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  1. #1
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    Default Fibromyalgia and chronic pain support thread

    Just seeing if there's anyone else with fibro or pain conditions and how you manage them. I was diagnosed this year with fibro but have been in chronic pain since i was 12 (chronic lower back pain). Since having my first son 6 years ago ive been in constant pain and his traumatic delivery seemed to have triggered fibromyalgia.

    Being in chronic pain sucks, not being able to do simple tasks really bothers me. Not being able to take anything, or fix it or make it go away, really sucks. This year i'm making concious decisions to better my health and wanted to share with others and see what others do to help manage their pain and just vent when we've had enough.

    Hope others join me, be nice to not feel so alone.

    Vee

    For those that don't know what fibromyalgia is, here is a good link for it.

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    Hi,

    I don't suffer from fibromyalgia but my mum does, since 2009.

    It is really heartbreaking to see my mum in constant pain.

    The biggest thing for my mum is trying to find a doc who actually believes fibro exists.

    Good luck with your pain management

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    Hi I have fibromyalgia, I also have Sarcoidosis, early onset graves disease, osteopenia and they just found a 2cm complex cyst in my right ovary.

    I am in constant pain somewhere in my body or just always that dull ache. I often can't tell what is causing the pain so don't end up taking anything more than panadeine.

    Life is tough with chronic pain, it's like it eats away at your insides because you're never pain free.

    BBL kids bickering!

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    Hi Everyone,

    I was diagnosed (FINALLY) 6 months ago with Fibro and only now have I really come to terms with it I have had it since DS2 was born, my GP thinks my has stemed from my health issues which resulted in a hystectomy in 2009, my body just simply did not recover like it should have

    My pain is my joints, legs and ankles the worst with the most horrible restless legs of a night I also have Irritatble Bowel Syndrome which just completely house bounds me at times! Head is probably 70% cloudy these days, improved from all the time. My Dr has me on Lovan, we tried the Cymbalta, OMG I couldnt eat without throwing up! Lovan seems to be helping massively!

    It's becoming a real trial and error with some remedies isnt it? I have found one thing for me, stay away from crap food laden with salt and fats, I find if I eat junk food, I could sleep for a week, eat right and I can function better. Over Xmas, that was kinda hard and spent most of the the day in bed yesterday from exhaustion
    Housework can be a massive challange, when I have my "good" days, I just go go go until Im done and then collapse and sleep. My down days, well, the house is a bomb site! Just recently Ive started making double batches of dinners and freezing half, such a godsend on my down days, avoiding take away temptations too!

    Beth x
    Last edited by Mahjong; 28-12-2011 at 11:47.

  6. #5
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    Quote Originally Posted by mummytogirls View Post
    Hi,

    I don't suffer from fibromyalgia but my mum does, since 2009.

    It is really heartbreaking to see my mum in constant pain.

    The biggest thing for my mum is trying to find a doc who actually believes fibro exists.

    Good luck with your pain management
    Thanks mummytogirls i feel for your mum, it really is a struggle. I'm not surprised she hasn't found anyone that believes in it or knows much about it, there's very limited information about it and GP's aren't the most helpful. She'd be better going the alternate medicine route with supplements, changing dietary habits etc. I am hoping to overhaul my whole diet and make small changes at a time so that i can just do it gradually, but hopefully it will make a difference.

  7. #6
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    Quote Originally Posted by ICanDream View Post
    Hi I have fibromyalgia, I also have Sarcoidosis, early onset graves disease, osteopenia and they just found a 2cm complex cyst in my right ovary.

    I am in constant pain somewhere in my body or just always that dull ache. I often can't tell what is causing the pain so don't end up taking anything more than panadeine.

    Life is tough with chronic pain, it's like it eats away at your insides because you're never pain free.

    BBL kids bickering!
    Yep it definately gets to you hey, it's really debilitating, i get envious of the old people in their little mobility scooters and think how nice it would be to not have to walk and be in so much pain, just from walking, standing up and doing daily activities, i don't wanna go down that road though, i'm wanting to rid my body of this and be pain free, what a dream that would be!

    Quote Originally Posted by Mahjong View Post
    Hi Everyone,

    I was diagnosed (FINALLY) 6 months ago with Fibro and only now have I really come to terms with it I have had it since DS2 was born, my GP thinks my has stemed from my health issues which resulted in a hystectomy in 2009, my body just simply did not recover like it should have

    My pain is my joints, legs and ankles the worst with the most horrible restless legs of a night I also have Irritatble Bowel Syndrome which just completely house bounds me at times! Head is probably 70% cloudy these days, improved from all the time. My Dr has me on Lovan, we tried the Cymbalta, OMG I couldnt eat without throwing up! Lovan seems to be helping massively!

    It's becoming a real trial and error with some remedies isnt it? I have found one thing for me, stay away from crap food laden with salt and fats, I find if I eat junk food, I could sleep for a week, eat right and I can function better. Over Xmas, that was kinda hard and spent most of the the day in bed yesterday from exhaustion
    Housework can be a massive challange, when I have my "good" days, I just go go go until Im done and then collapse and sleep. My down days, well, the house is a bomb site! Just recently Ive started making double batches of dinners and freezing half, such a godsend on my down days, avoiding take away temptations too!

    Beth x
    Oh Beth, i had no idea you had Fibro either, (your hubby also had some health issues didn't he?) Mine was also triggered by childbirth and i can relate to so much of what you said. I ate a few no no's at christmas time too and i'm feeling it today i am in so much pain, i just wanna do nothing at all. So i'm busy researching different things on the internet to try and get my health back on track this year, i'll start slowly but these are the decisions i'm going to make so far:

    *Stick to my dairy free diet more religiously
    *Convert my eating to predominately gluten free eating
    *Eat more fruit and veges
    *Try and start drinking juices added with chia seeds (good for imflammation apparantly)
    *Take more supplements including spirulina
    *Exercise more (never do because it hurts just standing up!)
    ***The biggest one i definatley need to do is NO MORE soft drink! I usually drink coke zero cause i don't do tea or coffee and i know the apspartane is bad for you, but i just read a great link while researching stuff and it says foods to avoid and included diet soft drinks as being one of the worst and it can cause fibromyalgia symptoms.

    Here is a bit of info on foods to avoid: http://www.flannerys.com.au/blog/pos...tives-to-avoid

    So hoping to make changes gradually and get into a good habit of eating healthier and exercising more. I join the gym on the 9th of Jan too, so shall see how that goes too I am also going to try a new treatment called Scenar, it uses light waves or frequencies to make your body naturally heal itself. That's on the 10th of Jan my appt, so i'll report back how it was. I usually see a chiro pretty regularly but it never fully gets rid of the pain, just helps somewhat, so i really am going to focus my energy on getting well!

  8. #7
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    Sounds so much like me Vee! I try and watch the caffine and soda drinks as much as I can, maybe one or two drinks a week max from now on if I can get away with it. Just takes my body back too far with the energy!

    Im starting to get back into the exercise again too, I just cant be stuffed half the time so Im into the Yoga on the Wii Fit and Golf as well which gives me exercise and stretches my muscles out hugely.

    DH hasnt had any massive health issues, just nursing me for the last 3.5 years lol! Since DS2 was born Ive had a D&C, Hysterectomy, endoscopy and my gall bladder removed, not much left to take in my body lol!!!

  9. #8
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    I was diagnosed with fibro in August of 2008, and I've been on disability since October 2009. I'm going back to uni next year, as I'm doing much better now.
    I pretty much tried every medication on the market, did pain management twice, and nothing worked until I started taking Norspan.
    I'd be great to chat to some other painies on here

  10. #9
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    Me ...kinda obvious given I'm the BH ambassador for Chronic Illness .

    Diagnosed with Fibromyalgia 1 week before my 27th birthday last year (late May 2010). My son was almost 3 months old at the time. The pain is only really bad during flares, it's the fatigue that is the main problem.

    I was on a cocktail of medication at first but these days I only take the "hard stuff" during flares. I take Panadol Osteo every day as well as Magnesium and other vitamins frequently.

    Lupus and MS are huuuuuuuuuuuge in my family so I'm tested for Lupus (doctors orders) every year without fail. I've been putting the MRI off for 18 months now (I don't believe I have MS and am claustrophobic so there's no point).

    Glad to see there are other Fibromites here on the hub
    Last edited by Pinkzy; 28-12-2011 at 16:34.

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  12. #10
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    Thank you for starting this thread
    I was diagnosed with fibromyalgia in June this year after 10 years of constant pain from 'RSI'. Most of the pain is in my wrist and forearm but I only get it in my neck and back. Another thing is almost constant sciatica

    I had a really good chat with my doctor recently, his wife has chronic fatigue and many aspects are similar. He said it's a lot to do with how the brain suppresses pain messages. I am going to go have a big talk with him in Jan (had kids with me last time).
    I take Endep 10 at night so I don't get woken or struggle to fall asleep from the pain. I don't like taking painkillers so only do so when it's really bad. It kinda sucks that I am just used to it now...


 

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