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  1. #1
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    Default My son has bilateral hydronephrosis, anybody else have a child with this condition??

    Hi, Im a mother of a 5 week old baby boy who has been diagnosed with bilateral hydronephrosis.. His right kidney is non functiong and will have to be removed in about 6 months time. His left is functioning roughly 80 percent. At 2 weeks old the docs did a ureterostomy/pyelostomy so now my little man wees from a stoma o...n his left side. Last week he was hospitalised for a pseudomas infection in his bladder. The docs said this happened because there is still a little urine passing through into his bladder and out the normal way, and bcoz it stores 4 a bit b4 being passed as normal it caused an infection.. Has anybody experienced a similar situation with their child? This is all new to me and its not all that clear to me what to expect in the near and distant future

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    hi, unfortunately i cant offer you any advice or much info, but i just wanted to subscribe to send hugs and support your way. Im 30 weeks pregnant and my son was diagnosed with hydronephrosis at my 18 week scan. From what i can gather, there are varying degrees of severity and different ways of it resolving - sometimes they can grow out of it, others they can need operations. Id suggest googling it. Other than that, try to stick with breast feeding as long as possible - bm has been proven to ward off UTIs. Hope your little boy gets better soon xo

  3. #3
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    HUGs, Sorry to here of your lil mans struggles, I dont know anything about your sons particular condition but am no stranger to stomas, My DD has couple of bowel tubes in a bowel stoma and a belly stoma.

    I hope things get easier for your lil one

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    Thank you both for replying.. Parrmum, do you know how severe you sons hydronephrosis is yet? My sons is pretty bad but is improving due to the ureterostomy.. He has had so many different scans and tests done.. Im not much help on the info side of things atm but if u need someone to talk to who is going through the same/similar situation dont be afraid to let me know. Big Hugs!! and fingers crossed for ur little man

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    Hi, my now 4yo DS was diagnoised with unilateral hydronephrosis during a scan I had at 42 weeks. We spent a lot of time St the royal childrens in Melbourne doing various tests. My heart goes out to you as I cringe to remember how horrible I felt watching my tiny little man be pulled and prodded every which way. They eventually told us they don't know what caused it, it just is.
    We have ultrasounds every 6 months to keep an eye on it. I'm really careful regarding UTI's. We also watch his diet very closely. Not too much protein and low salt. Last scan the damage hadn't gotten any worse but it wasn't getting better either, but we take that as a win.
    I'll be thinking of you and your LO

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    hi TAD, no we dont know how severe our boys condition is, he is booked to have an ultrasound a week after birth to find out. Until we know, we're hoping for the best...ive read that sometimes hydronephrosis diagnosed in utero can right itself by birth, so finger crossed my bub is one of those...if i didnt have that hope id probably be going crazy right now. How was your boy diagnosed? What were the signs?

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    Hi Parrmum Drake was diagnosed when i was 35 weeks preg but his renal pelvis were dilated when i had an ultrasound at 18weeks also.. Th measurments of my belly at 35 weeks was 40cm so they sent me for an ultrasound. That is when they realised how damaged his ureters were. I had way too much fluid so if it wasnt for that ultrasound who knows when they would have picked up his hydronephrosis.. Most cases i have heard of arent as bad as my little Drakes, and yes it can right itself at or before birth so i guess he is just one of the unlucky ones. Are u having anymore scans before ur baby is born? Just a curious question... So they actually diagnosed him with hydronephrosis at 18 weeks?? Or were his renal pelvis just dilared?

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    They saw on the ultrasound that his renal pelvic ridges (?) were dilated, and that meant hydronephrosis. I suppose there's no other reason why they'd be dilated? Its scary hearing you say that you were measuring bigger, i was measured last at 23 weeks and was measuring 27cm...the midwives said it was odd but that was it. Seeing an obstetrician today who will measure me again, so we'll see how that goes...

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    Hope everything went well today hun, im off to sydney tonight for a specialist appoitnment in the morning with Drake's urologist.. Hopefully we will know more about what to expect and where we go from here next time im on here..

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    Hope the urologist gives you some good news darl. I'm measuring 30cm, so back to normal again, which is a great relief . Let me know how it goes with your little one.


 

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