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  1. #191
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    Smik You have had a rough run, vent away. When my DH and I found out about the azo it was completely out of the blue. I have irregular cycles so it was assumed the problem was with me, but my GP couldn’t give me a referral without a sperm test. I wasn’t even with DH when he went to pick up the results. Instead he called and told me when I was out at dinner with work colleges. Don’t know if there is a good way to find out. We did the TESE surgery with Dr G and didn’t have any luck I do feel better knowing we exhausted all avenues there. It’s great that you have people who offered to donate. My DH doesn’t have a good relationship with his brother and we have decided to go down the anon donor path, while it was really daunting to begin with I’m comfortable with it now. It is a long process though for both known and unknown donors. Best of luck with the surgery.

    bbhope The initial shock is hard, take some time to process it. I’m afraid I don’t know the specialists in Perth. Feel free to join us. It does help to lighten the load.

    AFM – I'm on day 8 and had my second blood test this morning. My oestrogen levels are slow to rise again so they will probably postpone my EPU from Friday to Monday I won’t find out until my first scan on Wednesday. More side effects this time, headaches etc but it is all manageable. I’ve just come back from a weekend in the Southern Highlands with family. It is so pretty there this time of year, it has done wonders in bringing down my stress levels.

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    bbhope  (17-04-2013),MGC Bertie  (15-04-2013)

  3. #192
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    Sweet... hello cycle buddy. My EPU will be Mon too (though possibly may be Wed, depending what first scan on Wed says).

    Otherwise I'm going fine and so are
    the jabbings. Managed to sneak out of the wedding on Saturday night (DH set his phone to ring at the right time and went outside to answer the pretend phonecall - he got the syringe ready while I continued dancing and then I excused myself to the toilet!), then last night coming home from the city, had to stop in a McDonalds carpark to "shoot-up"!!

  4. #193
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    Hi Sweet

    Good luck with your cycle & thanks for your support! Just over 4 weeks to go for us till the micro. Hopefully May is a lucky month for everybody

    Hi bbhope

    unfortunately I can't recommend any doctors too as our are Sydney based.

    In regards to DH, Over time hopefully he will become a lot more accepting of things & open to different ideas. When this all started happening for us my husband suggested using his brothers as donors, I just remember freaking out & having panic attacks, I didn't want to talk about or even think about it, how my thoughts have changed now. For the 3 years that our story has been dragging on we have really taken the opportunity to enjoy our life E.g. Lots of weekends away, holidays. This has helped immensely as well!


    Big hugs to you

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    bbhope  (17-04-2013),MGC Bertie  (16-04-2013)

  6. #194
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    littlesunflowers is offline It's not about the seeds - it's how you grow the flowers
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    Hi bbhope

    First, to you and your DH. I hope you are both coping ok, despite the huge shock. I'm afraid I don't know anything about the Perth specialists either, we're on the other side of the country. But there is a lot of knowledge on these forums so if you need to ask questions about your treatment as you go through, advice and support are available.

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  8. #195
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    Hi bbhope,

    I know the initial shock you and your DH are going through. The diagnoss came as a complete shock to us. There was nothing at all that led us to believe my Dh would be infertile. Some many tears where shed during those weeks. What mad me feel better was that we had a plan in place. Before we got the results back from the second sperm sample we had already made an appoinment with a fertility specialist whose area was male infertility. Lucky we got into him two days later.

    I dont know any drs whose area this is in Perth but im sure if you do a google search something should come up. The first appoinment is to get some bloods taken to check its not a chromosone issue and to check his hormone levels. Try to make sure they test his FSH level and LH level. They might also look at his area and check the vas is there because if you have that missing he could be a cystic fibrosis carrier. After that they may decide to do a biopsy and see if they can find any sperm.

    We saw Dr Golovsky for a micro dissection. Im not sure if Dr Golovsky and Dr Lok who is also in Sydney are the only ones in the country that do this surgery? Do you know if thats the case Bertie?

    For us the micro was the first thing that was offered and we knew if they were going to find anything it would of been in that surgery. Unfortunalty they didn't but knowing the final decision has helped us cope with it. The unknown is the worst.

    Talk to each other about everything you are feeling and you will get through it. It doesn't seem like it now but you will get through it and be happy no matter the outcome x

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  10. #196
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    Bbhope.... yes two souls, apart from Dr Golovsky and Dr Lok (both in Sydney) who do the micro-dissection, the only other one I've read someone mention on Bubhub, is up in Brisbane (or perhaps it was the Gold Coast), but that doesn't really help you Bbhope. There are some forums on here for WA and Perth ladies, so perhaps go and ask some questions there to see if they know anyone who does the "micro-dissection" (also know as "micro-TESE").

    If that doesn't work out, I have read previously about some of the Perth ladies signing up with IVFA here in Westmead (Sydney), doing BTs and various checks in Perth, and then flying to Sydney to actually do the micro-dissection and EPU. It's not unheard of, and some consultations with the FS can be done over the phone.

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  12. #197
    littlesunflowers's Avatar
    littlesunflowers is offline It's not about the seeds - it's how you grow the flowers
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    Perhaps it would help to know that our mTESE wasn't done by FS - he did a TESA, but referred us to a urologist for mTESE.

  13. #198
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    thanks all for your input. We simply don't know where to start. We need to go back to GP and ask for a FS referral? or the GP can order some other basic tests? The GP ordered FSH test to check if i was ovulating last month and the test came back fine. That's also when we found out about the Azoo. I am not sure how accurate the test result from a normal lab. We are still hoping it can be some sort of mistake!

    Couple months before this, I requested the GP to refer me to see a gyno because I had irregular bleeding for few months. I didn't end up going to see the gyno because the irregular bleeding went away. Also, mainly because we don't have medicare and private insurance isn't going to cover any of this (considered as unnecessary medical examination). I am not very impressed about the gyno recommendation. Since I didn't provide a name, the GP just pulled somebody out of the book. Nobody has heard of this gyno before and the waiting period is relatively short so it might mean that this particular gyno is not very popular.

    So I guess the next step is to find a good urologist/FS to perform the rest of the tests? Advice?

  14. #199
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    littlesunflowers is offline It's not about the seeds - it's how you grow the flowers
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    Our GP referred us to a specialist but she also ordered more tests for us while we were waiting to get in for an appointment (it took about 10 weeks). They were for hormone levels (LH, FSH, testosterone etc), karotype/chromosomes/DNA fragmentation, and various other things that FS recommended to her over the phone. It meant that he had a bit more info on us at our first appointment. There will be other Perth ladies somewhere on these forums - maybe you could start a new thread asking for recommendations for specialists (in the IVF forum area of BubHub)? I can see some old threads on that topic but nothing recent.

    At some point you will probably get a sperm analysis done in a fertility lab because there, they will look harder. Are you aware yet that there are many different causes for azoospermia? Sometimes they can retrieve sperm to use in IVF/ICSI - it depends on the cause. I started my own thread when we were diagnosed and people gave me some useful info back then - it's at http://www.bubhub.com.au/community/f.../t-442524.html The most useful website I've found on MFI so far is this one: http://www.ivf.com/ch8mb.html

    Last edited by littlesunflowers; 18-04-2013 at 00:32. Reason: late, can't spell!

  15. #200
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    Thanks littlesunflowers. I found the Perth IVF forum on bubhub. It isn't specifically for azoo but the ladies there are replying. DH isn't really wanted to talk about it since knowing the test result. Honestly, I was hoping (relatively speaking) a low count result rather than azoo.
    After many months of trying, I was ready to move forward so went with the the basic FSH test. When I mentioned IUI/IVF just before the SA, he really didn't want to think about these options (masculinity problem). Thus, it takes longer for him to sink in the news. So I am going to wait until he is ready to talk about this and move forward together. It sounded like going to see the GP first would be the first step.


 

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