+ Reply to Thread
Results 1 to 5 of 5
  1. #1
    Join Date
    Mar 2010
    Posts
    919
    Thanks
    387
    Thanked
    279
    Reviews
    0
    Achievements:Topaz Star - 500 posts

    Default Seeking new friendships to support our journey ( son just diagnosed ASD)

    Hi there, , I am a mum to an awesome 3 year old boy just diagnosed a month ago with ASD. It was not a shock as i always knew. I had one night of crying and then i pulled myself together. I love my son, he is so special. Has an angelic quality about him (except for tantrums!). I don't want to fix him but I do want the best life for him as we mums all do for our kids.

    He was Diagnosed mild/ moderate. Im hoping to get some new friends for support on here or even to start a little playgroup for him. Im in sydney north west.

    Im at the moment doing all the forms... wondering where the money for therapy is going to come from !! The pediatrician said he needs minimum 12 hrs a week therapy ....... Im also trying to get him into pre school but toilet training him is going to be hard....


    Anyhow, would love to know how you other mums feel , your positive stories and your fustrations... boy do i get fustrated some days!!!! My boy is physically so strong and 18 kilos... if he is having a bad day and im out with the baby and him it can be hell but most days i look at his handsome little face and smile. He sure is a one off!!!

    looking forward to chatting and going through this together and maybe meeting up for coffee in a playground somewhere with some of you.

  2. #2
    Join Date
    Jun 2006
    Posts
    2,567
    Thanks
    0
    Thanked
    19
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    Hey I'm Bel I have a 3.5 & 4.5 year old with Autism..

    There is funding you can access to help choose wisely how you use it and look into the places you use it at..

    Are you on FB as I have lots of links etc for funding you can have access too, I also work in the disability field too.

  3. #3
    Join Date
    Mar 2010
    Posts
    919
    Thanks
    387
    Thanked
    279
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Hi Bel! thanks for replying! my computer went crazy after doing that post and only just got it fixed. I have sent off for the aspect funding of $6000 which of course im grateful for , I was just looking into the cost of therapy . In sydney it seems the norm for treatments to be $150 an hour upwards, my son needs a minimum of 12 hrs a week I was told. Thats kind of impossible for us , even two hrs a week is going to put us in a bit of a mess.

    How do you find it with therapy? I guess im just at the start of looking, most things are closed or not taking on more till the end of jan so i have a bit of time. Im also having trouble finding a pre school that will take him as he is in Nappies. I dont suppose you have any tips on potty training do you ? ha ha ha

    Anyhow , ill PM you my details for facebook.


    Thanks Bel and I hope your having a nice start to the year. xxx

  4. #4
    Join Date
    Jan 2012
    Posts
    1
    Thanks
    0
    Thanked
    0
    Reviews
    0
    Hi Babynomad,

    I have a 5 year old son with mild-moderate autism diagnosis. Like you, we read that autistic children needed between 20-30 hrs of therapy a week. When the formal diagnosis came in, our son was receiving 2 hours of therapy a week plus 30 mins of speech. The 2 hrs was a government program and there was no way we could increase this time even if we wanted to pay. We looked at some ABA programs but they were going to cost in excess of $60k per year. My husband contemplated selling our house and boat to fund the therapy, but I wanted a stable roof over his head more than his therapy.

    I had him added to every waiting list known to man (this was for private speech, OT, psychologists, behaviour therapy, paeds who specialized in ASD and developmental delay). I also put his name down at a specialised autistic school, in their early learning program which he was extremely lucky to get into. He attended school 3 days a week for the 2 years prior to starting prep. As this was a government school the cost was minimal. His school was in Melbourne, but have a look and see what schools are in Sydney - we had over an hour each way drive to school as there is only 2 autistic schools in Melbourne but it was well and truly worth it.

    My son starts main****** prep this year - something which wouldn't have been possible if it wasn't for the early learning program he did. The $6k per year for 2 years has been used fortnightly speech, OT and behaviour therapy. I am so proud of all my sons achievements - he has been worked extremely hard as a 3 and 4 year old but the results are outstanding. Most people can't even pick he has autism.

    Good luck - it's a long journey but we celebrate every small milestone.

  5. #5
    Join Date
    Mar 2010
    Posts
    919
    Thanks
    387
    Thanked
    279
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Thank you so much for your reply, so great to know that your son has done so well, im not suprised how proud of him you are, its a massive achievement!!! I am going to try and get my son into a school which is fee free but private, its actually only a couple of kms from us . Im sure the wait list is huge though. Thanks again , will write a better reply later , my son is being buzz light yeare and im his trampoline !!!!


 

Similar Threads

  1. Midwife Student as Support for Childbearing Journey
    By midwmum12 in forum Research Help
    Replies: 8
    Last Post: 11-03-2012, 21:21
  2. My Journey with PCOS and my facebook support page.
    By CLK266 in forum Conception issues & ttc
    Replies: 0
    Last Post: 03-03-2012, 23:50
  3. Replies: 0
    Last Post: 11-01-2012, 13:22

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
free weekly newsletters | sign up now!
who are these people who write great posts? meet our hubbub authors!
Learn how you can contribute to the hubbub!

reviews
learn how you can become a reviewer!

competitions

forum - chatting now
christmas gift guidesee all Red Stocking
Softmats
With so many amazing reversible designs, the soft and cushioned Premium Bubba Mats are the perfect space for all the family. Not only do they look fantastic; you can also enjoy the quality and comfort for years to come.
sales & new stuffsee all
Pea Pods
Buy 2 Award Winning Pea Pods Reusable One Size Nappies for only $38 (in your choice of colours) and receive a FREE roll of Bamboo Liners. Don't miss out, we don't usually have discounts on the nappies, so grab this special offer!
Special Offer! Save $12
featured supporter
TPS Health Physiotherapy and Pilates
TPS Health Physiotherapy and Pilates has three clinics located at Morningside, Redlands and Lutwyche. We offer pre and post natal services as well as physiotherapy and Pilates. All clinics offer child minding services so bubs are always welcome!
gotcha
X

Pregnant for the first-time?

Not sure where to start? We can help!

Our Insider Programs for pregnancy first-timers will lead you step-by-step through the 14 Pregnancy Must Dos!