, thankfully he's really good with it all, but we have to set alarms to make sure its done just for the next 24 hours. I'm glad i cosleep so i can hear him through the night incase he gets worse, fingerscrossed he doesn't need to be readmitted. I shall be weary of sulphites too, thanks for the tip. Also interesting about the only drinking water etc. DS drinks oat milk, but not as a drink, only mixed in stuff or with cooking etc, but he mainly drinks water, apple juice and sometimes lemonade. Is your DD school age yet? Cam is going to school next year and i really have to get ontop of his management so that they're all clued up with him and incase of an emergency having to have support people there to help with the other kids etc is hard as DH can't drive or do too much due to his disability.
    DD1 is anaphylactic to dairy, eggs and tree nuts...they're not her triggers though. I was just saying she's also a kid with food allergies and asthma. Sorry if it that was confusing.
    DD1 started year one this year and I was so worried about her being on a carpeted floor every day at school. She was also in an unflued gas heater room last year which is terrible for kids with asthma. She got a cold at the end of May that bought on her cough and we couldn't get on top of it without her preventer but once we got it to settle we took her off her preventer so since Oct 2010 she's only had one month worth of her preventer. Her triggers are dustmites, cat fur and cold air + being sick makes her more susceptible. I rug her up to insane amounts for school...we used to just hibernate through winter but that's not an option. So singlet, spencer, skivvy, then her school shirt and then a jacket and a beanie on really cold days. We have a heater on in her room all night through winter.
    Her school is really good. We went around and spoke to principals of a few schools and picked the school we wanted her to go to. When she started I bought a couple of children's books on allergies and every teacher in the infants section read them to their class, DD1 was sent around to see all the teachers so they knew who she was her photo with her allergies listed is everywhere...her classroom, office, staffroom, and canteen. They have ventolin, a spacer and her asthma action plan as well. Everyone is really helpful and thoughtful, even to the point of getting kids to go and wash their hands and faces after eating cake for a birthday (we have cup cakes in the freezer for DD1), or baking her sausages in the oven on sausage sizzle days. Even the parents have been considerate. I've had parents I barely know come and tell me that they're kid is bringing a cake to school so what can they do for DD1 (when they're unaware that she has cakes in the freezer), I had one mum who I didn't even know go and buy DD1 a dairy and egg free cupcake from a local cafe when we got caught out and I was in a hurry (the teacher knew her so it was okay). She even insisted on paying for it herself. DD1 is going to a school friends party tomorrow and the mum is catering the WHOLE party around DD1's allergies. There won't be a single thing there that she won't be able to eat.

    I was really stressed about school but it's been a really positive experience to date. Go and talk to the principal of the school you want to send your DS to and make you and your DS known.

  6. #6
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    Quote Originally Posted by TripleTime View Post
    A has extremely bad asthma & food allergies.

    She was dx at 10 months after a hospital admission with RSV & countless other hospital trips. The last month has been our biggest battle, she's been in & out of the GP's office & hospital. Last trip was Tuesday night & Wednesday afternoon.

    She's attacking multiple times a day & very tired from coughing so much.

    We've all had enough.
    That sounds dreadful, specially as you have 2 other young ones that need their mumma. Is she on permanant medication like a preventer and still getting attacks?

    Quote Originally Posted by Areca View Post
    DD1 is anaphylactic to dairy, eggs and tree nuts...they're not her triggers though. I was just saying she's also a kid with food allergies and asthma. Sorry if it that was confusing.

    Oh i see, sorry just assumed that the allergies were a trigger as they are wtih DS2, it's so hard having to be so careful, we haven't had any anaphylactic episodes lately, but the asthma is scary enough.

    DD1 started year one this year and I was so worried about her being on a carpeted floor every day at school. She was also in an unflued gas heater room last year which is terrible for kids with asthma. She got a cold at the end of May that bought on her cough and we couldn't get on top of it without her preventer but once we got it to settle we took her off her preventer so since Oct 2010 she's only had one month worth of her preventer.

    Wow that's great news that you were able to get her off the preventer and it is a worry with them going to be at school and in someone else's care. I don't think he's allergic to dustmites but i'm hoping there aren't any triggers at school.


    Her triggers are dustmites, cat fur and cold air + being sick makes her more susceptible. I rug her up to insane amounts for school...we used to just hibernate through winter but that's not an option. So singlet, spencer, skivvy, then her school shirt and then a jacket and a beanie on really cold days. We have a heater on in her room all night through winter.
    Her school is really good. We went around and spoke to principals of a few schools and picked the school we wanted her to go to. When she started I bought a couple of children's books on allergies and every teacher in the infants section read them to their class, DD1 was sent around to see all the teachers so they knew who she was her photo with her allergies listed is everywhere...her classroom, office, staffroom, and canteen. They have ventolin, a spacer and her asthma action plan as well. Everyone is really helpful and thoughtful, even to the point of getting kids to go and wash their hands and faces after eating cake for a birthday (we have cup cakes in the freezer for DD1), or baking her sausages in the oven on sausage sizzle days. Even the parents have been considerate. I've had parents I barely know come and tell me that they're kid is bringing a cake to school so what can they do for DD1 (when they're unaware that she has cakes in the freezer), I had one mum who I didn't even know go and buy DD1 a dairy and egg free cupcake from a local cafe when we got caught out and I was in a hurry (the teacher knew her so it was okay). She even insisted on paying for it herself. DD1 is going to a school friends party tomorrow and the mum is catering the WHOLE party around DD1's allergies. There won't be a single thing there that she won't be able to eat.

    That's brilliant that the school were really onto the allergies i'm hoping the school has a good plan in place, i've already chatted to the admin staff when i handed in his enrolment and it shouldn't be an issue, just have to really make sure they know how serious it is. The parents sound really lovely too, to include your DD knowing she has allergies etc. I really hope it all goes well next year, i'm really concerned.

    I was really stressed about school but it's been a really positive experience to date. Go and talk to the principal of the school you want to send your DS to and make you and your DS known.
    Thanks again, for your messages, they have been really super helpful and put my worries to ease, i just hope we have as positive experience as you.

  7. #7
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    Quote Originally Posted by V8 View Post
    That sounds dreadful, specially as you have 2 other young ones that need their mumma. Is she on permanant medication like a preventer and still getting attacks?
    Been on 2 preventers for 2 weeks & still attacking daily.

    Filling her with ventolin hypes her up, she runs around like a mad man making things worse when she really needs to sit & chill.

  8. #8
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    Quote Originally Posted by missie_mack View Post

    How come you need to wake them up to administer the ventolin/preventer? Ive often administered both of my childrens meds whilst they are sleeping. I find it often much easier, particularly when it is being administered 1 or 2 hourly which can often be the case with my elder one. They don't always wake him when he has been admitted to the childrens hospital either
    I don't wake them of a night either. Leave them asleep, doesn't matter if we're at home on in the hospital.

  9. #9
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    You can contact Asthma Australia for information and advice on 1800ASTHMA (1800278462) you can also register online to have a free Control pack sent to you that has heaps of information to help you better manage asthma symptoms and includes an emergency fridge magnet.
    http://asthmaaustralia.org.au/assist/


 

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