Well we couldn't get in to see her paed (despite my begging and insistence it was urgent) so I went to the GP on Friday instead. She sent us to the children's hospital - she could see how worried I was and thought dd's symptoms warranted it.
Luckily the hospital was able to pull her results and she's not lactose intolerant. They do think her reflux medicine isn't working anymore and have put her on Losec instead. They also gave us a script for a prescription formula (neocate) because the paed at the hospital thinks she has an intolerance to dairy protein which apparently appears in 30% of reflux babies.
We're on day 3 of the Losec, it's supposed to take about 5 days to kick in. We're also using the new formula for her top ups and bottle feeds. Her poos are settling down and she's been a bit calmer so hopefully it has helped her pain & discomfort. I've also cut out all dairy (it's amazing how much stuff has milk protein in it!) as I'm still BF.
This feels like such a convoluted journey but we are getting there slowly. I feel much better about the formula feeds now that we have the prescription formula, but just trying to overcome the guilt of all this - not only have I struggled with BF, but the formula was making her sick! The feeding gods are not on my side, clearly!
On the positive side, she had a good gain of 130g this week - yay! - and this has helped me to know we're doing the right thing.
It's taken a while but I feel pretty good about this path. I'm so glad I persisted and got the new meds & formula. Another step closer to a happy & healthy bub.