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  1. #11
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    Thanks for sharing your story!!

    3 months ago i offered to donate part of my liver to a woman whose husband read an article about me in which i statedthat i was interested in live organ donation, and asked would i test for his wife. I instantly said yes and went to see thier specialist, who was sooooo rude to me and kept asking me why on earth would i do this for someone who i barely knew as if i was getting paid to do it or something!! Then went on to critisise my weight which was 10kg more than my recipient. So i then had to find my own specialist who also brought up my weight ( which is 89kgs) saying i should be the same weight as my recipient - so i asked him if he knew what weight she was and he said he had no idea!!!! Then asked me if i wasnt a match would i agree to test for someone else - and then said that they would not do the second lot of testing for my recipient ( we passed the first lot of tests) - SO SO ANGRY and made me question the whole "donation" topic itself. So i did not get to see if i was indeed a match at all for my recipient and they kept her on 3 days a week dialysis instead.

  2. #12
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    I'm coming to get you Linda... ribbbit
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    Thanks for sharing piscies! I can appreciate your frustration! We also discussed live donation when my husband was in hospital. We were told that they did not really favour live donation, as it means taking a healthy person and putTing them at risk of complications of surgery. The professor told us that ethically they wernt too comfortable at doing this as their job is to take an I'll person and make them healthy, not vice versa. Having said that he explained that they were taking on a new initiative to perform more live donations because our donor rates are very low. That is strange about the weight issue as we were told the donor needs to be a bigger than the recipient. Whilst DH was recovering in hospital we discovered they had performed a live donor transplant, the second in Australia, being a husband donating to his wife. It all went well and my husband in fact met the couple when he gave a speech about his story at the RPA's thanksgiving service last week!

  3. #13
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    Quote Originally Posted by misskittyfantastico View Post
    This is why speaking to your family is so important - especially with regard to minors.

    Also a family member can override the wishes of the deceased person even if they're on the register.
    How unfair and ridiculas is it that your written clear wishes can be over ridden by family. Isn't that the purpose of registering with the organ donation register. But never the less dh and i have also made it clear to our families of our wishes not to be organ donators but for them to decide otherwise would be very wrong. Noone but yourself should have control of what happens to your body when you pass!

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    I agree with Princess C that is should be opt out rather than opt in as I'm sure millions of organs go undonated and those individuals wouldn't have actually minded!

    Those that do not want it should obviously have the choice to opt out and I don't think it's fair for family to be able to override that, in any direction.

  5. #15
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    I'm coming to get you Linda... ribbbit
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    Triple J were discussing family overriding donation wishes today. Most people they spoke to agreed that if you have registered as an organ donor then your wishes should be final and family should not be able to override them. Theoretically speaking, If you are a registered donor, legally, Drs can take your organs without acquiring your families consent. Obviously they don't do this as it's a distressing time for a family who has just discovered their loved one has no chance of survival. There is a bill currently being drafted which aims to make the organ donor's registered wishes final and remove the need to obtain family consent. I'm all for this, I'm a registered donor and if my family did not respect my wishes upon my death, my desire to save up to 10 lives as my last good deed on earth, I would be extremely displeased, so much so, I'd be back to haunt them! I would carry out their wishes and expect the same in return!

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    Bump!


 

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