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  1. #611
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    Bbhope.... ummm... anon donor is unknown.... sorry, or do you mean something else? I would have been happy asking one of DH's distant male cousins, but he was dead set against it. With anon, the baby would be totally ours - no-one looking at it, thinking things.

    Jenni... that's the problem.... I've been tested for everything... Believe me, everything!! There is no explanation, my insides are all perfect, my periods and cycles all perfect, a few immune issues, but that's it. No FS has any ideas really what can be done.

  2. #612
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    @MGCBertie: Grrr. I misunderstood the short form. I thought anon aka "a known". I am in contact with the lady who did bondi protocol. If her pregnancy is a success, ie: pass 12 weeks mark, I wont do intralipid next cycle for sure. The scientific study is inconclusive about the intralipid. Ivig is a different story. She has a lot higher NK cell result than me, although no ANA positive. Intralipid supposes to help NK cell but not ANA if i understand correctly. I also know another lady who fell preg only after first time doing intralipid with DrM. Coincidence? U would think not. So to me, intralipid is still like a lucky draw. By doing so much, i actually maximised my chance of getting sick from interaction with ppl (flights, hospital, acupuncture clinic etc). I catch cold easily and mostly after international travel.

    I might have been sick a week before the transfer leading into the TWW -- a very mild sore throat that only made me think of dry throat. Maybe that kills my chance. Also i still haven't figured out if prednisolone really makes me to go toilet more at night. FS said no and thought I have UTI. I am sure that I didnt have UTI.

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    MGC Bertie  (19-09-2014)

  4. #613
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    Bbhope.... yes, though some of these things are obviously helping some women, there's still a percentage of women who it doesn't work for, so perhaps increase chances but that's it. I saw Dr M this evening, and finally he's agreed to let me use Dex and Nupogen, both of which I've been asking for 6 months to be allowed to use. Maybe it's because it's my last donor embie. Maybe it's because I've used Intrallipids twice and IVIG twice, both without success. Who knows? He just said "what else can we change?" and then decided on those. I wanted to shake him, considering I've wanted those all along, but was secretly pleased at least I get to try them :-))

    I go to see my FS on Tues and then my endocrinologist on Wed, so will have a plan set by then.

  5. #614
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    Good luck Bertie. I really hope that the new protocol will help you!!

    I don't know whether to laugh or cry. Since my niece was born, my in law has been sending me her pic for my birthday. I just received another one in the mail and a drawing. Bitter sweet moment, I guess. I don't know when DH decides to tell her.......

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    MGC Bertie  (24-09-2014)

  7. #615
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    Hi Guys

    Sorry have been AWOL for a while just been trying not to think about it. All the suppression has come through tonight unfortunately which is because the urologist appointment is tomorrow. Part of me doesn't want to go I just want to live in the land of not knowing.

    Can anyone tell me what happens at the urologist? I imagine they go over the test results and if it shows nothing then they will examine DH? Have I got that thinking right there? If it is OA will it come up in the test results and then if it shows nothing they will then presume it is NOA?

    I am really hoping for OA but so many of you girls DH has NOA that I am thinking the chances are not good.

    Sent from my GT-I9505 using The Bub Hub mobile app

  8. #616
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    I am oversea and internet has been very slow. Since you want some answers for tomorrow, I will just have to reply. I totally know what you meant by not wanting to know more. I am in this crossroad....i wish FS hasn't told me that we could ask for another mTESE. Not that the surgeon would agree on it because there is something weird about DH case. It should have been a good case but poor prognosis on the day of surgery. I didn't want to ask the surgeon since DH won't want to do the mTESE again. Even if they find more, the quality might not good enough to end in a live birth. Just like what happened to us. False hope. Heck...you must be thinking who would pass up another opportunity to be a genetic parent?!? Well, the surgery is very invasive and taken out more sample only means disruption of hormone production.

    OK, get to your questions.

    Assuming your urologist is andrologist as well. He will first physically exam your DH part. If your DH is missing van deferens, the urologist will know it, which certainly is OA. There is a strong correlation between missing van deferens and cystic fibrosis genetic defect. Someone did mention that it doesn't necessary have to be the case, ie, missing the van deferens without the CF. He can also perform an ultrasound. Blood results tell you a lot of things. Did your DH do all the genetic ones? such as Y micro-deletion, karotyping. If they are all clear and no missing van deferens, then it is likely NOA. Although men with maturation arrest has few indicators in the blood, such as elevated FSH.

  9. #617
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    Thanks for that. I bet it is hard knowing when DH won't do another surgery.

    We are just waiting for the appointment now. I am not sure what blood tests were done but there were alot and definitely was CF (asked by QFG lab if was sure because not bulk billed) and definitely hormones because specialist joked that he looked like a guy lol. Apart from that not sure.

    We are seeing a urologist that specialises in male fertility.

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  10. #618
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    So have just come back from the urologist and tests came back with high FSH. I am not really sure what that means . The dr said that he will do a biopsy and look and that will give answers. He said if no sperm they will analyse all sample. If there are sperm they will freeze some for IVF and then analyse the rest. He said DH had to rest for 2 days after it.

    He did say it was good that DH "looks" like a male and that males in his family (father and brother) have fathered kids.

    I really hate the waiting. Would have been better if already knew the results and could have done the testing today.

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  11. #619
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    Sorry malak, not much help here. Elevated FSH is not a good sign but hey the scientific study hasn't been too accurate in some cases. My dh has normal FSH but so what?!

    Do u know what kind of biopsy the dr is planning to do? I suspect 2 days rest means TESE? A needle biopsy is less invasive and can tell u what u r dealing with. If nothing shows up, then mTESE is really the way to go. Don't waste time and pain on TESE. Because if nothing comes out of TESE and you decide to do mtese, the surgeon would want your dh to rest for 6 months before another operation. So make the choice wisely.

    I don't blame my dh for not wanting to do it again. It is getting to the point of feeling miserable everyday or using the donor with a more positive/promising outcome. We can continue to chase this empty dream or move on to enjoy the parenthood. Surely is a hard one.

  12. #620
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    I am not 100% sure on the biopsy. He said that does it under local or general and takes about 30 minutes to do and does a small cut.

    It is so sad that we have to all go through this. Life was not meant to be this hard.

    DH wishes that there was just something he could take to decrease the FSH levels. There is not much out there on FSH levels for guys and how to fix it.

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