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  1. #661
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    Hi ladies,

    Well I'm going for my 4th beta HCG test on Wed and so worried whether it will all be ok. So far so good! Still got the cramping and bloating, some mild nausea, currently 6wk 3 days. Then our first scan is next Mon. But freaking out about Wed's HCG level at the moment.

    Mary

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    Jamison---Thanks for asking. I'm 35 weeks now, elective CS scheduled in 3 weeks! Just the normal late pregnancy discomforts, can't wait to finally meet bub, we're all set ready to go.

    Haydos---Sorry about Blackie , I think for a lot of us the furbabies have kept us company during all these years of TCC, I'm famous for "spoiling" my animals, my colleagues used to say if my Puss dies, there will be a state funeral.

    Summer---Goodluck!

    Rice---Come over to the pregnancy thread when you're ready.

    Star and green mum I'm still stalking you.

  3. #663
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    Woww my HCG level is 14,240 at 6 wks 4 days. All perfect! I am so happy and relieved! Now for the first scan next Monday!

    Mary

  4. #664
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    LTIVFWW,
    Apologies I have been AWOL for quite a while as I have needed to have a break to regroup and seek expert advice and treatment for my situation. My main reasons for posting were firstly to thank everyone who has asked after me in my absence but also to raise awareness of Asherman's syndrome (AS).

    One of my key objectives in starting this thread was not only to have a place for support when your journey is a long and challenging one but also as a place to share quality information and research which is why I am sharing my story now.

    As some of you will know I was finally officially diagnosed with AS after consulting an expert in this area after I had very little support or interest from my FS or clinic in investigating my chronically thin lining issues over the last 12 months and my AF eventually ceased altogether a couple of months ago.

    Asherman's Syndrome is an acquired uterine condition, characterised by the formation of adhesions (scar tissue) inside the uterus following gynaecologic surgery (generally D&C's for mc, retained products of conception, placenta etc which are performed 'blindly' without guidance). It can make you infertile and it can cause repeated mc.

    I have had numerous miscarriages (both IVF and natural) resulting in 2 D&C's which are the cause of me acquiring Asherman's. I was never offered any other intervention other than waiting naturally (which I did both times for an excruciating week) or a D&C. However, there are alternative non surgical treatments for miscarriage management including medication options such as misoprostol (generally up until 9 wks gestation). Or D&C under hysteroscope if the pg is more advanced which will minimise the risk of the surgeon injuring the uterus and scraping away the lining of the endometrium which is what has happened to me.

    I had a diagnostic hysteroscopy with a Asherman's specialist last week which unfortunately showed I have grade 4 AS (severe) with extensive scarring covering most of my uterus, adhering the walls together and my cervix was completely closed, therefore allowing nothing in (sperm or an embryo) or out (AF). My specialist was able to open my uterine cavity 95%. An MRI showed some vascular issues and there has been some damage done to my endometrium which is now patchy in appearance and may or may not regenerate.

    According to my specialist and from my own research AS is very poorly understood by most FS and as a result under diagnosed. I was the 2nd IVF patient to present to my specialist that week who had been having ongoing embryo transfers into an environment that was not suitable to sustain a pregnancy and the warning signs for AS (eg. scanty or absent period) had been mismanaged.

    While my chances of carrying a baby to term are now significantly diminished (around 30% chance of success and any pregnancy is now considered high risk) there is help and treatment available by consulting an expert gynaecologist in this area. If you are interested in more information about what kinds of questions to ask your doctor if they suggest a D&C or who to see if you suspect you have AS please see: http://www.ashermans.org/ I am also happy to provide more extensive info about my experience by PM.

    I will be having a 2nd hysteroscopy in mid May with the hope of making my uterus scar free and a further MRI some time after that to see if the removal of scar tissue will allow the damaged endo to regenerate. If this occurs then we may be able to attempt another transfer. If not then we may have to consider surrogacy or ending our quest for a baby.

    So it looks like we have a long road ahead of us still. I won't be posting here frequently as I will need all my energy to fight AS but I just wanted to say I am delighting in the run of that have continued here and I will be following many of your journeys and you all on!
    Last edited by Starf1sh; 11-04-2012 at 17:54.

  5. The Following 2 Users Say Thank You to Starf1sh For This Useful Post:

    felicita  (11-04-2012),Frostysmum  (12-04-2012)

  6. #665
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    Starfish, I wish you all the very best. Take care and fingers crossed that you too will be blessed with a super sticky BFP soon xxx

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    Starf1sh  (12-04-2012)

  8. #666
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    Starf1sh - I'm so sorry you still have a long and difficult road ahead. I hope your endometrium will be able to recover enough after your surgeries for a successful pregnancy.

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    Starf1sh  (12-04-2012)

  10. #667
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    Hi ladies,

    I just want to say you are all truly inspirational.
    I'm not quite sure if I qualify for this group but I will share my story :
    I am 31 and have 2 beautiful children DS 10 DD 9 both we conceived naturally and with ease but DH and I have been trying for bub number 3 for nearly 7 years now. DH had a vasectomy after DD was born but I wanted more kids so we went thru IVF with icsi and got a BFP first go however found out at 8 week scan it was a blighted ovum we then had a FET with our last embie which was a BFN we then did another stim cycle but another BFN and no frosties. DH then had a vas reversal which was successful so we got to trying naturally but after about 13 mnths of BFN I went back to FS who put me on clomid to increase my chances each mnth we did 5 months all BFN last month we did our first iui dh sperm count is on the low side but still good enough for iui I thought it had worked as AF never showed up but BT showed neg I've now been informed that 1 of my eggs never release and is stopping AF from coming will hopefully get an appointment next week with FS to have a scan to see what's going on as its coming up to 2nd month of no AF and I want to just move on to my next iui cycle!!! We will try another 2 iui if unsuccessful we will b back on the ivf rollercoaster.
    I am truly blessed to have my 2 children but I'm not ready to be finished and my heart aches every month when it's another BFN and I hope I can join you all to offer support and gain strength from you all to keep going

    All the best
    Mel

  11. #668
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    Intruder Alert!!!!

    Starf1sh, I am so very sorry you had to go through so many losses to finally receive expert advice about why you lost so many of your babies. I hope that after your second op that you are able to fulfil your dream.

    I only heard of Asherman's recently as it was briefly mentioned in a conversation by my FS. Although losing my little girl at 15 weeks pregnant was traumatic and painful, I was fortunate that King Edward Memorial Hospital in Perth where I went to deliver my little girl, as a matter of routine now, try and talk all ladies in my position (between 14-20 weeks) to consider medical termination (misopristol) rather than surgical (D&C). Unfortunately for me, I developed an infection about 9 days after the birth and ended up having a D&C for retained product as it was still tethered and getting a blood supply. Incredibly, 2 weeks after that at a follow-up scan my FS found more retained product and I required a second D&C. Although she consulted numerous specialists, the consensus was that it may take up to 9 months to clear on its own, if at all, because they think I had placenta accreta. How I got that I don't know, as prior to this pregnancy, I hadn't had any D&Cs or other pregnancies. I'm now terrified of what scarring has been done, and in addition, wondering about how to cope with the anxiety around birth consequences of the accreta.

    Anyway, sorry to ramble, just wanted to say that I think it is so important you get your message out there as D&Cs are becoming more and more routine. Perhaps start a thread "What you need to know before you have a D&C" and ask the moderators to make it a sticky?

    Once again, so sorry for your losses. All the very best of luck to you.

    Wish

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    Starf1sh  (12-04-2012)

  13. #669
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    Hi Star---Just want to drop in to give you some , I truly wish the AS specialist can help you recover the endometrium to sustain a sticky pregnancy. You've gone through so much. Thank you for sharing the info on Asherman Syndrome as it's not widely known, a lot of women just think D+C is a routine procedure and complication free, and are not aware of the alternatives available to them.

  14. The Following User Says Thank You to Frostysmum For This Useful Post:

    Starf1sh  (12-04-2012)

  15. #670
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    Starf1sh - Thank you for the information on AS I had not heard of it before. It's really good to make all this stuff public, I have learned so much through this journey. I am glad you are finally getting expert attention for this and I really really hope that they can improve things so that you can go full term with a pregnancy. It sounds like you have thought of other options too which is really important for the psyche. I too am on Plan B now. This journey is long and hard and so unfair but maybe it's making us stronger and more insightful. I just wanted to send my well wishes.

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    Starf1sh  (12-04-2012)


 

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