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  1. #11
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    Hi Nat,
    I hope it's not too late to join. I just wanted to say that we are with Derek Lok at SIVF & we have been very pleased with him. We chose Derek because one of his specialities is MF, but we have found him to be a great 'all-rounder'. He has a very calm & caring approach which put us at ease & helped us to have confidence in him & the whole process of IVF. Basically, he is a very sweet man; great bedside manner.

    The whole process of miscarriage can be so devistating, especially such hard won pregnancies through IF treatment. Look after yourself & be your own best advocate in this process. If you feel like you're not 'being heard' by your FS, then you are more than within your rights to look elsewhere (I think).

    Our experience with Derek is that he is very approachable, uses humour to put at us ease & was very proactive in regards to miscarriage. We achieved a BFP after our 1st ICSI, using testicular sperm, however miscarried at 6 weeks. After my BHCGs had gone down & we visited him he instantly ordered the entire barage of tests as he didn't want us to 'endure an unnecessary miscarriage. As you can probably tell, DH & I feel quite passionate about Derek: we refer to him as "The Indiana Jones of Sperm" If anyone can find testicular sperm he will

    We will be doing another full stim cycle in November . Wishing everyone THE best of luck in achieving their BFP.

    Mel

  2. #12
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    Hello girls !

    I also hope it's not too late to join. I just found your information so useful for what I am going through. I have had 6 miscarrigaes in the past 15 months, and found positive also for MTHFR and NK cells. The thing is that I have already tried clexane, aspirin, progesterone and even steroids ( prednisone prescribed by Dr Sacks ) and kept miscarrying anyway. But since I am trying to fall pregnant naturally, maybe I just started the steroids too late, since I need to have a positive result in order to start the steroids, and by than it is too late since the problem with implantation have already ocurred.

    i am also planning an appointment with Dr Matthias and got curious to ask Kdmeddie what his protocol is for nk cells treatment. Because I have a friend in Brazil that after 10 miscarriages only carried to term with ivig treatment, and I am hoping Dr Matthias can do that if that is my case. Have you done ivig treatment with him ? How about the vaccines from your husband's blood ? I had those in Brazil, but kept miscarrying as well, but after the vaccines the pregnancy went a bit further than before the vaccines, so maybe the dose was just too low ? I would be happy to hear more information about Dr Matthias treatment for NK cells and MTHFR. I also heart is very expensive, so it would be great if you could give me an idea of prices as well. Thanks so much for your help !!!

  3. #13
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    Hi Mayaus,
    Dr M protocol for me during IVF was as follows:
    • Started steroids 3 x 0.5mg Dex day 2 of IVF Cycle, increased to 4 x 0.5mg on egg transfer (I agree sounds like you are starting the steroids too late). Switched to prednisone at 11 weeks pregnant
    • Start Clexane 40mg day 2 of IVF Cycle - stopped 2 days before egg retrieval and restarted three days after.
    • started 800mg progesterone two days after egg retrieval then increased to 1200mg upon positive pregnancy test
    • Course of antibiotics started 2 days before egg retrieval - taken for 10 days
    • Intralipid Infusion 2 days before egg retrieval, another at 7.5 weeks pregnant (should have been earlier but had bleeding and thought I was miscarrying so waited for heartbeat on ultrasound), and another infusion at 14 weeks.
    • Metformin until 14 weeks (was on this prior to IVF for PCOS)
    Yes Dr M does do IVIG treatment, we discussed this at our appointment but I was very keen to try Intralipids first because of the massive cost difference - Intralipid was $650 per treatment and IVIG was $2,000+ per treatment (nothing back from Medicare or private health funds on these ones).
    Dr M pretty much follows the Dr Beers protocol in the USA - not sure about husbands blood vaccine (is this LIT??), we never discussed this.
    The main cost for us with Dr M was pretty much the Intralipid infusions, his consultation fees are reasonable and because we had reached the Medicare threshold we got back 80% anyhow. The intralipids and IVIG are done at Hurstville Private Hospital so if you don’t have private health cover you would need to also factor in the cost of this as well to your treatment.
    The other costs to consider is just medication, clexane and steroids are ok but the progesterone is expensive - we spent over $900 on progesterone because of the high dose.
    But in relation to Dr M and costs for us it was definitely all worth it in the end as I am now 20 weeks pregnant and this was our first treatment with him.

  4. #14
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    Thank you so much Kdmeddie, for explaining everything in such a clear way ! I am trying to make an appointment with Dr M and just recieved the papers to fill in today in the mail, so hopefully the appointment wont be too long from now...

    What steroid were you using before the prednisone ?

    Yes, the husband's vaccine I took in Brasil and that I mentioned is LIT. Have you done this one as well or not ?

    I understand all the protocol, since I have been reading so much about it lately. My issue is how to do it when trying naturally. I have concieved many times in the past year, so I would like to avoid IVF because we can fall pregnant naturally. The problem is having to take all these medication and even the intralipid infusions before we try naturally, and have a negative result for pregnancy by the end of the cycle. I am not sure how harmul can that be, I mean, be on and on every month on this treatment in case it takes me a while to fall pregnant. Do you know someone that used his protocol by trying pregnancy without IVF ?

    The costs seem high for IVIG and intralipid infusion, but they are really not in comparisson to Brasil, where the cost is 5x from what it is here ( ridiculous, isn't it ? ).

    Congratulations on your pregnancy ! It';s really good to hear about a positive result after that protocol, and hopefully it will work for me somehow, since I can't keep going on with these miscarriages ( 6 in 15 months was really traumatic !!! ).

  5. #15
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    Hi Kdmeddie,

    Sorry to bother you again. Just one quick question. Did you have a hard time making your first appointment with Dr Matthias ? it's been a week since I called to make the appointment, but couldn't make it so far. The secretary said she would have to mail me some papers to fill in, I got the papers, filled in, faxed it back to the secretary, called to confirm that she got the fax and she said she needs to call me back with an appointment time. Was it also like that for you ? I am just so anxious to get that appointment with Dr M, so that's why it's been hard to wait for a week so far to hear when the appointment will be...

    Thanks a lot for your help !

  6. #16
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    Mayaus - When I called the secretary she booked me in straight away. Then sent the papers and stuff out. And I returned them

  7. #17
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    Hi Mayaus,

    No I didn't have any troubles booking an appointment - mine was the same as nat84u. I would call his secretary (Gwyneth) back and just ask her to book a time for you, I wouldn't wait for them to get back to you.

    The first steriod I was on before Prednisone was Dexamethasone. Apparently better for supressing NK cells but more of this drug crosses over the placenta to the baby - that is why you swap to prednisone.

    No I have not done LIT as apart of my treatment, not sure if Dr M does this or not, he did not mention this in my appointments.

    Not sure how Dr M's treatment works outside of IVF, my experience has only been with IVF - I cant imagine it would be very different though. I know if my cycle did not work, I would have weaned off the steriods unless I was going to go straight onto another cycle in which I would have stayed on it.

    Keep in touch and let us know how you go with Dr M

  8. #18
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    Dear EtenalOptimist,
    I am very new to this Website. I was looking on the internet for forums/reviews for Dr Devora Lieberman and yours came out. I'm doing my fresh 2nd IVF/ICSI cycle and I'm contemplating the idea of changing Fertility Specialist. I'm doing my IVF Treatments with Genea Clinic (Former Sydney IVF). I after a 2nd opinion but also I want a Doctor that specialises in miscarriages. I was lucky enough to get pregnant on my 1st cycle but miscarried at 7.5 wks due to Trisomy 15. My FS says that it could be due to poor quality egg which I don't totally agree to. I'm 35y.o. but have low ovarian reserve and 6.8 AMH but I don't think I'm bound to produce bad eggs every cycle. I'm thinking to see Dr Devora Lieberman for a 2nd opinion just to get her thoughts on the stimulation protocol I've been on this cycle. I'm hoping she can help me to produce better quality eggs and hopefully I will not experience another miscarriage. But before making an appt with her, I'd like to hear feedback from people who are currently using her. sorry I'm not providing enough info about my situation but I would appreciate if you can let me know how your experience with Dr Lieberman has been so far. Please let me know if you require more info and I will be happy to reply.
    Thanks.

  9. #19
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    Hi Beancito,

    I have been to Dr Devora Lieberman and personally didn't like her AT ALL !!! When I saw her I have been through 3 miscarriages, and she wasn't helpfull or even nice ! After I saw her, I had 3 more miscarriages ( totalizing 6... ) and she didn't give any advice that was useful. On the appointment, she just came up with statistics, showing me how common miscarriages are, instead of looking at me like an individual person with specific points to my case. She also said a couple of things opposite to all doctors I have been through ( for instance, not to take aspirin ). Plus, three weeks after I have seen her and paid $ 400,00 for the appointment, I was overseas and had to make her a question, and the secretary wouldn't pass on to her, saying I would have to make a new appointment if I wanted to get an answer from Dr Devora. Plus, both my husband and I found her a really cold person, not being simpathetic at all with the hard time we are going through with all the miscarriages. On the other hand, I haven't tried IVF with her, so can't say much in that sense. But she is the kind of doctor I would never like to go back to.

  10. #20
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    Hi mayaus ,

    Firstly, I'm very sorry to hear about your losses. I can imagine how difficult this must be for you. I sometimes complaint about my miscarriage and I don't even think about those who has gone through more, I shouldn't be complaining at all!! You are very brave person and I wish you all the best. I am sure you will soon find a solution and will have a safe and healthy pregnancy to full term.

    Many thanks for your reply. It sounds that you haven't had a good experience with Dr Lieberman. I'll take your comment on board because I'm after somebody who will understand my needs and will have the patience I need right now. Therefore, I think I will stay with my current FS (Dr Lok). He is good though, I think I just need to be more open with him so hopefully he'll come up with a different option and help us to achieve the pregnancy the we want so much.

    Good luck with your treatment and keep us posted on the progress.
    Best wishes

    Beancito


 

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