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  1. #1
    Join Date
    Jan 2011
    Broadford Victoria

    Default 2nd Baby is Premmie with Pulmonary Valve Stenosis.

    I'm trying to find mum's who have bubs with Pulmonary Valve Stenosis who have required Vavuloplasty or other surgeries.

    My son is 4 months old but was born 2 months early and has this congenital heart defect and we are being seen by the Royal Chlildrens Hospital and currently trying work out the best options for my little man. Would love to hear from mum's with bubs who have had same issues as it is very scary and would desperatly like to talk to someone who has been there.


  2. #2
    Join Date
    Jul 2011
    just wanted to pop in and give a huge hug I hope everything works out for your little man.

  3. #3
    Join Date
    Dec 2011
    Hi Leonie,

    My premmie wasn't born with Pulmonary Valve Stenosis, but I was! I had open heart surgery to perform a valvotomy at 4 months. This wasn't with the balloon like they do now, but rather the surgeon just stuck his little finger through the valve to open it up.
    Because of the way my valve was opened it has a moderate regurgitation (backflow), and my right ventricle is dilated from all the extra work. However, even with that I don't have any real complications. I tend to get tired a lot quicker than other people, but then that could just be me! I still see my cardiologist regularly, and he just makes sure that the heart is still coping with the amount of stress on it. He has told me that I will eventually need to get the valve replaced, but it's been 27 years now and it's still going strong!!
    Let me know if you want any more information. I'm sure your little boy will be fine, the procedure they use now is so much better than when I had mine done.
    Big hugs.

  4. The Following User Says Thank You to MillsosMum For This Useful Post:

    LeonieJane  (15-12-2011)


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