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  1. #41
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    Default Just Diagnosed

    Thanks for starting this thread, its great to know that there are other ladies out there going through the same thing and getting results. Living in an isolated part of Aus. isnt always easy.
    Yesterday I saw the OB-GYN to find out if there was a reason my waters broke early (19 weeks) and I lost my baby.
    She seems to think that i may have a clotting issue and possible have factor five liden. I had some more bloods taken for more tests to confirm it.
    She said the she will have to "think" about how she might care for me if i get pregnant again.
    I was a little bit miffed at the fact she will have to think about how she is going to treat me so i am determined to have some knowledge before i go back to see her for the next lot of results.
    Any suggestions or advice would be great.

    Thanks
    Emzy
    Me and DP both 32
    31.10.10 19+5 weeks (IVF)(FS 1500km away)
    Me: PCOS

  2. #42
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    Just wanted to pop in and say the the new ladies.

    martina78: That's tough. M/C are devestating, at any point. Sorry that you weren't tested earlier.
    BTW wouldn't call ALS so boring. Hope you have some answers from the testing soon.

    Emzy78: That's relly hard, being so far from your HC providers. Sorry your last preg ended so heartbreakingly.
    Hope you can get some answers too soon. As for the doc, the longer that I'm around them, the more I realize that medicine is an inaccurate science. Sometimes it's a case of 'lets try this and see if it works.'
    But sounds like yourself educated and that's a powerful thing. I've learnt a thing or two as well from this thread.

    I've got some questions for the doc when I see them next.

  3. #43
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    hello new girls,

    sorry to hear of your losses

    hello to the "old" girls

    how is everyone?
    anyone got any exciting news???
    well af didnt arrive today so today is cycle day 26 just have to wait and see how many days in my cycle this month.

  4. #44
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    Hi Ladies,
    I am so glad I have stumbled across this thread! And there are a few familiar 'faces' in here too Mind if I join in? I'm a bit new to clotting disorders, but about to become very familiar with I fear.

    Quote Originally Posted by Luvabubba View Post
    And I'm sorry but I have to ask, is it just me or does anyone else pronounce mthfr like...well you know
    Hadn't thought of that, but now you mention it, LOL!

    Quote Originally Posted by ojmum View Post
    Hi Ladies,
    I hope you don't mind me crashing this thread! I have Factor 5 Leiden and MFTHR gene and had two successful pregnancies and healthy children on treatment of Cartia (100mg Aspirin), Megafol (5mg folate) and MegaB. My obstetrician kept a very close eye on my Hemocystine levels and also did doppler ultrasounds regularly of blood flow through the cord and placenta. I had CS's so had increased prophalatic treatment for DVT of Clexane (6 weeks) and TED stockings and Sequential Compression Devices post surgery. I just thought i would share my story and send you all lots of baby dust with your TTC journey's and pregnancies.
    OJ- this gives me much hope, Thankyou

    Like a few other girls here, I am currently being tested for mthfr & a bunch of other probs after my first son was stillborn 7mths ago @ 31wks. He had IUGR in hindsight, and I've just started seeing a high risk OB, who is testing me, and going to help us get a 'take-home bubba'.
    I get my results 7th Feb, then start Cartia & Megafol ( prob forever), then maybe Clexane when preg, but not sure until I get the results.
    I haven't researched any of it too much yet, I want to know which I have first, so I dont freak myself out too much!
    I've since had a chem preg, so its been a tough year. Looking forward to a diagnosis, and TTC soon.

  5. #45
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    Quote Originally Posted by heatherm View Post
    well af didnt arrive today so today is cycle day 26 just have to wait and see how many days in my cycle this month.
    I am cd 26 today too, I have nasty nausea for 3rd day, and am home from work in bed, so when i go to the gp today, might ask about a BT, just to be sure LOL... we're not supposed to be TTC at the mo, but weren't exactly risk-free this cycle! Hmm

  6. #46
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    Hello Ladies,

    to all of the new ladies! This thread is so busy now, I can hardly keep up. All of this info is great.

    So sorry to the new ladies with the very sad losses. I don't even know the right words to say, but hope that the new testing and Clexane/Cartia/etc can prevent the same things from happening again and give you your beautiful babies.

    Emzy and Martina - Welcome - I'm a fellow PCOS lady myself, so I commiserate with you. I'm on the Clomid route.

    Ojmum - hi! Do you mind if I ask how often you did ultrasounds and checked your homocysteine levels during your pregnancy? My cardiologist said that once I was pregnant he would do 'a few' ultrasounds. I'd like to get a sense of 'the norm'.

    PA80 - welcome!

    Sorry if I've missed anyone new. And, to all of the 'old' ladies.

    Heatherm - have you broken down and tested yet?

    Tatiana - good luck once you decide to test and with speaking to the new MW next week.

    AFM - my appointment with the new OB was a bit disappointing. It made me feel more appreciative of my current OB, so I guess that's a good thing. I started Cartia and vitamins B6&12. Also checking my homocysteine levels again to get a new baseline.

    Has anyone received advice on flying while TTC/pregnant with blood clotting issues? I usually have to take Clexane for flights over 4 hours. I was given the rough estimate that once pregnant I shouldn't fly (particularly long-haul) after 24 weeks as that's when your blood really starts clotting up naturally in anticipation of labour. I'm dying to see my Mum and it's a long-haul flight to get home so can't quite decide what to do.... I've read that MTHFR might cause implantation problems, so I don't want to get my blood too clotted on a flight and mess things up if I'm still TTC. I also don't want to fill myself with Clexane and make it too hard for an egg to stick....

    I hope everyone has a wonderful weekend.

  7. #47
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    Hi Ladies,

    I just thought that I would join you ladies in here.

    Well my story is that after my first MC I was diagnosed as positive Antinuclear antibody (ANA+). I was told that when I fell pregnant the next time that I will need to be on Cartia. So when I fell pregnant I started the Cartia. Unfortunately I miscarried again. They did further testing and then they decided that I should start the Cartia as soon as we started TTC again and once the scan has be done that shows the heart beat that I would have to start Clexane. We have yet to fall pregnant again yet. One of my doctors has just started me on Clomid as well so we will have to wait and see what happens.

  8. #48
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    Hi, to the new ladies dropping into the thread.

    PA80: What a time you've been through. Can't even imagine how hard that must of been.Glad you're getting some testing and hopefully it reveals some course of action for you.
    The nausea sounds interesting. Keep us updated.
    Are you on any thinners atm? If you are preg. might be worth getting in contact with your ob asap. They might want you to start on something?

    azz1910: I'm a fellow ANA+ gal, who did asprin/clexane. And I carried my healthy bubba till 38 weeks. She grew so well that a scheduled induction was cancelled.
    I would agree taking the apsrin when tcc is important. Dissapointed they didn't tell you that in the first place. Had a similar problem after m/c with a long period of no pregnancies. But it will happen. Keep up hope girl.


    Hey Windupbird, am day 23 today. My (.)(.) have settled down and no more cramping or anything, so I think that it's gone bobbies up this month.
    Don't hold out much hope..
    Will test next week. Anyhoo....
    As for flying, my ob said no flying after 20 weeks. But that was her opinion?

    heatherm: Any news??

    Hope everyones doing ok.
    Last edited by Tatiana28; 22-01-2011 at 20:36. Reason: Because I can't spell!!

  9. #49
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    Tatiana- Thanks for the hugs! I'm still feeling quite unwell, had bad pain overnight in the area of my left ovary, not sure whats going on...did a poas BFN this morning, but I'm only cd27.
    I'm not on anything yet, as my OB wanted to wit for the test results, in case I have to re-do any tests, so as not to stuff up my baseline I suppose. If I do turn out to be (long shot) pregnant, I have the cartia and caltrate on hand ready to go, just got to get some megafol. I know it wouldn't be ideal to have conceived without the meds, but if I was & it stuck, I guess its ok. After all I got to 29 wks without drama with my boy, it was only the last two weeks when things went pear shaped.
    Will have to wait and see, might go for bloods if still no AF by early next week.

  10. #50
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    Quote Originally Posted by Chubear View Post
    Hey,
    I have Factor 5 leiden and will need to take clexane daily once i have a BFP.
    i asked my DR about aspirin, cos i heard sometimes it can help to get PG, but he reckons the incidence of gut bleeds can be high and since i have a history of stomach ulcers and reflux he recommends i stay away from it.
    i have used clexane before - every time i fly or have really long bus trips.
    Hi ladies
    sorry to crash, I just wanted to tell you my experience. I have a 6 month old son, but I knew I had factor Five Lieden since I was 19 when I got a clot from the pill, I have only one mutation so that's Homozygote. anywho, I spoke with a specialist at age 20 and he said that I would have to be placed on Low weight clexane 40mg daily from my BFP, there was no mention of asprin as I was advised that it wouldn't help because of the way the genetic disease worked ( however my aunt who has the same thing was told to take asprin daily??)
    we tried for 8 months to fall pregnant (no one said it might be harder to fall pregnant but it can be to stay pregnant) once I got my BFP I got my clexane and thankfully DH did the injecting because I just couldn't bring myself to do it, (in the tummy) we tried in the bottom for a week before an ultrasound cause it hurt when they pressed down on the bruises but i found it so much more painful. ( i had full strength Heprin when I had my clot at 19 and it hurt so much more then the clexane) I was through public system so was told numerous different was to deal with labour ( another specialist I saw once pregnant told me to be induce at 36 weeks No thanks) so I went from being induced to not being induced this was due to issue of bleeding in the spine if I wanted an epidural, I spoke about c-sections and the doctors were confident that so long as I was only on the low dose there was no risk of excessive bleeding during labour or surgery, back and forth every week for a different answer, I eventually spoke to the head of the department and he said that I would not be induced, and if I think I am in labour to not have the injection just to be safe as it only takes about 12 - 24 hours for the thinners to wear off. so Fing confusing.
    It turned out that once I went into labour (myself) I got to the hospital and they ended up speeding it up just in case I took too long labouring and formed a clot so then I wanted the damn epidural, luckily it had been well over 24 hours since the last injection and all was good. I also had getational diabeties but managed to keep it diet controlled only, I was told that if that was different then they would have induced for that reason only. Like I said so Fing confusing.
    At least I know now and have a better idea for next time. I got used to the needles daily but was pretty ****-d to find out I had to have them for 6 weeks after birth as I had been told originally only 2 weeks for a Vaginal birth. oh well.
    Sorry for the super long ramble but I had no one to get info from when I was TTC so I thought this might help, & I would be happy to answer any further questions about it if you want to PM me.

    I wore Pressure stockings for long care trips and wore teds for 2 weeks after birth just in case.

    Factor Five Lieden is genetic, men are carriers but aren't usually affected, women are carrier and are affected by it.

    Also just made me giggle when I read about someones comment about the mthrfr (I think thats it) That is exactly how I read it hehehe

    thanks for reading and good luck to you all, TTc was the most emotional journey I've ever had so I know how you are all feeling. lots of sticky baby dust for you all.


 

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