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  1. #241
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    bbhope - my husband has Sertoli cell only syndrome. He does not have undescended testes, or any other apparently problem. There is usually no known reason for Sertoli cell only - they have not yet discovered what causes it.
    I can't remember where you are, but yes I definitely recommend seeing a urologist. Dr Golovsky (in Sydney) was the most useful doctor we saw. He's really the expert & has done a lot fo work in this area. I wish you good luck.

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    littlesunflowers is offline It's not about the seeds - it's how you grow the flowers
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    bbhope I am sorry you have to wait longer. I hope the specialist in July has better answers for you. I can't imagine that the urologist would have declined to see your DH if the lump was at all concerning, but you can also mention it in July. If you aren't happy with the answers you're getting you should keep asking.

    Thanks for asking about our IVF - we got 4 embryos and hope to do a transfer in a few days.

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    MGC Bertie  (03-06-2013)

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    Quote Originally Posted by peoniesarepretty View Post
    bbhope - my husband has Sertoli cell only syndrome. He does not have undescended testes, or any other apparently problem. There is usually no known reason for Sertoli cell only - they have not yet discovered what causes it.
    I can't remember where you are, but yes I definitely recommend seeing a urologist. Dr Golovsky (in Sydney) was the most useful doctor we saw. He's really the expert & has done a lot fo work in this area. I wish you good luck.
    We are in Perth. Unfortunately (or fortunately), I was told that there is one very old doctor who specialized in MFI in Perth. The only down side is that she only does TESE not mTESe (as far as I know, we are yet to see her in July). We are crossing our fingers that this won't be needed for us......

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    Quote Originally Posted by littlesunflowers View Post
    bbhope I am sorry you have to wait longer. I hope the specialist in July has better answers for you. I can't imagine that the urologist would have declined to see your DH if the lump was at all concerning, but you can also mention it in July. If you aren't happy with the answers you're getting you should keep asking.

    Thanks for asking about our IVF - we got 4 embryos and hope to do a transfer in a few days.
    How is it going?

    Ya, we are surprised that the urologist didn't want to see DH. On the other hand, maybe we are lucky. One lady on the other forum thread mentioned that the urologist they saw didn't even find out the problem. They spent a fortune on those visits and was told to find a donor in the end. When they saw the FS, the FS found out the problem straight away. The worst is that the urologist supposes to be one of the best in Perth. Now, hoping we are in good hand next.

    On a separated matter, when did you ladies tell the family about the fertility problem? I figure it won't be easy............... also, some men are really ashamed of the problem.......

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    Bbhope....we told our parents about our fertility issues, just before our first EPU, mainly as I was freaked out that something bad would happen during EPU, and I wanted them to know that I would be going into hospital. My parents were very supportive, and my Mum was particularly glad that the main issue was DH's MFI, as I've had plenty of my own issues in recent years, and I don't think she could have coped to hear of more medical issues for me!!

    My DH hasn't been ashamed at all, though he doesn't say very much to others, apart from generic "it didn't work" etc

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    Bbhope I hope you get more answers in July. Have you considered doing a cycle in Perth and trying to tie it in with a MTESE here in Sydney? I know it seems like a lot but if Dr G can't find anything in that surgery than at least you will know you have tried everything you could. Hopefully it doesn't come to that and maybe they will find some with a biopsy.

    Our immediate family know what is going on but that's it. We have quite a large extended family so don't really want it to become gossip or have people constantly asking where we are at and if we are pregnant or not. I think once we do get pregnant and have a baby we will be open with people about how it came about. But until that happens I'm happy to keep it just family.

    So I go for a blood test on Wednesday to see if I ovulate this month, I'm not holding out much hope. I think I will need some low dose fsh to bring it on, but we will see....

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    Bbhope I hope you get more answers in July. Have you considered doing a cycle in Perth and trying to tie it in with a MTESE here in Sydney? I know it seems like a lot but if Dr G can't find anything in that surgery than at least you will know you have tried everything you could. Hopefully it doesn't come to that and maybe they will find some with a biopsy.

    Our immediate family know what is going on but that's it. We have quite a large extended family so don't really want it to become gossip or have people constantly asking where we are at and if we are pregnant or not. I think once we do get pregnant and have a baby we will be open with people about how it came about. But until that happens I'm happy to keep it just family.

    So I go for a blood test on Wednesday to see if I ovulate this month, I'm not holding out much hope. I think I will need some low dose fsh to bring it on, but we will see....

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    Two souls, I don't know how it works to see a FS locally and then do the procedure in a different clinic. I am hoping that we won't have to go down this path. Funny enough, because of the business trip, we have to wait until July to see the local FS. In fact, both of us will overlap a week here in Sydney and yet can't think it would work out the long distance visit with Dr. G in the long run. So near but yet so far to do anything at the moment.

    Good luck on the blood test tomorrow.

    We got the run around by the GP again! DH was reluctant to go back to the GP who referred him to do the SA so we picked a new one for him in a different clinic. We are so done with this new GP (DH 2nd visit). First referred him to the urologist who didn't want to see him. (Wish they would give a refund for an useless referral.) DH has no choice but to go back and pick up the ultrasound report. GP didn't make any comment because he didn't know what those medical words mean (oh dear...you thought they have at least basic knowledge to know what those medical words mean). He wrote the FS referral for him but refused to write my name on the same referral. The FS even told us to make sure our names are on the referral. In one way, it makes sense that they dont' write referral for the spouse. However, when I asked a referral to see a gynaecologist for fertility issue from my GP last time, she even wrote down hubby name without me asking so he won't have to go back separately for another one. Sorry for the rant......so frustrated about the overcharged GP and yet do nothing more to help. Everything is out of pocket due to not in the medicare system.

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    bbhope - you really are having the run around. Definitely time to find some good medical professionals on your side. Unfortunately we probably live as far apart as possible in Australia, so no recommendations from me.

    In terms of referral to the FS, the entire time my DH's name has never been on the referral, despite our issue always being azoo. (use to annoy DH no end that he was the issue and was never acknowledged). So good luck with the referral my guess is the FS will want one with your name on it.

    Not sure who asked - in terms of telling people. I can't really remember when we told. I don't think it was right at the beginning (as we probably assumed it wouldn't take took long). By the end I was open with everyone. However I was usually fairly non specific about individual cycles. There was enough pressure on me (from me) without needing to know that everyone would be wanting to know the outcome the same day as me. Even those that did know specifics I would always tell them the test date was a few days later than it really was. That gave me time to process the outcome without having others on my case. Except my BFP when I ran around like a mad woman screaming and range half my address book. I was so excited I think I even told randoms in the street.

    Sorry I don't post much on this thread. We had many years of trying different things with DH, but eventually came around to using donor. While we haven't seen this little one just yet, it is clear to me that DH absolutely considers her to be his. While I'm sure there will be some issues along the way I'm absolutely convinced we have done the right thing. If you are facing this situation I am more than happy to discuss issues further. Feel free to PM me if you want.

    Best of wishes everyone.

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  13. #250
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    Bbhope.... you certainly are having a frustrating time. I do know how important it is to have both names on every referral as it certainly saves a lot of hassle. Thankfully all of our GPs haven't had a problem with that, and most just write "... and partner" and the IVF people are happy with that.

    Twosouls... I must have missed it, but I've just read in your signature about the results of your recent cycle. I was quite keen to see what happened when they defrosted your eggs, since most FSs seem fairly reluctant to do this, so it's good to see that 3 survived the thaw and 1 even made a blasty. Sorry your transfer had to be cancelled, but hopefully that means it will go well next time.

    AFM.... we had our consult with our FS last week, and discussed a whole page of questions I'd had written down for him!! In the end we've planned our next cycle, and surprisingly are not going with the long, down-reg cycle, but going with a shorter cycle, as I had the most eggs on a short cycle, so the FS is keen to try that. We're going to stick with Menopur, as FS adamant that it really is the best for egg quality. We discussed using DHEA, but FS said he prefers testosterone gel that you rub in the back of your hand, so I'm giving that a go for four weeks before starting the next cycle at the beginning of July. I am happy to be doing some different things this time, in order to hopefully get a BFP next time. Interestingly, I asked about successes others have had with the same donor sperm as us - apparently three others have used it once each, but all BFN. FS said too early to discount it after just 4 tries (once for each of us), but I think it will be a question I'll raise again if the next cycle is a BFN too. Has anyone else asked how other recipients have gone?


 

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