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  1. #171
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    @sootymay, sorry to butt in but can I ask a few questions?

    How advanced was your Adenomyosis? Did you have any pain because of it during your pregnancy? Was bub born before or after your due date?

    Sorry for all the questions. There is not much research around sustaining a Pregnancy with Adenomyosis and I was diagnosed at the start of this year after 3 months of heavy bleeding (proceeded by no period for 8 months) and against all odds am 16 weeks pregnant but already I have had a lot of pain.

  2. #172
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    Thanks Emski and Precious heart

    Beljane, of course you can! I dont know how much help I will be though, as I never knew I had adenomyosis other than scans showing it. I did have r/hand stabbing pain after 2 cycles of IVF and just put it down to that, but on reading information on adeno - it could have been that. As you know I consulted with Dr Christine Kirby and Dr Kelton T. at Repromed in Adelaide and Dr Kirby was on the opinion that my adeno was quite advanced. Sorry, I cant remember the exact number now and not sure where I have stashed that away!

    I was blessed with an amazing pregnancy and no pain whatsoever. No typical pregnancy symptoms, cravings or anything. Bub was born at 37 weeks via emergency CS, but that was due to pre-eclampsia that came on in the 37th week (well as far as I know... my feet swelled and I went to my GP to have by BP checked and a protein in urine test, which showed very high levels).

    Gee that unusual 3 months of heavy bleeding and then no period - and now 16 weeks pregnant - congratulations, thats fantastic news. I'm sorry you have alot of pain, but I really dont know why that could be?

    Did you know there is a adenomyosis website / facebook group I think it is - its quite informative. Good luck with your pregnancy and I hope the pain goes, thats not nice

  3. #173
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    Thanks @sootymay. I already knew about the Facebook page and it has beem a great resource for me.

    I have had no actual pregnancy symptoms also which has been great, just the adeno pain 😕

  4. #174
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    Thanks Sootymay, preciousheart and Emski. I got the call that my blood test was positive on Friday but I was so excited I forgot to ask what the HCG number was. I will ring them tomorrow.

    Beljane when I was first diagnosed with adeno I spent a lot of time on Dr google. I read a few stories from women who had severe pain in their pregnancy. One womans comment was that it was the worst pain she had ever experienced!
    Mine is not diffuse but in 2 spots and I am only 4 weeks pregnant so no pain thus far. I hope your pain resolves soon and you can enjoy your pregnancy.
    Last edited by faithandhopellove; 11-10-2015 at 21:26.

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    Beljane  (12-10-2015),sootymay  (28-10-2015)

  6. #175
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    Well here is something for the records. After being worried that the adenomyosis would affect implantation (my FS said the research is inconclusive) we managed not 1 but 2 to implant. Beside our best ever blastocyst (B grade) managing to burrow in so did the morula. I'm flabbergasted. We only put it in because the lab tech said it wouldn't make it to freeze. We didn't think it would take because we had early blastocysts put in before and fail. Baby 2 is 3 days behind at 5 weeks 4 days. They could just see a heart beat. Interestingly the sonographer said my uterus was "bulky". So obviously the adeno is still there but it either made no difference to implantation ... or both embies were lucky enough to try to implant on the posterior side where there is no adeno. Still shocked!

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    sootymay  (27-10-2015)

  8. #176
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    Faith - OMG Congratulations !!!! what wonderful news, I'm so happy for you, it just goes to show what can happen. We've been told the same in the past about morula's and transferred as well. So there you go! I'm so excited for you, finally your turn as come. Xxx keep us posted

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    faithandhopellove  (13-11-2015)

  10. #177
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    I'm pretty new to this thread and I hope the thread is still live! I have stage 4 endometriosis, severe adenomyosis, tried pregnancy for 11 years with ex-husband and current husband, have never achieved pregnancy, consulted specialists from 3 countries, two failed ivf attempts in the last two years, immune treatment along with IVIg, metformin, prednisolone and Lovenox along with my last failed IVF and believe me all these have been totally out of pocket as my insurance does not approve anything related to IVF! We are hoping to go for one more cycle of IVF (free through my husband's new insurance) but the doctor at the clinic we have to do IVF does not believe in either adenomyosis or zoladex. Fortunately my own OBGYN is open to it so I'm hoping to get zoladex through him. I came across this thread while doing a google search and would like to know how many of you have had success with FET after down regging with zoladex. I've produced only average to low quality eggs so I'm hoping to stim and ER and freeze any embies I get and then go for FET after down regging with zoladex. I would love to know whether anyone had any success with zoladex and FET, how long you were on zoladex before transfer, what medication protocol you went for and what other medications you were taking along with this protocol. Thank you so much!

  11. #178
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    @Okigirl I had a chemical pregnancy after 3 months on Zolodex. It was the first time I had ever got implantation. My Dr wouldn't do a second round of Zolodex as it can affect egg numbers so I spent 3 months on the pill instead before doing my last IVF. I also had a laparoscopic removal of endometriosis before my last attempt (like you I had grade 4 endo). It worked. I had 2 transfered and both implanted. Pretty amazing stuff for an over 40 year old. I really think the endo/adeno was affecting my egg quality and implantation. I believe @sootymay has been on an immune protocol before her bfp. I was only on low dose prednisone on my succesful transfer.
    My bubs are now 23 weeks along. I hope you have success too.

  12. #179
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    @Okigirl yes I had success using this protocol after two failed IVF cycles once I had been diagnosed with adenomyosis via MRI and biopsy. i did a long down reg cycle using zoladex and prednisalone. I should mention that it was a FET cucle also. We used Repromed and from what I've read other women have had similar success on similar treatments. Good luck and best wishes!
    Last edited by Toots001; 18-02-2016 at 12:09.

  13. #180
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    Hi @Okigirl I have ultrasound diagnosed adenomyosis and have just done three months of zoladex prior to the transfer of 2x donor embryos and I am pregnant - I am only 5 weeks along so it is still very early days. I was also on an immune protocol of prednisone, clexane and intralipids due to some minor immune issues. Prior to this I had done 4 and a half years of IVF with my own eggs with multiple failed transfers of good quality embryos (and 2 early miscarriages).

    Before moving to donor eggs this year I did my last own egg FET in September last year - I'd done a freeze all cycle in April so that I could down reg with Zoladex before transfer. I did two months of Zoladex prior to the tranfer of 2x3 day embryos and got a BFP - this was the first time I had down regulated before a transfer. I got a massive Beta at 17dpo of 1550 so he thinks both might have implanted but I miscarried at around 6 weeks but this was most likely due to the age of my eggs (43).

    So with two BFPs in a row after down regulating with Zoladex I firmly believe that the adenomyosis has been the main underlying problem for me all along. A research paper I came across by Kelton Tremellen titled 'Ultrasound diagnosed adenomyosis has a negative impact on successful implantation following GnRH antagonist IVF treatment' http://www.ncbi.nlm.nih.gov/pubmed/22997247
    suggests that in the past it was common for women to do long down regulated IVF cycles which would inadvertently treat endo and adeno before transfer so the link with adeno and poor implantation was not as obvious but now the trend is to do much shorter antagonist cycles where there is little to no element of down regulation prior to transfer. I think in years to come more and more FSs will come to accept that in some cases adeno can prevent successful implantation from occurring.

    Given that you have both endo and adeno I believe that the Zolodex is definitely worth a shot - I had very few side effects aside from a few aches and pains in my joints following the 3rd Zoladex implant but that has completely resloved itself. Best wishes and best of luck to you. FFxx
    Last edited by Felicity Fox; 18-02-2016 at 14:06.


 

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