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  1. #31
    Witwicky's Avatar
    Witwicky is offline A closed mouth gathers no foot.
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    Quote Originally Posted by Nowhere View Post
    When you go onto the infusion pump actually before so you have it ready look up on faceboo Belly buttons she makes belts for kids with feeding tubes and as the insulin pumps are often on the belly they would work great for that its like a belt to protect it and it would protect the site and also you could clip the pump on it as well, so it would be all secure nice for him they do them in fun fabric to kenz loves her

    The jury is out here on if buzy works he does if she is asleep i can put buzzy on and she wont feel the needle at all but if she is awake and sees it she goes mad lol
    Ohh thanks, I will look that up Sounds great!

    Quote Originally Posted by Nowhere View Post
    Oh and the canula for the pumps isnt bad at all, as its just an intramuscular one kenz had the sensor in for a week and putting it in was fine, we used to put a insuflont in her every few days as well to access for her needles they are fine, Infection risk yes but no where near as high as with an IV port or line as long as you ue good hand hygine all is fine
    Ok that makes me feel a bit better We always use good hygiene of course but a few friends have had infection problems and it freaks me out slightly.

    Quote Originally Posted by jagamoe View Post
    Type 1 diabetes is now a recognised disability for children aged 10–16 years.

    That's what I found off the website and I hope you guys are gettingor will push to get full entitlements cause by the sounds of it my situation is nothing compared to yours
    just reading your posts made me want to cry at the extent of what your babies go through with medical condition and feel so ungrateful
    Yeah the social worker told us that as well. Type 1 diabetes have actually struggled with getting the Carer's Allowance until recently. They used to cut it off when the child reached aged 10 (even though the costs of having diabetes don't ever end). Last year they approved the Carer's Allowance for children until they are 16 years and it was a big breakthrough for Type 1 diabetics in Aus.

    Quote Originally Posted by MissPoss View Post
    Witwicky, I'm really shocked they've knocked you back. I definitely think you should persist.

    I get both carer allowance and payment for my dd with Aspergers. It does involve a lot of extra involvement in the way of dealing with meltdowns, appointments and meetings with the school, but it sounds like less than what you have to do for your son. It makes me angry that you've been denied. I hope there's something you can do to get them to reassess you.
    Thanks Miss Poss, I will ask to speak to another social worker next week.

  2. #32
    Witwicky's Avatar
    Witwicky is offline A closed mouth gathers no foot.
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    I'm really sorry for derailing your thread OP! Wasn't my intention

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    jagamoe  (06-08-2012)

  4. #33
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    I receive the carers allowance x2 and carers payment for my two kids. Both have a severe hearing impairment and speech delay, my son has a heat condition and allergies and my daughter is going through lots of developmental testing at the moment.

    We got knocked back a few times for the payment but we just kept applying and finally got a fantastic social worker who really helped me answer all the questions. Like a previous poster said I was down playing a lot. You really need to put your carers hat on and take your mum hat off.

    Good luck to everyone applying!

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    jagamoe  (06-08-2012)


 

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