I know this is an older thread but so need to vent. My son has hypotonia and attends physio fortnightly which will need to continue indefinitely if he's to meet his milestones. He's scheduled for an MRI and EEG (he's been having episodes of shaking) and we are waiting on some blood results that we are told have some abnormalities and needed to be sent for further testing.
but because he looks no different to any other baby my husband and I always get dismissed like "oh every baby develops at different rates" "but he's so attractive how can there be anything wrong"?! It makes me want to SCREAM