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  1. #11
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    I feel your needle pain............ I was on weekly and then twice weekly...

    I think because I already had my gf diagnosis they never really thought about depression.... but I tell you what, some days the cf was that bad I felt sooo depressed......

    It is years in terms of feeling better......... I still struggle.... but dont think mine ever really got to full blown cf, was a very long bout of gf that is recurring......

    sorry for rambling.....


  2. #12
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    I think it is fairly widely accepted that GF and Ross River Fever are the 2 'main culprits' for bringing on CFS, so that would make sense.

    Look after youself too, Chicken and Eggs Mum

  3. #13
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    three doctors have failed to have any answers so i'm going with chronic fatigue until someone decides to think a bit harder. i survive by having an afternoon nap and i have an appointment to get allergy testing soon so i can give my immune system a break.

    good luck!

  4. #14
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    I was diagnosed with Fibromyalgia and then CFS this year. I was originally given an anti-histamine/tricylic anti-depressant, it's both. It helps me sleep at night but doesn't make me drowsy the next day and it's great. I can't tolerate SSRI's (the usual AD's like prozac etc). I was also prescribed an anti-inflammatory and painkillers but don't take them...was also prescribed a muscle relaxant but only takes those when I feel anxious as well as Xanax.

    The only "meds" I've found to benefit me are vitamins. They have really, really helped with the fatigue most days and I feel "sharper" (mentally) since having started them. My specialist doesn't 'believe in' vitamins, but I do as they work for me. I'll list what I take if you want to give it a go:

    Morning:

    Vitamin D
    Vitamin B complex
    Fish Oil capsule
    Iron tablet
    Vitamin C
    Magnesium tablet

    Lunch

    Magnesium tablet
    Fish oil

    Dinner

    Magnesium tablet
    Fish oil
    Vitamin C

    As well as that, I really notice how much worse my symptoms get when I'm not eating right...so a good diet and lots of water are great tools to get you through this illness. I'm not sure if you knew this either, but if you are diagnosed with CFS you will not be able to donate blood due to the XMRV link (PM me if you want to know more about that).

    You are right, there is no cure. But I promise you, for a lot of people - this DOES get better. For some people it even goes away completely Here if you need to talk.

  5. #15
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    Thanks Pinkzy After more research etc, Im pushing towards the more natural therapies approach I spoke to MIL this morning (she's going through Menopause the poor thing) and she's suggested perhaps going to a Mrs Flannery's store (Health food store here in QLD) and seeing them about it. She's been on natural therapies for a month and she's feeling a lot better within herself and energy.

    Do you have good and bad days? Today I feel great, but Ive had this happen before and then Im flat for 4-5 days?

    ETA: Ive started a low GI diet to help with slow release energy, I drink 2 litres of water a day (a kidney stone 5 yrs ago will make you do that lol). I only started it yesterday with the diet, so I guess time will tell.

    As to blood donation, dang Ive always wanted to dontate but am terrified of needles, you would think after being so sick last year I would be used to it having them twice a week! NOPE!!

  6. #16
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    I thought I would update my own thread for anyone interested.

    I have fibromyalgia, which is has been an offset from my Irritable Bowel Syndrome. FINALLY Have an answer!!

    Prozac was still another treatment, I refuse to treat it with an antidepressant. So I have gone natural therapy.

    I saw a nutritionalist on the weekend who has started me on some treatments for controlling the IBS, she has explained we need to treat THAT first so start treating the fibromyalgia. Makes sense, IBS affects the way you absorb nutrients, if the gut isnt working correctly, the brain function will stop working correctly.

    Ive been on these natural therapies for about 5 days and Im feeling great already!! Ive started light exercise again and I feel like a new person!!

  7. #17
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    I am glad you finally have an answer. How are you dealing with the diagnosis of FM? I struggled with it for a long time and have actually made some videos on Youtube about it if you'd be interested in watching them? I also created a support group for Fibro on Facebook and you're more than welcome to join.

    There are good and bad days - lately, I'm having more good days than bad thanks to the combination of medication and positive thinking. You sound like you're doing so well which is brilliant

  8. #18
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    Thanks Pinkzy! Im dealing OK with it and the diagnosis so far. I think it's because I finally HAVE the answer I can get on with the job of dealing and helping improve it, if that makes sense?

    Imglad you're having good days! I had a terrible day last week where I could not literally stay awake or get out of bed, it was heartbreaking as it happened to be a weekend (not the one just gone) and I wanted to get out with the boys and DH. The weekend just gone, I felt great enough to go to White Water World and Wet N Wild with them and have FUN!!!

  9. #19
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    Oh hunni I am so glad you have an answer but so very sorry it's something chronic. You are strong smart and supported, you can beat this, I KNOW you can!!


    Sent from my iPhone using Bub Hub

  10. #20
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    Hi, I had CFS (diagnosed in the absence of anything else to explian how tired I was) when I was in high school after a bout of what we think was whooping cough. I know you have found it's not cfs, but just wanted to let you know after a couple of years of barely functioning (and I don't think I ever had it full on), a friends mum recommended a naturopath, and he prescribed some herbal tonic and some tablets, and I was literally almost 100% within 2 weeks! It was amazing! I still get tired very easily, need a good 10 hrs sleep to be my best and every now and then need a pick-me-up from him again, but seriously, if you can access a naturopath I highly recommend it!


 

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