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  1. #51
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    Oh shauna You've already been through so much with scar!!
    Congrats on bubba 3. xoxoxoxox

  2. #52
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    thanks Peta, Niamh has the same kidney issue as Scarlett and a growth issue she just wanted to one up on her sister LOL !

    At a family get together today

    Them : oh my how old is she
    Me: 6mths
    them: she's so little
    ME : yes she is, no she wasn't prem rememeber you came to visit me when she was born!!!!! and yes I do feed her !!!!! and here watch while she eats her lunch
    them: wow she can really pack it away can't she ! why is she so little????
    Me: ( slams head into wall repeatedly) I don't know grrrrrr!!! with a smile on my face LOL

  3. #53
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    Quote Originally Posted by srguitargirl View Post
    yahhh I need this tonight after food shopping with my youngest I am sick of this conversation

    them: awe cute baby how old is she
    Me: 6mths
    Them: she's so little
    Me: yes she is
    them : was she prem ?
    Me: no
    Them: well whats wrong with her then ?
    Me : nothing ! and I storm off

    Yes she is little and doesn't grow all that well, yes she doesn't move very much ! no I don't know what is wrong with her or anything as we are waiting till she is 9mths to start testing I want to give her some time to catch up although she is already classed as a floppy baby with hypotonia but that gives them no right to look at her with that horrified look ! they think she is cute when they think she is only 2 mths old or less !

    Oh wow I have this convo a million times, it grinds me so much! People stop in the supermarkert and smile and wave at DS (who always smiles back he's sooo social) and they go awww how old? and I say (smiling at this point) "16 months" and they go "wow he's TINY!" and I go "yep" and walk off in a huff. Stuff you! I'm not going to stand here and tell you he has a chromosomal abnormality that means he will always be small for his age (even though his dad is 6ft3), will be behind in his development, may never speak or will at least have speech difficulties and will likely always be dependent on us. That is none of your business. Whats wrong with just saying "oh he's so cute!" ****es me off no end.

    The thing that gets me is I've even had mums in my EI playgroup make the same comments, or go "wow he's the same size as my {non-SN} 8 mth old!" Meanwhile, I can see that your daughter has downs syndrome, but do I make stupid and thoughtless comments to you?! No I do not. You would think you could at least get some understanding in that sort of environment!???!!

    Ah ok vent over

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    srguitargirl  (04-07-2011)

  5. #54
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    Quote Originally Posted by alpacamum View Post
    Oh wow I have this convo a million times, it grinds me so much! People stop in the supermarkert and smile and wave at DS (who always smiles back he's sooo social) and they go awww how old? and I say (smiling at this point) "16 months" and they go "wow he's TINY!" and I go "yep" and walk off in a huff. Stuff you! I'm not going to stand here and tell you he has a chromosomal abnormality that means he will always be small for his age (even though his dad is 6ft3), will be behind in his development, may never speak or will at least have speech difficulties and will likely always be dependent on us. That is none of your business. Whats wrong with just saying "oh he's so cute!" ****es me off no end.

    The thing that gets me is I've even had mums in my EI playgroup make the same comments, or go "wow he's the same size as my {non-SN} 8 mth old!" Meanwhile, I can see that your daughter has downs syndrome, but do I make stupid and thoughtless comments to you?! No I do not. You would think you could at least get some understanding in that sort of environment!???!!

    Ah ok vent over
    I get this too, and even at EI aswell!! Yeah she's small hahaha. **** happens. Move on.

  6. #55
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    As much as I get a lot from this site I find it sooooo annoying when (on the general pregnancy tab) people are awaiting news on a diagnosis for some potential abnormality (or whatever you choose to call it). And then every man and his dog, (probably meaning well) get on there and say good luck, I hope you get good news, everything will be alright..... like a positive diagnosis of something is the end of the world. It really really really annoys me!!! Like a baby with a diagnosis is something to be feared or is a bad thing. No wonder its so hard to break the stereotypes.
    I just find it really annoying that a "perfect catalogue" baby is the only goal. And it has the potential to make the mother feel even more alienated if they do receive a diagnosis.
    Anyway, thats all....

  7. #56
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    Just feeling a bit down today. Met up with my friend for coffee who has two kids one is 9 months and the other 2. Ds is two in 2 weeks and the delays he has are becoming so much more obvious as he gets older. Just finding it really hard to take at the moment, especially when my friends 9 month old is able to do more than DS. I don't know how you come to terms with the fact that your child is disabled To make matters worse my older brother has two kids and him and his grilfriend spend all day smoking bongs and neglecting them makes me angry and sad at the same time
    I suppose life just isn't fair is it?

  8. #57
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    Where to start??

    1. Bree has Cerebral Palsy. It's a lifelong condition. She won't magically "get better". I know you know a child with CP and she can walk and talk and dance a bloody jig, but that doesn't mean Bree will. Just because you know one kid with CP doesn't mean you know them all. I know you think you're being accepting and supportive, but saying that as long as I work hard with her like so and so's mum did she'll be fine makes me feel like it's my fault she's not developing.

    2. No, my daughter isn't 6 months old, she's 1. No she's not sleepy, she can't hold her head up or focus on you properly. Yes, I know she's too long for the baby's seat in the trolley, but she can't sit in the normal one. Honestly I've never met you before in my life, did you come here to shop or just to make me feel like crap?

    3. I don't care if cream, chocolate, honey or anything else sweet and tasty is "bad" for my daughter. If I want to encourage her to feed by letting her suck sweet things off my finger that's my right. You sit there and judge, not knowing the restrictions in this little girl's life. Trust me there's a lot worse things then chocolate.

    4. We DO NOT get everything because we "claim" our child is "disabled". Firstly we don't "claim", secondly I hate that word "disabled" and lastly what the hell is your definition of everything? EVERYTHING we need or want for Bree has to be assessed. We have to apply for funding, we have to prove she meets the requirements, we have to fill out mountains of paperwork. We jump through hoops to get equipment that we wouldn't need if she wasn't "disabled". So what are you going on about? Do YOU want funding to buy a wheelchair? It's not like we get money to throw around. With all the hospital trips, allied health appointments, feeding supplies and formula, specialised equipment and toys, private consultations and unexpected issues that crop up we are barely making ends meet so DON'T TELL ME WE GET EVERYTHING

  9. The Following User Says Thank You to kiz For This Useful Post:

    Smudgey  (19-04-2012)

  10. #58
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    Just wanted to give you some Kiz!!! it sucks that we have to deal with people like this and I know Brees issues are different to Ashs as each kid with any disability is different but I know how you feel. Also I wish there was less paperwork and red tape that we had to go through to get funding for equipment- its so damn frustrating we are waiting on AFO's for Ash and have been waiting 6 months already. The system for getting euipment that is needed for our kids is so slow and difficult to navigate. I mean why would we apply for something if we didn't need too- argh

  11. #59
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    hi all,

    Just wanted to say to all the friggin people who look at me like im a s**t mum when dd is throwing her massive tantrum whilst in the playground get ****** , I know she looks fine but she has aspergers and she reacts badly to very loud noises.

    To the mum who said to teach my dd manners just cause she would not look you in the eyes when you were handing over the cupcake that we just bought. she does not make eye contact EVER not even with me you insensitive cow.

    thanks i needed to vent

  12. #60
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    To all the people who try to get my DS to talk to you and then tell me he is being shy or just plain rude. HE DOES NOT TALK. He can sign, but he doesn't communicate with people he has known for years let alone strangers.


 
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