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  1. #101
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    Hi EternalOptimist,
    No acupuncture, just been taking my pregnancy multivitamin as usual. I've read on other threads that kiwifruit is good post-ET, so I've been eating them. I had 2 days off for EPU, the day of the pick up and the day after. ET was a morning appointment, I went to work straight after that.

    My thoughts exactly on the TTC naturally and months of TWW's. All that time we tried and little did we know there was never gonna be enough swimmers for even one to get through. Not to mention all those years on the pill prior to TTC, and worrying if I forgot to take some... if only we'd known DH had built-in birth control the whole time! Oh well, we're on the right path now

  2. #102
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    Congrats lindylou on that boatload of blasties. You must be wrapped. I cant believe you went back to work after EPU. I would like to take the day off I think but I don't need to worry about that just yet!

    EternalOptimist, how bad is it now looking back on 'natural TTC' and symptom spotting only to realise that it was NEVER going to happen that way. I'm a few days late this month and I even thought last night I wonder if a stray sperm got through Guess you just cant help it but I wish I had of gone with my instinct and got help back in Feb when I knew there was something not right!

    Belz, I hope you have managed to get the FS to give you a better explanation of whats going on. Stay strong.

  3. #103
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    Hi Everyone. Just bumping this thread up. How are you ladies all going?

    My DH has been diagnosed with azoospermia. He's had the fine needle thing, and then a biopsy and still no sperm at all. We were basically given no hope at that point. But we were then referred to Dr David Golovsky (has anyone else seen him?) - he has been doing a lot of work in this area. He ran some chromosome tests on DH and rang him with the results - he is hopeful and thinks there's a 50/50 chance he could find some sperm. Our appointment with him to find out more is this Friday.

    Anyone else dealing with MFI issues at the moment?
    Last edited by peoniesarepretty; 11-01-2012 at 19:38. Reason: Spelling

  4. #104
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    Hi peoniesarepretty,

    Wow, this thread brings back memories! I'm still here & still waiting for my BFP, up to my 6th cycle now. But that's not all because of MFI, I had some undiagnosed female factors.

    Sorry to hear about your DH's azoospermia, I can only imagine how tough it must be to deal with that kind of news . But great to hear your new Dr thinks you have a 50/50 chance! Good luck on Friday

    Have you & your DH talked about using a donor if things don't go your way?

  5. #105
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    Hi Lindylou,

    Thanks for the reply! Wow - 6 cycles, I can't imagine what that must feel like. I wish you all the best. Hope you get your BFP this time!

    We have certainly talked about donor sperm. Because we previously thought there was no hope for DH, we had already decided to go ahead with that. I just needed to recover from the myomectomy I'd had first, then we were going to proceed down that path. In the meantime, it was suggested we see this other doctor ... and he seems to have some hope. He presented his most recent results & findings to the World IVF Congress just before Christmas, so we have a good feeling that he's on the cutting edge (no pun intended!) of these procedures.

    I think they'll basically have to start me on a cycle, and do the procedure on DH on the same day they do egg retrieval. And we like hell they find some sperm in DH to use. If not, we prob need donor sperm ready to go as a backup.

    Does anyone have any tips on how to proceed with this, in Sydney??

  6. #106
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    peoniesarepretty

    We LOVE Dr Golovsky.

    We did a cycle in August 2009 that sounds like what you're attempting.

    Dr Golovsky was pretty certain that based on DH's hormone levels and a grope of his testes that he would be able to get something with microdissection. So we did a stim so that we wouldn't have to put any of the precious sperm through a freeze-thaw. It had to be a down-reg cycle so that we had the best chance of getting my egg timing right for when Dr Golovsky was available for DH's surgery.
    I don't know what anaesthetic they normally use, but DH had a spinal block to prevent autonomic dysreflexia (an out of control reflex reaction that affects some people with spinal cord injury).
    My FS doesn't operate at Greenwich, and the Dr who ended up doing my egg collection turned out to be my sister's old FS.

    Unfortunately we only needed the one microdissection because Dr Golovsky diagnosed Sertoli-only syndrome (only the helper-cells exist, none of the cell type that develops into sperm are present).

    BUT, they froze my eggs (unfertilised eggs). Egg freezing was still experimental then so it was free.
    We did our first cycle with donor sperm in October 2010 and used both a fresh batch of eggs and the frozen eggs so as to get the most out of the vial of sperm (because they don't refreeze it). My FS really, really wanted the frozen eggs to work so that he could get some FS-world fame (along the lines of a journal article or conference presentation or some such thing).

    I don't have a happy ending for you. We're still TTC#1 and have been told to give up on my eggs if our January 2012 cycle doesn't work.

    I hope you only need the one microdissection because you get pregnant first go.
    Good luck.

  7. #107
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    Hi Felicita,

    Oh, thank you! I'm so glad to hear of another experience with Dr G. I couldn't find anyone mentioning him. Very sorry to hear you guys have had no success. Really hope it works this time! Did you have to do your IVF cycle with IVF Australia when your DH was having the procedure with Dr G? Or will he work in conjunction with anyone?

    I haven't seen anyone there myself yet (except going with DH to see Dr G.) - we had previously seen Mark Livingstone at Genea regarding my fibroids because he's who my GP initially referred me to. We both really liked him, and his follow-up is excellent. He's the one who ordered all the tests for both of us, just to check if everything was ok before I had the surgery. We never actually got to start trying the "romantic way"! I went to my GP to say we wanted to start trying, so to get a pap smear & any vaccs etc, and she came across the fibroids & sent me to see Mark. Turned out DH had no sperm & Mark referred him to Dr Derek Lok. It was Derek who did the needle aspiration and then biopsy and didn't find anything at all. The tests on the tissue came back saying I think something similar to what your DH has. There are no germ cells (does that sound right?). Derek didn't really give us any hope after that. He mentioned the more invasive procedure, but estimated only a 5% chance of finding anything. We didn't think that was worth it & so came to terms with it & discussed donor sperm.

    It was only on the follow up visit to the gyno surgeon after my surgery - he asked us about our TTC situation and we told him all this. He rang Dr Golovsky on the spot and told us to see if he could help. David reviewed all DH's previous results, then ran a chromosome test (this was apparently the key piece of info) - and said he thinks he has 50/50 chance of finding any by doing the more invasive procedure, as I think he has been having very good success in his recent trials. I'm guessing that is the microdissection? (if you don't mind me asking, was this very expensive???) Or maybe it's a new procedure he's been doing. I feel much more confident having him do such a procedure, as he certainly seems like the expert and he is a very experienced urologist. Dr Lok was very nice & did seem to have a good idea of what he was talking about, but he is not a urologist. He is a gyno/FS who has developed a special interest in mens' problems.

    May I ask, where did you get the donor sperm from? It seems to be quite difficult.

    2011 was such an awful year for us - we're really hoping that 2012 will be fantastic! I hope it will be for you ladies too.

  8. #108
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    Peoniesarepretty- I truly hope you are never in a situation where you're facing cycle #6 yourself. Thanks for your well wishes for this cycle! I haven't ventured far enough down the donor avenue yet, so I'm sorry that I can't offer any advice in that regard. So glad that Felicita has stopped by, she is our resident expert!

    If you'd like, come join us in the Sydney IVF thread. Its a good place to hange out while you're waiting around to start cycling

  9. #109
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    peoniesarepretty - We also didn't get to try romantically before heading to IVF. We have been with IVFA the whole time, so I don't know what arrangements Dr G has with other clinics.

    Yes, no germ cells is the same thing. Since a biopsy is a bit random and blind it is possible that a small number of the testicular tubules are functioning normally but that these happened to not be in the path of the biopsy needle. So Dr G peels it open like an onion (so I'm told - I was in recovery from egg collection at that point), has a really close look for the fatter tubules that might have sperm inside them and carefully collects the sperm. It was really neatly done when I got around to seeing it. I don't know about pain, since DH can't feel that low, but he didn't have any dysreflexia after the anaesthetic wore off so we're guessing it wasn't too bad.

    I don't remember the cost, or even if Dr G sent a separate bill. I recall that the anaesthetist only charged the scheduled fee. Also, we have PHI which would have defrayed the cost.

    I think I saw on their website that it is Genea's policy is that you have to find your own donor - that they don't have an anonymous donation program. (I'm not with Genea so I might be wrong.)

    Receiving sperm involves counselling and a six-month delay between sperm collection and when it's made available for use so that the donor can be checked for infectious diseases he may have caught immediately before donating.

    At first we weren't ready to use unrelated or anonymous donor, so we first asked one of DH's cousins to consider it, but eventually he decided that he couldn't do it. Then we asked FIL, who thought he wouldn't be able to (age and vasectomy) but then he agreed to donate by biopsy. There were no other male genetic relations that DH felt the same kinship for, or who didn't have a condition we didn't want to risk passing on.
    (We didn't need perfection. We chose to go with risks of asthma, eczema and Tourettes. We chose not to go with risk of a non-progressing neurological condition that causes shaking and nodding that looks like Parkinsons. It was a case of better the devil you know.)

    We had a lot of waiting while our prospective donors considered the idea. We didn't rush them, and tried not to put any pressure on them. We also got on the IVFA anonymous donor waiting list because we expected we'd grow accustomed to the idea of unrelated sperm. When we entered the list it was about a 12 month wait to get to the top, but a counsellor recently mentioned that they now they source some sperm from overseas so it only takes a few months now.

    We got to the top of the anonymous list during the 6-month quarantine period with FIL, so we got to wait quietly at the top of the list until after using all FIL's samples. Then it took less than a week to see the available profiles, ask questions, choose and be approved for our donor who seemed a perfect match for us. We don't feel like we're "settling" for someone at all.

    We currently have my brother and DH's sister considering donation for us. They seem to be leaning towards the "yes" side, but we haven't received a definitive answer from either of them yet, and are not pushing them for one.

    Whoa - that's a bit of an essay. Hope it helps.

  10. #110
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    Oh thank you so much Felicita! That helps enormously. Yes, your description of the procedure is exactly as it was explained to us. I guess we'll be given more info tomorrow.

    You're correct about Genea - they only do it if you BYO donor. It's a shame beacuse we liked Dr Livingstone so much. My DH is really against the idea of a known donor, as it happens. He only wants anonymous, so he could 100% feel like the father and that there wasn't anyone else around, involved in the child's life. He actually has 4 brothers (one of which is his twin) and was strongly encouraged by Dr Lok to think about his brothers as donors. But he doesn't like the idea, and that's fair enough. I understood that there are some clinics, such as Fertility First, where there's a much larger selection and no waiting list. That's why I was interested in whether Dr G would work with another clinic. But we'll just discuss it all tomorrow and see how it goes. I'm sure IVFA will be for the best, and the city is a better location for us anyway.

    Hopefully Dr G will find some sperm in DH & the donor question will be moot! However, we had already comes to terms with it and decided how to proceed - so we know what we're doing if there isn't any. It has just all been so frustratingly slow. I was given a 3 month recovery time before I could become pregnant, after my surgery. So we thought we'd utilise that time sorting out all the sperm stuff & be ready to go. I was given the all clear to get pregnant anytime by the gyno in November, and we still had no more answers at that point! I was soooo frustrated.
    I am 36 and DH is 38, so every month that ticks past I get a little more anxious. I just know tomorrow in the appointment with Dr G, everything he says I'll be like, "yep yep, let's do it, lock it in. How soon can we do that?"

    One thing this whole situation has made me more aware of, is donation and how valuable it is. Once we've done what we need to and used what we need to, I know I will be donating any extra eggs of mine, to try & help someone else. Well, I do hope there are no undiagnosed problems with me! The only thing I know of that we need someone to get onto is thyroid levels a little bit high.

    Lindylou - thanks so much! After tomorrow's appointment, when we know how we're proceeding, I'm sure I will be making a pest of myself in the IVF thread!


 

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