Thanks so much for sharing your stories ladies I really do appreciate it and it makes me feel like i'm not alone We should definitely keep each other updates on our progress !!
Newbie you sound as though you are in a very similar position to me my levels were extremely low also but our scan was fine - although the genetic counsellor stressed that sometimes defects are not visible at the 12 week scan.
Just an update I called the genetic counsellor back yesterday to have a more calm and rational talk with her minus me being a blubbering mess because a few things that she had mentioned didn't sit right with me. She confirmed that her concern for our baby based on our blood results was more for a chromosomal abnormality called 'triploidy' which is a condition that is 'incompatible with life' because babies have 3 sets of every chromosome. She stressed that IF the baby had any problem she thought it would be that however that is still a big IF. Like you newbie she also mentiond that if it wasn't a chromosomal abnormality my blood levels suggested that my placenta wasn't functioning normally and I would be monitored closely for the rest of my pregnancy as this is associated with IUGR and pre-term delivery / still birth.
As heavy as all that information sounds I am feelin better about it all because I have clear and realistic expectations of what is coming next, I am still holding out hope that the amnio will show no problem and that by some miracle my baby will be unaffected or at least will grow well enough in utero to a point where it is safe for he/she to exist in the 'outside world' however am prepared also for the possibility of bad news.
We have decided to go ahead with the amnio because the syndromes that they are suggesting we have are considered to be fatal whereas many downs babies are able to live happy and fullfilling lives (though I might still have opted for it with a high downs risk in order to prepare myself better). And I will definitely be asking for the FISH testing which comes back in 48 hours as both Triploidy and Edwards will show up in these results.
Like I said I totally appreciate you all sharing your stories and will def update you on our progress in the coming weeks. Fingers crossed for all of us !! xx