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  1. #741
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    Quote Originally Posted by Charlie74 View Post
    If you are a health professional I would've hoped you'd have a better 'bedside manner' than to make a statement like the above. How incredibly patronising and condescending of you to make a comment like that. I'm also a health professional, and I would never in my wildest dreams want to speak to other women in this forum in this way.

    Perhaps if more health professionals offered more insightful and wholistic care to the women needing IVF then we wouldn't need to be trying to have babies well into our 40's.

    The women who come to this forum often learn more about what they can/should be doing to advocate for themselves than they will EVER learn from their fertility specialists (The doctor mentioned in this forum is definitely an exception to the rule, he goes above and beyond. But most don't.) Regardless of your thoughts on it, this forum is actually filled with women who are intelligent, switched on & sensible enough to make choices about what they do or don't want to try, or even experiment with. Doctors thank god are not the be all and end all. If a mature, thinking woman wants to take advice from other women who have knowledge and experience to share, then that's the individuals choice. I really doubt any of us need to hear that we should only take directions from doctors.

    .

    You're right - there is a lot to be learned here.

    But who do think advocated for the massive breast cancer research movement? Doctors? Or was it highly motivated patients? Pretty sure Glen McGrath isn't a doctor - and look at the amazing work that foundation has done. All motivated by patients.

    Or brain cancer and Carrie Bickmore wearing a beanie at the Logies?

    I'm simply telling it like it is - until patients agitate for it, the volume of research won't occur. It's not meant to be offensive, it's how research is often funded and motivated. I think there's a bunch of intelligent women on here who if they all got together could really make a huge difference to IVF for future women.

    No, I'm not going to do it - my research work is cancer. And besides - you've all made it perfectly clear that you don't like my opinions when they differ to yours.

    And it's actually about expanding what's biologically possible. Saying that the dream to be would be to offer women the opportunity to have their own genetic child in their late 40s is not offensive, it's an exciting future opportunity and one that many on here would love to have had offered to them! Don't you guys want that for future generations?

    That's all I want - I think there's a tremendous amount of energy here on these fora, and it would be great to channel it into getting the huge money-making machines that are Genea and IVF into funding meaningful, world class research, so that future generations of women don't have such a difficult journey ahead of them.
    Last edited by princessrory; 24-12-2015 at 09:42.

  2. #742
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    Quote Originally Posted by Charlie74 View Post
    Fair enough. I don't think you'll get any arguments about how great it would be to have more money and energy invested into all of this. But I think in a forum like this it's just a bit full on and sounded a little judgemental (granted, maybe not intentional) to make the comments you made.

    As the saying goes 'the journey of a thousand miles begins with a single step', if you are truly passionate about this, (and it sounds like you are), why don't you be the start of a movement to make those things happen? You obviously have a lot of knowledge and passion in this area, you could be the 'Carrie Bickmore' gets the ball rolling?? And FYI, I'm not being sarcastic, it's a genuine sentiment.
    You don't think I have?

  3. #743
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    Update from me...unfortunately it was a negative for us this cycle I was prepared for the worst but my DP was still pretty positive so he has (as always) taken it a little harder. We were hoping for a Christmas miracle...now just back to the drawing board and we'll give the DE some thought as to whether to go O/S or use the traveling donor.

    Thanks for your thoughts, and your support...have a great Christmas.

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  5. #744
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    Sorry to hear that @Gen72 hugs... Be kind to yourselves xx

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  7. #745
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    Quote Originally Posted by Gen72 View Post
    Update from me...unfortunately it was a negative for us this cycle I was prepared for the worst but my DP was still pretty positive so he has (as always) taken it a little harder. We were hoping for a Christmas miracle...now just back to the drawing board and we'll give the DE some thought as to whether to go O/S or use the traveling donor.

    Thanks for your thoughts, and your support...have a great Christmas.
    Gen, so sorry luv that you didn't get your Christmas miracle. We were all fingers crossed for you. But remember you gave it your all and that's what you set out to do. So you should be proud.
    Hey - the upside is you've got 2 options plan a and b. In 2016 you and I are going to be lunching with babes in arms remember!

  8. #746
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    Oh Gen I was thinking of you today, I'm so sorry to hear your news xx

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    Gen72  (26-12-2015)

  10. #747
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    Gen- I'm so sorry you have had this disappointment. Christmas makes it 10 times worse of course I had 22 of my own 'great looking' embies transferred and now have 2 beautiful children thanks to donor eggs. It's so miraculous that there are such unselfish people willing to donate their eggs. It makes all the difference, and I love my son and daughter to bits.

    Wishing you a safe, loving Christmas day, and may 2016 be your best year ever.

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  12. #748
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    Gen I'm so sorry to hear. Big hugs honey xo

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    Gen72  (26-12-2015)

  14. #749
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    Thanks for your thoughts and kind words ladies... it does suck and timing isn't great, but I guess I'm a little too use to the negatives...DP not so much, he takes it pretty hard, but I had prepared him a little better this time. We're just now 'thinking' about our next move unfortunately he is back off to WA for work on Monday so not a lot of face to face discussion time.

    I am here to ask you ladies about weaning off prednisone... Warren's rooms were supposed to phone me back but must have gotten busy.

    I asked my pharmacist and he gave me what folks using it for 'other purposes' such as arthritis might start wean. Just wanted to see if this is what others have used.

    I've been on 25mg and he suggested I take 15mg for 3 days, 10mg 2 days & 5mg 2 days.... how does that sound? I was thinking that it needed to a bit longer.

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  16. #750
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    @Gen72 Apologies for the belated reply Luv.

    I'm just so sorry to hear of your BFN...so bloody unfair & heartbreaking!!!😦 ((((Hugs)))

    As for the Prednisone....I was on 25mg's too & my instructions from FN Kate were to reduce by 5mg's per week until down to 2.5mg's. Take that for 1 week then stop.

    I have heard of weaning being done the way the Pharmacist mentioned too.

    Hope this helpsxo
    Last edited by BlondeinBrisvegas; 26-12-2015 at 18:01.

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