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  1. #11
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    Thanks for all the responses. I have just given DS2 his first bottle of Neocate, although he would only drink 110ml (he probably is adjusting to the taste and still feels crap). He was on Alfare for about 6 weeks and did wonderfully on it and then...BAM...out of nowhere he started getting diarrhoea again with horrible, sour smelling mucusy poos which he currently does pretty much every 2 hours. It's heartbreaking. He is such a trooper though and has the sweetest, most tranquil nature. His little bottom is red raw and even now has a blister on it despite me lathering him in Sudocream. The Children's Hospital here in Melbourne is testing a sample of his poo as well.

    I think what I'm most frightened of now is...what happens if Neocate doesn't fix the problem? Is there a next step?

  2. The Following User Says Thank You to Witchypoo For This Useful Post:

    Gothel  (08-02-2012)

  3. #12
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    Witchypoo- get some Desitin for his bottom. It has 40% zinc so creates a much better barrier. Great stuff.
    Hopefully he'll get used to the neocate. I'm pretty sure it's the most hydralised as far as proteins go, but there is also Elecare which is similar. Fingers crossed for you.

  4. #13
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    third time i've tried to reply

    the stomach dumping is not compleatly unusual

  5. #14
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    it takes about two weeks for their little guts to start to heal

  6. #15
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    my kids both had CMPI, they are now 10 and 8

  7. #16
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    my kids can now (only in last one/two years) tolerate some milk products

  8. #17
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    pls pm me and i'll reply in email

  9. #18
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    First bottle of Neocate and DS2 has now been asleep for 2.5 hours. This is his longest day sleep in ages. He has been sleeping only around 45 minutes to 1 hour tops due to pooing waking him up constantly. Good sign!

  10. #19
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    Savingfishfromdrowning is offline If you can't change your fate, change your attitude
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    DD had CMPI quite severly, causing bloody stools as a NB. I had to cut every sceric of dairy out of my diet to BF her, and when she needed top-up feeds she had to have neocate. I was very fortunate that she outgrew her intolerance by 6 months! I had been taking a medication which I think was contributing to the problem, once I cut it out I think her body was able to balance everything.

  11. #20
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    I am so hoping that my DD will outgrow her CMPI but at almost 2 years she is still unable to tolerate any dairy products. DH has to limit his intake so we do have a family background. Hopefully the Neocate agrees with your little one.


 

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