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  1. #1
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    Default ivf specialist for endometriosis

    Hi ladies,

    DH & I are thinking of starting ivf but can't decide on ivf specialist. We're in Sydney and I have stage iv endo :-( Just had a lap which was a nasty surgery... they removed endo from everywhere, including bladder & bowels, and removed cysts from both sides of ovaries. Took weeks to recover!

    After ttc naturally post lap for a few months without success, ivf seems to be the next stage.

    I don't have any friends or family to get advice about trying ivf or endo so I'm so glad to have found this forum!

    I'd love to hear from women who have endo & tried ivf. In particular, I'd love to know which ivf doctors you tried (especially if you've been successful with them). We did some research and thought Assoc Prof Michael Cooper or Dr Geoffrey Reid sound good cause they are endo experts. But we've also recieved really good recommendations about Prof Mark Bowman from Sydney IVF although everyone who recommended him doesn't have endo (not sure if it matters whether the ivf specialist is also an endo expert though). Please message me if you need to with recommendations of doctors in case of defamation issues.

    Also, would love to hear about your experience with ivf generally, like whether it made your endo symptoms worse and how many attempts it took for a successful pregnancy (for those of you who are lucky to have succeeded).

    Thnx so much ladies! Would love to hear your advice.
    Last edited by Nibblerbunny; 13-01-2011 at 11:59.

  2. #2
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    hi

    i dont think they need to be endo experts...most FS's would be very familair with endo as its a common cause of needing ivf...sydney ivf is the most expensive....i went to ivf australia initally and the clinic was good but my doc was a dud so i left them and went to next generation fertility and been very happy.

    as for endo..generally speaking endo can often cause damage to your ovaries leading to less eggs but must say this does not happen to all and the older u are its more likely more damage have been done..for me personally it damaged my ovaries where it was found mainly so i got less eggs than normal...u just dont know how your ivf journey will go....some get a bfp first go and get frozen embryo's left over to spare and others have to endure years of ivf....i was 34 when i started and didnt get a sticky bfp til i was in treatment for 2 years and attempted 8 full stim cycles...(mind u i had about 10 months of time wasted by first FS ) ....sometimes other issues arise that make it hard for you to get pg and u dont find this out til u have a few go's (for example i found out i have low ovarian reserve which means less good eggs left than someone else my age)....so bottom line is u just dont know how long it will take...the average time is about 4 transfers i think. sometimes the journey is short other times long and hard...but its worth it and i got a gorgeous baby in the end....good luck.

  3. #3
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    Hi,

    I cant comment on IVF specialists in Sydney because I went through Melbourne IVF.

    I got a referral to a gyno after 12 months of TTC and coincidentally the gyno I was referred to was also an IVF specialist. She decided to do a laparoscopy to see if there were any issues and she discovered I had moderate endo (I'm not exactly sure what stage it was classed at) which she removed.

    At the time I was 35 (almost 36) and her advice to me was "if you were 10 years younger I'd tell you to go away and "shag regularly" however I dont think you have a year to waste if it doesnt work so I think you should consider IVF". I was blown away because of course I knew about IVF but didnt actually think I would ever need to do it. DH & I decided to go straight down the IVF path so 1 month after the lapa we commenced our first IVF cycle where I got 14 eggs which became 9 embryo's and our very first fresh embryo transfer was successful and our DD is nearly 2.5 y/o now. I also have a 10 w/o DD who was the result of a 3rd frozen embryo transfer (embie was from the same batch).

    My period returned when DD1 was 8 m/o and I noticed within about 3 months some of the same symptoms returning which I believe were related to the endo growing back. I asked my FS about this she advised that in her experience endo can grow back really quickly and that it is likely that I will require another lapa at some stage. I guess I am telling you that because if you are going to go down the IVF path it may be in your best interests to do it sooner rather than later.

    I have been very lucky in terms of IVF and I feel so blessed. I wish that everyone could have the same successful outcomes that we have had.

    Good luck, I hope that your IVF journey is short and successful.

    xx

  4. #4
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    Thanks so much for your posts ladies! It's so helpful to hear from other women who have have been through the cycle.

    Congrats to u both on your babies... I'm so happy for you that ivf worked :-) Hopefully DH & I will be as lucky with ivf.

    I think you're right jfblady72, it doesn't matter too much that the ivf specialist is also an endo expert.

  5. #5
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    Hi There,
    I am just writing to let you know that I also had stage 4 endo and after 4 laps and years of ttc and Ivf I have twins. So don't despair, there is hope. Good luck on your journey.
    I am in Bris so cannot help with a fS though.
    Last edited by babycake; 14-01-2011 at 08:08.

  6. The Following User Says Thank You to babycake For This Useful Post:

    Nibblerbunny  (14-01-2011)

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    As a long term patient of Prof Michael Cooper, I couldn't recommend him enough. I have had numerous surgeries with him and I know if it wasn't for him i would never of had our beautiful baby girl. Although we didn't do IVF with him as we live in Northern NSW, we saw a well known specialist at QFG in Brisbane for our cycle, who was recommended by Michael. However I do travel to Sydney for all surgeries required for my endo. I too have stage 4 endo, and have had a bowel resection, cycstotomy of the bladder as well as numerous laps performed by Michael. I don't trust anyone else. Both our FS and obs were very pleased to see I had been under Micheal for all endo ops, our FS even stated he would of doubted my chances of pregnancy if I had, had surgery with someone else. Micheal Cooper is one of the best and a extremely experienced surgeon in his field - endometriosis. Nobody else in Australia according to FS and our obs comes close to his expertise. His main IVF patients are those with endo .. endo and IVF being his main specialise. Have you looked at his website? It is very informative. I am unable to PM you with further details as you only have 2 posts but I am happy to supply email to you if you wish. Good luck

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    Thanks for all your encouraging words ladies!

    It's so great to know that other women have been through the worse of endo and had babies! Some of my doctors like to keep reminding me that my chances of conceiving is severely reduced, even with ivf, because of endo and being diagnosed as stage 4... just what you want to hear at each docs visit and having gone through the excruciating surgery!

    Just want to say that you ladies are amazing!

    Love your baby pics surfergal & jfblady72... your bubs are so cute, perfect little angels!

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    Aww...Thanks babycake!

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    NB: gee they like to get our hopes up dont they.."severely reduced"... mmmmm bit extreme...my first FS told me " call it quits" after 3 attempted stim cycles....i left his office, thought u can go and screwwwwwwwwwwww yourself pal LOL and never went bacK..lucky for harry!!!

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    Hi Nibblerbunny,

    I have severe endo and PCO and have had 5 laps in a space of 4 years for it. we started TTC since December 2007 and after 2 years on clomid with absolutely no luck i had to make the decision to start IVF. After 2 failed cycles, the FS found out that I had abnormal eggs which were getting fertilised but breaking apart. We were basically told that there was one more method to try as if that did not work then it is out of their control (i.e. just mother nature) which made sense. I was put on metformin tablets for 2 months before my third cycle. I am now 14 weeks pregnant with 1 frozen emby.

    I saw Dr Mark Livingstone from Sydney IVF in the city. He was extremely supportive and so were the nurses. I know everyone is different and has different experiences but i highly recommend him.

    Hope this helps goodluck with it all!


 

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