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  1. #31
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    My sin went through a stage of biting at Childcare and we nailed it down to sheer dislike for the other child as he never did it at home. Kids with ASD and GDD are very intuitive and although they can't tell you why, but there is a very good reason usually as to why they dislike people, situations or things. Because they are non verbal they use sign language and body language to explain their frustration, happiness etc. So hitting (although most kids go through this stage) is normal. My son hits me alot as well. If for example he wants something and his auntie or grandma says no. He'll run over and smack me. This is as if to say " mum do something about it I want--- wstever it is he wants. We used time out and it worked a treat. He dosent understand naughty corners or star charts for behavior. So we punish naughty behavior such as violence with time out room which is our laundry. He stays in their 1 minute for every age. His 3.5 yrs old so he gets 3.5 mins time out and so on. Lights off doors locked. Sounds mean but It works. One day at a friends place my son went thru my mums bag and was playing with her wallet. I said no and put him in the spare room for time out. The friend was telling me that I shouldn't be locking him in a room, he can't talk so it's slack that I'm scaring him. My reply was- when he's 18 and has you at gunpoint trying to go thru your bag your gna wish you let me discipline my son. So as mean it sounds its worked for me. When he's very violent I bear hug him for 1 minute. Occupational therapy gave me that advice.

  2. #32
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    My son does the same thing, or if someone talks to him and he doesn't want to talk to them, he will hit me, or a wall etc.

    I have tried time-out but i could only put him into his room, he would go crazy and start smashing what ever he could get his hands on to hit the walls, and then trashes his room.

    I've also tried bear hugging him, he just throws his head back and becomes more violent and will remain violent until i let go and give him what he asks.

    Is there any other punishment you have used or heard of?

    Thank you

  3. #33
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    My 5 year old son Leon has global developmental delay and he was diagnosed charging Christmas 2009. He has problems with his speech, fine and gross motor skills and a few other things. He wasn't even showing an interest in going to the toilet until 3 months ago now he does 1's n is completely dry at night n has the odd accident with number 2's.

    I get help from disability SA, but I moved house 8 months ago so I changed offices from n I'm finding I'm not getting much support that I was with the old office. At the old office I would have both speech n occupational therapists come into my home regularly to do sessions. Where as here I haven't even seen a speech therapist only the occupational one n thats only been twice n it's very frustrating.

    My son attends an inclusive kindy program for special needs children 5 full days a fortnight with 3 other children and he will stay there till a place comes up at a special needs classroom at one of 2 main****** schools. He also gets a taxi up to the kindy as I live over 5kms away and I don't drive. The same thing will happen when he starts primary school in term 3 or 4 of this year.

  4. #34
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    Default Healing through Swimming for GDD

    Hi,

    I have talked with many parents of children with disabilities through running my business, All Kids Can Swim, and have come across one parent of a child with GDD. Her son was diagnosed with GDD and the doctor told her she shouldn't expect much from her boy - a very heartbreaking experience.

    She took her son to swimming lessons and since engaging in the lessons and learning to swim, he has been able to develop his motor skills and is a much happier child advancing well in meeting new milestones. That mother returned to the same doctor and the doctor couldn't believe the advancements her child made.

    I thought I would share this with you. I know there is never one easy solution and each child is different but you may find that swimming helps.

    Some researchers believe that the feeling of being incapsulated by water helps children with disabilities feel more calm and relaxed.

    I wish you all the best in your endeavours.

  5. #35
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    Hi There,

    I have two children who have Global Developmental Delay. My DD has a Mild Global Developmental Delay has Microcephaly, Sensory Processing Disorder (a large part of her problem), Hypotonia, Mild abnormality of the Aortic & Pulmonary valve had Chromosomal Testing came back all ok. Undiagnosed no aide etc struggles with writing, maths and has trouble paying attention at school. The school system will fail her I may look at going down the path of another pead someone that specialises in learning disabilities & developmental delays of an unknown cause. I took DD to a Psychologist and the psychologist thinks she could be on the spectrum but has get the approval of a Pead. I do not think the Pead will accept the diagnosis so we will be stuck in a rut.

    My DS has been tube fed, developmental delays, microcephaly, mildly delayed myelination did get a diagnosis of Noonan Syndrome but since then the Geneticist has retracted the diagnosis and thinks there is something Neurological going on. So far he has stumped the Geneticists, Neurologists (presenting DS's at a Neuro Genetic Radiology meeting) & the Endocrinologist. We are going back to see the original Geneticist that diagnosed DS at the end of August to see what is happening. I think I will be pressing to get gene testing done for Microcephaly as I have it and had feeding problems and learning difficulties as a child, my DD has it so for something positive. My DS cannot walk or talk and it is so frustrating not knowing. After DS recovers from the tonsils being taken out I will be going privately for 12 funded sessions for Physio, and going privately for OT and looking into an SOS approach to feeding DS has a lot of sensory issues as well he is a Sensory Seeker. I have had a lot of success with going privately for speech/feeding as DS is now eating orally.

    Kim

  6. #36
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    GDD & Axial and appendicular hypotonia diagnoses!

    Hi,

    I'm a mother of twin boys aged 23 months corrected (they were 4 weeks prem). I finally got a referral from our GP (for a neonatal specialist who looked after them in NICU), when they were 12 months of age, as they were not meeting their milestones and younger twin had only just started crawling.

    Twins, Boys, Prem - were the reasons for their maturational delay given to me up until this point.

    They are still not walking, and the older twin has about 10-15 words, whereas younger twin can only say "mama" - with grunts, or other "wawa" babble sounds.

    They're both lovely in nature, I would say older is more sociable - whereas the younger twin is more of a reluctant communicator.

    However both they understand a lot more, than they can express/verbalise.

    We have been seeing a PT since they were 14 months old, and have also started seeing a ST.

    They have had several blood tests and all have come back "normal". I understand that the tests performed were to rule out any metabolic, degenerative disorders or "any nasties" as our neurologist has referred to.

    Neurologist has given them the above diagnoses. They have not yet had an MRI scan, since this would require a general anaesthetic - and neurologist feels that a non invasive approach is better since they are not showing any signs of regression. However, if they are not walking by the end of the year, this will be highly likely to be performed early in the new year.

    Autism has been ruled out
    Muscular Dystrophy has been ruled out

    We have a referral for:
    a geneticist for further blood testing,
    a dermatologist as their hair is very fine and brittle, and
    a dentist as they only have their incisor teeth come through

    Am I missing anything?

    My family keeps telling me they will be "fine", however my partner and I don't know of anyone who is going through similar situation as us.

    Will they grow out of it?

    I mean, I know there is something there - and not knowing what it is... I can't explain it. I just want to help my kids.

    Has anyone been in a similar situation? Any advise would be helpful.

    Thank you

    h0sko

  7. #37
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    My 4yr old dd and 3yr old ds3 have global developmental delay they are both 18months/2yrs delayed and also have sanfilippo syndrome my dd only has about 9 words isn't toilets trained and ds3 has no words and it's toilet trained they aren't doing any therapy's ATM as we are trying to get funding but having troubles cause sanfilippo syndrome isn't recognized


 

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