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  1. #41
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    Yes, it is covered by Medicare. Medicare operates at a Federal level, not state.

    Different clinics charge different amounts. Our ICSI cycle (at IVFA in Sydney) cost about $8k up front, and we got $5k back from Medicare, so $3k out of pocket. Extra for the excess for the day procedures at the hospital for EPU & ET (if you are not covered for IVF by private health insurance the theatre fees for these procedures are several hundred $ extra), plus about $500 for anaesthetist for EPU.

    DH's procedures looking for sperm were additional to all that.

    ETA: I believe several people travel from all over Australia to utilise the funded treatments at Westmead Fertility Clinic. However, I don't think you'll be able to have procedures for your DH through them, just the IVF cycle. (I could be wrong, but we didn't think that was an option for us)
    Last edited by peoniesarepretty; 20-06-2012 at 14:14.

  2. #42
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    Hi just wondering if anyone is still on this thread? We have just found out my DH who is 27 has azzospermia. We have been seeing Dr Peerson at SIVF has anyone seen him? He has had all the gentic testing done and that came back fine, his FSH level was 31 I think ( that was from me looking over the desk so i could see!). He has now referred us to see Dr Golovsky to look at getting the biopsy done. We hope that maybe they will find some sperm with that, but from all I have seen it doesn't look promising. This has been the most devasting news.

    They have told us to think about the donor idea and when we go see Dr Golovsky in January we should meet with the counsellor at the same time and have a chat with her.
    Has anybody used donor and how did you come to that decsion? And if you have how have your husbands dealt with it?
    How do they feel about it once the baby arrives?
    I know my DH is a great man and I think that shows in his ability to agree to the donor because he can see more than just his need to pass on his genes.

    Any help in this area would be greatly appreciated xx

  3. #43
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    Dr Golovosky is apparently the man to see. We finally will have our appointment to see him at the end of this week!! It has been a 3 month wait to get in to see him. We have also had a consultation with Dr Lok who apparently does a similar procedure to Dr Golovsky, but from what I've heard, Dr G is the best.

    Dr G and Dr L do a procedure called micro-dissection that none of the other MFI specialists do. All the others do aspirations, TESE, TESA etc, but only Dr G and Dr L do micro-dissection. It's the last chance for our own genetic baby, before using donor sperm. The micro-dissection procedure is also a "once-off" procedure. Both receptionists have said that Dr G and Dr L will do it once, if it doesn't work then it's onto donor sperm. It's a very invasive prodcedure, so requires time off work and healing time afterwards. But my DH is up to it. I'm so proud of him!! Well I've had plenty of jabs, so it probably equals in the end!!

  4. #44
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    Hi thanks for the reply I was begining to think no one would get back to me! We also see Dr G this week!! Very much looking forward to it. Do you have any reason for your DH azoo? I see you have had a few goes at ISCI. We have put our name on the donor list. Dr Persson told us we have a less than 20% chance of finding anything so we thought we better get on now to lessen the waiting time and then if the micro doesn't work we have got something to fall back on. Its a heart breaking journey but over time the pain gets less. Im just looking forward to something happening soon!!

  5. #45
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    No, they can't find any reason for DH's azoospermia. He had mumps as a child, but we've been told by a couple of specialists that that would only affect sperm if he had had mumps during teenage years. All chromosome levels, blood tests etc are normal. They basically just said that it happens!!

    Yes, I agree, it has been most devasting for us too. I just couldn't believe it when DH told me. I cried constantly for the first six months, no joke, I've cried through every appointment, including with counsellor #1 where I thought she would write me off as being unstable!! It's been 10 months now, and though I'm still incredibly sad, and still cry, at least I don't go into hysterics like I used to!!

    Has any sperm been found? My DH has done a number of ejaculates, finding literally 1 or 2 each time. None of these have been of good quality - most have had big heads but no tails!! DH has also had aspirations and biopsies, but these have found no sperm. The micro-dissection procedure is the last chance. As there has been 1 or 2 sperm in the ejaculate, then there is a possibility. As for percentage chances, others have said that Dr G told them it's about 50%, but of course, that would depend on each individual.

    We want donor sperm as our back-up, so we don't waste a cycle with fresh eggs (hopefully) in case Dr G doesn't find any useable sperm. And we want a baby. Surprisingly my DH is totally at ease about using donor sperm. I think he wants a baby just as bad as me.

    I've gone through lots of ups and downs already about how I'm going to feel about a donor sperm baby, and how DH will feel. I've read lots of comments from people who had the same concerns, but when the baby came along they both love it to bits, so I want this for me too.

  6. #46
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    Hi mcg Bertie how did you get on with dr g?

  7. #47
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    Even though we were impressed with Dr L, we have now been to see Dr G and have decided now we will definitely go with him. He ordered a couple more blood tests for DH, which hadn't been done at either of the other two clinics - microdeletion of the Y chromosome and inhibin B, but was happy that we had come to him with so much information.

    I was quite surprised with how confident Dr G was that his micro-dissection procedure would work for DH. Up to now DH has only ever produced 1 or 2 swimmers in each ejaculate (plus a few other non-swimmers), but Dr G firstly said that our chances were "very good", then later he said "excellent", and then later said he thought we'd even have one or two lots of extra sperm to freeze!! DH was so happy that afternoon since hearing this - he didn't stopped making comments like "we're going to have our own baby", and I haven't heard him say this for a long while. Me, I'm still slightly sceptical that we can go from our usual 1 or 2 sperm, to getting enough sperm to have extra left-over to freeze! DH even told my Mum today that Dr G will have 3 straws for us, so I had to remind him on the way home that that wasn't actually what Dr G said, but I'm happy that there's hope on the horizon still for us.

    A few things mentioned with Dr G. He told us he's been doing micro-dissection for 3 years now, and is now presently training up a couple of other doctors to do the procedure. We talked about Dr L, and he said that he's excellent, and queried why we'd come to him when we'd already had a consult with Dr L, since Dr L also does micro-dissection. Dr G said he highly regards Dr L, but I said that we'd heard that he (Dr G) was the best. He was very modest and quickly moved from this. He looked at DH testosterone and other levels, and agreed that DH should continue taking arimdex (anastrozole) saying that it can have very good benefits in sperm quality, and certainly has no side-affects.

    Interestingly, Dr G queried the diagnosis we'd been given that DH has "maturation arrest" as he basically said that if we have 1 or 2 sperm, then it's low numbers rather than maturation arrest. He was very confident that if DH had previously had 1 or 2 sperm in the ejaculate that Dr G would find lots in the tubules. Let's hope so.

    Dr G will be away for a few days in the middle of Feb and then again in the middle of March, so we're hoping that his absence dates don't clash for when we want to do the procedure, as the micro-dissection has to be on the same day as my EPU day. Another lady hear says that since I will be on the long down (agonist) cycle, that the clinic should be able to get the dates to work, so that will be good news.

    Now, we will go off and enjoy our two week holiday to Tasmania, see when AF next arrives, hope that our name gets to the top of the donor list and doubly hope that dates fall into place at the end of January.

    Twosouls... how did you go with Dr G?
    Last edited by MGC Bertie; 27-12-2012 at 21:04.

  8. #48
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    Hi so glad to hear your great news!! It sounds very promising for you. The fact that your DH has had a few swimmers come out means there must be some in there. Sounds like you have a great chance of having your own baby!

    We found Dr G great as well. He is a lovely guy and seems to really know what he his talking about. Things for us were'nt quite as positive. He said that we are'nt in the worst position but not in the best either.

    My DH inhibin B level is below 10 so he said that is'nt a good sign but he said his testes volume works in his favour, and his testerone needs to be rechecked because it was a little low but they tested in the afternoon and he says that could be the reason for that. He did a maths equation to figure out what our chances are by using his FSH level, Inhibin level and testorone level. I think it is around the 20% level which was what Dr P originally said.

    Whenever he has done a sperm sample he has ZERO sperm! He has done 3 now and all the same! Not one little sucker in any of them. He said this is something he has had all his life and came about when he was developing in the womb. His brain just doesnt connect with his gland to tell them to produce sperm and it never will. I asked was this something that one day might right it self but it wont.

    So he said we will go ahead with the surgery just to have a look and see if there is anything in there. Im not overly hopefull that it will work i think I have just read to much and in all the reading I haven't come across anyone who has found any with levels like his. Dr G said it is most likely Maturation Arrest or Sterloi Cell Only . He asked if we were on the donor list yet and we are, we signed up in early December. So now we just wait.

    We are going back to see Dr Persson on the 8th of Jan to get the cycling organised. Since I have a slightly low egg count they want to test at the begining of the cycle to see if its a good month. Im due on the 10th of Jan so it would be really good if next month they could go ahead with it.

    How do you know if you would be on the long down cycle???

  9. #49
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    Twosouls.... sorry that Dr G couldn't be as promising as he seemed to be with us. There are two other ladies on here, who both said Dr G gave them 50% chances, which seemed good, but they were both unlucky, so it seems it could go either way. I'll have my fingers crossed for both of us.

    As to cycles.... I was on the "flare" cycle for IVF/ICSIs #1 + #2, but when I went across to IVFA Prof Illingworth immediately said he would do that again, and would do the "long down" (agonist) cycle. My understanding, is that they look at all various levels, and if you've had IVF before they look at how you responded and go from that. It seems many women on here are doing the "long down", so I'm not sure why my first FS said to do the "flare", and as I didn't know any different at the beginning of this journey I didn't question it.

    Are you going to go ahead with the micro-dissection without donor sperm as backup, or will you wait until your name comes up to the top of the list?

  10. #50
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    Hi Mgc

    We are going back to see our IVF Dr next week and are going to have a chat to him. When we saw him last time i asked about doing the micro with a donor back up but he told us at SIVF they wont do it with a donor back up because it was too emotional not finding any sperm. But I would think it would be better to not waste fresh eggs then to freeze them then get them back out a few months later. We have already accepted the idea of using donor so I dont see the issue. Have you been to the counselling sessions yet?
    We put our name down in early December.
    How does the list work exactly? We never really asked much then thought we would wait till we were closer to the top. When you reach the top do you have a few donors to choose from? Or is it just each one as they come up? How long is the wait?
    We just knew we wanted to get our name on the list as soon as we could so when we need it we will be close to the top


 

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