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  1. #31
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    Hi kdmeddie, i was going to PM you but i dont know how to, i think i have to add you as a friend? sorry im a newbie here.

    and sorry for hijacking this thread.

    i was wanting to know whether you wrote that letter to dr lok explaining the nk cells and matthias? and also you switched from dex to pred aferwards? i saw dr lok yesterday and he just doesnt believe that i will benefit doing an 'immune protocol' HOWEVER he did mention that Genea do intralipids and only do it for high risk cases, so go figure!

  2. #32
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    anyone else had success with IVIG or INTRALIPIDS with Matthias. I would love to hear some success stories. I need some hope right now

  3. #33
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    Hi Zoe,

    Welcome to our thread !

    I had intralipids with Dr M on january but haven't fall pregnant after that to tell you succesful story yet. But from what I read or researched, if you have elevated NK cells or CD56 / CD57, you can really benefit from IVIG or intralipids. Since I am not sure what is your issue, I can;t tell much but you can discuss that with Dr Matthias too. Are you having IVF soon ? Hope that helps !



    Quote Originally Posted by zoe1974 View Post
    anyone else had success with IVIG or INTRALIPIDS with Matthias. I would love to hear some success stories. I need some hope right now

  4. #34
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    Subscribing.
    Good luck everyone.

  5. #35
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    Hi ladies, hope some of you are still here on bub hub. Did a search last night and found this thread and would like your opinion.

    My DH and I have unexplained infertility. DH sperm is fine and we produce a couple of good blasts each time. We had 3 failed stim cycles and one failed FET. Two of the stim cycles we transferred 2 embs each. This current cycle transferred 2 blasts and I know it's also a negative. Unfortunately embryo's just don't stick and I've been saying this for a while to DH that my body is fighting them off.

    I brought up NK cells with my FS (currently with Genea at Kent St) he didn't seem too keen and said it's another one of those theories that come and go. After calling him to ask a few more questions I brought it up again and he said he wouldn't rule anything out.

    I am nearing the 2nd half of my 2ww and feel nothing and know it's a BFN so would like to prepare myself with next steps.

    1) In my situation do you think it's worth getting these tests done? Hate to waste money on another cycle without knowing for sure everything is ok.

    2) Do you think I should go through Dr Matthias as he is an immune specialist (not my FS even though Genea could perform the test).

    3) When would I go in for the test during the cycle? My AF arrives on the 15th July so I will start my next IVF cycle on the 15th August. Will the biopsy interfere with my upcoming cycle chances?

    Hope you can help with these questions and we find some answers to our battle.
    Last edited by Rachael3; 06-07-2012 at 08:27.

  6. #36
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    Hi Rachael,

    Sorry to hear about all the trouble you are having to fall pregnant. Let me tell you shouldn't loose hope for this cycle yet... Not necessarily you would feel something that would indicate a BFP, so you really never know...

    In case you have a BFN, I would recommend you to do the immune testing. NK cells and uterine biopsy. Dr M would be a great option for that.

    Yes, if you do a uterine biopsy you wouldn't be able to conceive that month. The biopsy is usually done between days 21 and 26 of cycle, if I remember it correctly. So it is kind of a "waisted cycle" when you do the biopsy ( in case you are also ttc naturally ).

    I had several miscarriages, and found out that drs doesn't take immune issues seriously in this country, so you have to go to a RI and someone specialized, and I think here in Sydney the best option is Dr Matthias.

    Good luck and keep us posted !

  7. #37
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    Thanks so much for your advice (and your optimism) mayaus would love to get it done between the next cycle (not worried about missing a month of trying naturally) but the earliest appoint is in 4 weeks, I will probably miss those cycle days. Maybe I can beg the receptionist!

    We plan to do a freeze-all next cycle so will do the EPU and the next month do the tests before transfer the following month after that.

    I will advise my FS that I will be seeing Dr M, it's my body. Between the three of us we'll work out the best time for the biopsy. Can't believe how difficult this road is, feels like it never ends.
    Last edited by Rachael3; 08-07-2012 at 20:40.

  8. #38
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    Default RI in Adelaide?

    Quote Originally Posted by mayaus View Post
    Hi Rachael,

    Sorry to hear about all the trouble you are having to fall pregnant. Let me tell you shouldn't loose hope for this cycle yet... Not necessarily you would feel something that would indicate a BFP, so you really never know...

    In case you have a BFN, I would recommend you to do the immune testing. NK cells and uterine biopsy. Dr M would be a great option for that.

    Yes, if you do a uterine biopsy you wouldn't be able to conceive that month. The biopsy is usually done between days 21 and 26 of cycle, if I remember it correctly. So it is kind of a "waisted cycle" when you do the biopsy ( in case you are also ttc naturally ).

    I had several miscarriages, and found out that drs doesn't take immune issues seriously in this country, so you have to go to a RI and someone specialized, and I think here in Sydney the best option is Dr Matthias.

    Good luck and keep us posted !


    Hi Mayaus

    I've just been reading your post about your RI, Dr Matthias, and I wondered if I could please ask you a question. I'm brand new on this forum and I have to say I am encouraged by some of the information I am learning - thanks to all of the lovely ladies on here! I can't tell you how glad I am to find other people who are experiencing similar things to us.

    I posted on another thread last night but I'm not sure how this all works yet so I apologise in advance if you already read that post and I'm repeating some of the information from that post now...

    I am 31 and my hubby is 35 - we're from Adelaide. We've been TTC for 2.5 years and so far I've had 4 miscarriages (all early) - 2 from natural and 2 from fresh IVF cycles. I find it all pretty tough going and I think we've now had something like 8 or 9 transfers. I tend to get one or two frozens (although last time I got 5 which was very unusual) but unfort I've never ever had a frozen work so I am rapidly losing faith in frozens... We have had every test under the sun. Initially we thought there might have been an issue with my hubby's swimmers but it turns out that it's not really a problem. I have had 3 D&Cs but only two of the losses were tested - one had Trisomy 7 (extra chromosome but still got to heartbeat...) and the other was unexplained. I've been diagnosed with Anti-phospholipid Syndrome (sticky blood - all very strange considering I'e never had anything like that or related to that in my whole life) but the experts don't really agree on the impact it has OR how/when to treat it. The other thing in the mix is high NK cells (number 57 I think?) so we're currently doing another frozen cycle with prednisolone, aspirin and anti-biotics and then we'll add in the blood thinner injections around the time of ovulation/transfer (depending on which expert we listen to!!!!). Fun fun fun. I get cracking huge purple and black bruises from the thinners, as well as hematomas (spelling?) - blood getting stuck in lumps under the skin, so I'm not looking forward to going through all that again.


    Anyway, back to my question! I noticed that you recommended Dr Matthias as an RI in Sydney - just wondered whether you know of any in Adelaide? We're not all that thrilled with our Endocrinologist in Adelaide - he just says "come back and see me when you're pregnant" and doesn't explain anything very well. I'm even considering coming over to Syd for the day to see Dr Matthias after reading about his treatment with IVIG and the infusions he prescribes, but I'm not sure whether that would help my particular circumstances. Don't suppose it can hurt to just get an appointment with him....


    Mayaus, how are you going on your journey? I hope you have been having some success.


    Thanks so much in advance for your response...


    KatieJJ

  9. #39
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    Hi Katie JJ

    (Apologies for crashing the thread but I cannot PM as you are a new member)

    I recently made an appointment with Dr M (3 week wait) and will be seeing him early Aug. I know that he also does phone appointments/consults, so that might be helpful for you being in Adelaide. (The cost is $250 but no M'care rebate for a phone appt). If you phone his receptionist then she will send you forms and when you have all your test results (from your FS) you send them back. From my research there are only really 2 Drs in Aus worth seeing for immune issues - Dr Matthias and Dr Sacks, both in NSW.

    I wish you all the best. Feel free to PM me if you need any more info

  10. #40
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    Hi Bella978

    Thanks so much for the info. That's a great option about the phone consult. $250 is much better than paying for flights to Sydney anyway. I will get onto that on Monday - it's got to be worth a try.

    Good luck with your appointment too - hope to hear how you go.

    Thanks again.

    KatieJJ


 

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