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  1. #541
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    Quote Originally Posted by Woody1982 View Post
    Hi girls... I've just gotten my blood tests back after five losses- they're showing elevated homeocystine (?) levels? Does anyone else have this and know what it means for my chances of ever being able to carry a pregnancy?
    So sorry for your losses.

    Sorry to crash this thread but I know a bit about this and thought I would post this information for you:

    Homocysteine and the Miscarriage Connection

    Homocysteine is a common sulfar-containing amino acid found in the body. While it is not harmful in normal levels, when those levels get too high (especially during pregnancy), it can cause a condition called hypercoagulability. What does this mean? In general, your blood clots much more easily than it should. Not only can it put you at a higher risk for a heart attack and stroke, but it can put your baby in danger as well.
    As small blood clots begin to develop in the uterus, the placenta can be cut off; leaving the fetus void of the oxygen and nutrient supply it needs to survive. This can induce a spontaneous abortion, otherwise known as miscarriage. In the event your pregnancy develops past the 24th week before the clotting develops, a stillbirth or premature birth can result. With no tests available to check for these clots and no other warning signs offered by the body, the danger often remains unseen until it is too late.
    How High is Too High for Homocysteine Levels?
    When it comes to determining safe Homocysteine levels, there is quite a bit of debate as to what constitutes a dangerous level for a growing fetus. But one thing is certain: high levels do put a normal pregnancy at risk and the higher the level, the higher the risk.
    Researchers in Bergen/Osb Norway studied several thousand patients and reported that Homocysteine levels higher than 10-10.7 increased a woman’s chance of a miscarriage by a whopping 38% . Even more alarming was the fact that high Homocysteine levels also seem to predispose a woman to preaclampsia and premature labor. Those with levels above ten had a five times greater chance of developing preaclampsia (dangerously high blood pressure) and twice the rate of premature labor than women with normal Homocysteine levels did. These results have been repeated by several other studies throughout the world.
    What Makes Homocysteine Levels Rise?
    So what makes a woman’s Homocysteine levels suddenly rise to dangerous levels? No one knows for certain, but one theory subscribes to the fact that women with a MTHFR Gene Mutations (especially the C677T variation) are much more likely to have higher than normal Homocysteine levels in the body all of the time. It is just that their levels do not pose a risk to their health until a pregnancy occurs.
    How to Lower Homocysteine Levels
    If your doctor does diagnose high Homocysteine levels in your body, what can you do to lower them quickly and protect your pregnancy? The most common therapy requires taking a combination of Folic Acid ( 400-1,000 mg per day); B6 ( 10-50 mg. per day) and B12 (50-300 mg per day). Why? These three main vitamins can be used by the body to convert homocysteine amino acids into other products in the blood, to keep it from clotting unnecessarily. A more natural solution than pharmaceutical drugs, it remains the most popular and safest method of balancing this unique disorder.
    In addition, some doctors recommend adding Vitamin E ( a natural blood thinner) and Zinc ( an excellent toner) to your vitamin regiment also to help lower high Homocysteine levels.
    While it is true that high homocysteine levels can put any pregnancy at risk, those who are aware of their levels can be proactive, working to naturally lower these dangerous amino acid levels and salvage their pregnancy. When repeated miscarriages has already occurred, having your homocysteine levels checked can help to prevent further disappointment by alerting you to a problem that can indeed be remedied with vitamin therapy.

    Hope this helps. I'd be going to see a naturopath asap so you can be monitored on all of those vitamins.

  2. #542
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    Default TCC and Pregnancy with Blood Thinners/ Clotting Disorders

    Thanks FTM... My levels are pretty high- 17.1. The more I google the more I worry ill have a heart attack before I get pregnant again! Argh! Going to see a specialist on Tuesday.

  3. #543
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    Default TCC and Pregnancy with Blood Thinners/ Clotting Disorders

    You're welcome

    At least you know what it is now and you can treat it. I lost my first baby at 11 weeks because of an auto immune disease I had no idea that I had. If it hadnt of been for that pregnancy I wouldn't have found it and have been treated for it. I'm now 25 weeks pregnant so I'm sure you'll get your take home baby once you treat your disorder

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    Hi Woody,


    I'm so sorry for your losses


    I had a DVT 3 years ago and blood work showed that I was homozygous (2 copies) of the MTHFR C677T mutation that causes problems through raised homocysteine. I immediately started taking 500mcg of folic acid/day. My homocysteine levels were only taken after I'd been on the folic acid, and were normal, so it was assumed they had been high before. Who knows?


    Anyway, when TTC several months later I consulted an Obstetrician Physician who put me on the B6/B12/Folic Acid combo. This is the standard protocol for treating hyperhomocystemia and all blood specialists/miscarriage specialists should be familiar with it.


    I was quite concerned so I also consulted a haematologist and vascular specialist. Because of the previous DVT I took Clexane my first trimester (and post partum) and low dose aspirin from weeks 12-36. I've heard/read of many women with unexplained losses having good results with Clexane - but it's often something they have to push their doctors into trying.


    My OB kept an eye out for all signs of pre-e, etc. The condition can also be related to clots in the cord and IUGR so we did several extra scans of the baby - especially at the end.


    My pregnancy (with my now 14 month old daughter) was so textbook we decided not to take Clexane for subsequent pregnancies (only post partum). I'm now 16 weeks pregnant with our little surprise. I never stopped taking the high dose folic acid.


    Good luck with everything. It's great that you've finally found an explanation and hopefully a very simple solution will solve the issues that you've been having. My best advice is that all this blood clotting stuff is not very well understood and I had different advice from every doctor I saw - so push to get as many opinions as you want/need and push to get the treatment you are convinced will help you get your take home baby. Xoxo

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    Quote Originally Posted by Windupbird View Post
    Hi Woody,


    I'm so sorry for your losses


    I had a DVT 3 years ago and blood work showed that I was homozygous (2 copies) of the MTHFR C677T mutation that causes problems through raised homocysteine. I immediately started taking 500mcg of folic acid/day. My homocysteine levels were only taken after I'd been on the folic acid, and were normal, so it was assumed they had been high before. Who knows?


    Anyway, when TTC several months later I consulted an Obstetrician Physician who put me on the B6/B12/Folic Acid combo. This is the standard protocol for treating hyperhomocystemia and all blood specialists/miscarriage specialists should be familiar with it.


    I was quite concerned so I also consulted a haematologist and vascular specialist. Because of the previous DVT I took Clexane my first trimester (and post partum) and low dose aspirin from weeks 12-36. I've heard/read of many women with unexplained losses having good results with Clexane - but it's often something they have to push their doctors into trying.


    My OB kept an eye out for all signs of pre-e, etc. The condition can also be related to clots in the cord and IUGR so we did several extra scans of the baby - especially at the end.


    My pregnancy (with my now 14 month old daughter) was so textbook we decided not to take Clexane for subsequent pregnancies (only post partum). I'm now 16 weeks pregnant with our little surprise. I never stopped taking the high dose folic acid.


    Good luck with everything. It's great that you've finally found an explanation and hopefully a very simple solution will solve the issues that you've been having. My best advice is that all this blood clotting stuff is not very well understood and I had different advice from every doctor I saw - so push to get as many opinions as you want/need and push to get the treatment you are convinced will help you get your take home baby. Xoxo

    Thank you for your response- I took your advice and saw Lynn burmeister at monash Ivf last week. She booked me straight in for a hysteroscopy and took a biopsy of my uterus to check for natural killer cells and infection (I've always thought my issues started when I had to deliver my first boy at 20 weeks from chorioamnionitis).

    For the homeocystine levels she has me on megafol, fish oil and b vitamins. Next month I will start taking aspirin while we ttc, then once I am pregnant (fingers crossed) I will start clexane, progesterone and steroids. Plus weekly scans from 6.5 weeks to 13 weeks. Then a stitch and fortnightly scans...

    I get that my ob only wanted to treat me for homeocystine with the folate and b vitamins, not throw everything at me- but I'm done losing babies when if we just did it all from the beginning I could possibly have saved one of them. So glad I've found someone who can do this for me, but also scared this may not work and then I've got nowhere to go from here. Also scared to tell my ob I've been cheating on him

  6. #546
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    Quote Originally Posted by Woody1982 View Post
    Thank you for your response- I took your advice and saw Lynn burmeister at monash Ivf last week. She booked me straight in for a hysteroscopy and took a biopsy of my uterus to check for natural killer cells and infection (I've always thought my issues started when I had to deliver my first boy at 20 weeks from chorioamnionitis).

    For the homeocystine levels she has me on megafol, fish oil and b vitamins. Next month I will start taking aspirin while we ttc, then once I am pregnant (fingers crossed) I will start clexane, progesterone and steroids. Plus weekly scans from 6.5 weeks to 13 weeks. Then a stitch and fortnightly scans...

    I get that my ob only wanted to treat me for homeocystine with the folate and b vitamins, not throw everything at me- but I'm done losing babies when if we just did it all from the beginning I could possibly have saved one of them. So glad I've found someone who can do this for me, but also scared this may not work and then I've got nowhere to go from here. Also scared to tell my ob I've been cheating on him
    Hi Woody, I'm really glad you're on the way to getting a firm diagnosis. I've got a friend how saw Lynn and she managed to carry her baby finally after 4 IVF losses.


    And on a different tangent ...I'm having a bit of a proud moment that a thread I started now has 55 pages. How wonderful to be sharing all this information with each other.

  7. #547
    Love_Monkey_Heart is offline Blessed with a very cheeky Monkey!!
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    Just thought I would jump back in this thread as we are now ttc baby number 2.

    I was previously in this thread when I was ttc/pregnant with DS but under a different username (sammy87)

    So as a refresher I have hyperhomocystemia but is unexplained as I do not have any other blood issues. I previously had a DVT and PE in December 2008. During my first pregnancy I had clexane injections from 5.5 weeks right through until 6 weeks post partum.

    I am currently seeing an FS and doing an FSH cycle. I'm already taking high dose folic acid but must remember to get to the chemist this week to get all the other vitamins.

    Hi Windupbird Not sure if you remember me (as sammy87) but we were pregnant at the same time last time. My DS was born Jan 2012. Congrats on your pregnancy!!

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    Hi ladies. I have had two failed cycles and a mc from a natural pregnancy. My FS are reluctant to do any further testing at this stage. I would like to try aspirin on my next cycle as I believe I have implantation issues as my embryos are great quality. My question is, when do you start taking it and do you have to stop taking it prior to epu due to it's blood thinning properties?

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    Hi everyone xox just a quick question about clexane injections... I picked up mine from the chemist today but the pharmacist told me he couldn't tell me how to use them as they were for drs use!? I'm not even pregnant yet, just in tww so I've probably jinxed myself by picking them up already but surely I don't need to go to a dr every single day for a needle?

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    Hi woody, they are quite easy to give yourself. I used clexane from my bfp until I was 34 weeks. You can look on you tube but you basically pinch some belly flab and stick it in and push. Sometimes they really hurt with a decent bruise and other times were easy. I'm ttc again and still have 3 x packets with an expiry of aug 2014 lol. My son is 9 months. When will you test? I'm due for af Saturday week but will test Wednesday


 

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