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  1. #1
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    Default nucal scan cme back abnormal

    Hi i had my nucal scan and blood test last wednesday and last night the Dr rang me and comfirmed the worst that the test came back with some abnormal results . I have to go and have another ultrasound this week some time. I was wondering if anyone else has been through the same thing so i can chat to some one whos been there it's hard to talk to friends who have all had problem free pregnancys .


    ME : 25
    AIDEN : Born 3/10/03
    JACOB : Born 1/7/04


    i couldnt get the ticker to work but i am 13 weeks and 6 days

  2. #2
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    I have pm'd you.
    "God doesn't give children with special needs to strong people; He gives children with special needs to ordinary, weak people and then gives them strength.
    Raising a child with Down syndrome doesn't TAKE a special family, it MAKES a special family."

    *Birth and post natal Doula*

  3. #3
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    Just remember that the dr cannot say with any degree of certainty that there is necessarily a problem. The nuchal scan and blood test comes back with a ratio telling you what the odds are that your baby has a problem....not that it definitely does have a problem.

    In my first pregnancy when i was only 31 I had a triple test result of 1:28 for a risk of Downs and other chromosomal abnormalities. I decided to have an amnio and I also had one with this pregnancy. But in the meantime I got my head round it all by saying to myself that the up side was that 27/28 babies would be abnormality free.

    It is scary though but the hospital should be able to put you in touch with a genetic counsellor who can assist you with making an informed next step decision.

    I am thinking about you - I have been there too and it blows your mind initially until you have got your head round it. Don't panic,

    Amnios really are OK and the results are 100% definitive. - I have had 2 now and I'm a woos!

    Good luck honey

  4. #4
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    Sorry no advice to offer but I just wanted to send you a and wish you all the best.


  5. #5
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    Hey,
    You're not alone. I was told that my baby's nuchal thickness was abnormal during my first ultrasound (EVER). I freaked out, I was still on the bed when all of the sudden the doctor said to me that she should call the hospital and see if she can get some one to see me. I started crying cos I had no idea what she was even talking about. Then I had an appointment made for me a few weeks later at the foetal diagnostic unit, those two weeks were horrible for me I still didnt have any info on what was happening. At the foetal diagnostic unit they did another ultrasound and nuchal went from 3.2 to 1.2. But we were still offered a CVS. We decided that we wanted to know whats going on, so they done the CVS, it didnt hurt and was very quick. Then the next day we got the FISH results which were normal. But we still had to wait for another 2-3 weeks to get the letter confirming that everything was ok.
    To me it was an awful experience and it took me a while to understand that if there was something wrong it wasnt anything that I did or that my hubby did. What ever happends you need to think positive. It is important to talk to people about it, dont keep it within yourself. Everything worked out for me and I hope it does for you too.

  6. #6
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    I know how you feel my scan on the 7 june was not what i was expecting a 1 in 7 chance for trisomony 21 and a 1 in 24 chance for trisomony 18, I went for a CVS yesterday but due to negative rehsus factor they wouldnt do it! so an other two week wait for an amnioscentisis, I was devestated when I had the scan, but i have slowly come to the realisation that nothing is confirmed until the amnio there is a 6in 7 chance and a 23 in 24 chance that it will all be fine and when I saw my OB today he said that he had seen people with a 1in 2 chance and it all was okay. it just takes time to come to terms with it all, the shock, the disapointment and of course you NEVER think it will happen to you I hope it all works out for you!

  7. #7
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    My wife and I have been trying to figure out when to get the Nuchal test done as our Ob gave us the week window for the test but we are unsure of when to start the count.

    Our GP came up with a due date using his little rotating calendar thingy using my wifes last MS of 5 May. However when we were in Newcastle organising our OB my wife had to have an internal ultrasound and the findings of that put the baby at 5 weeks and 5 days when using the calendar method my wife was 7 weeks 4 days at the time.

    So which do we use, the 5 weeks 5 days from the US or the calendar method? We are led to believe that it is a very short window of opportunity to have the NS test done.
    I used to be indecisive but now I'm not so sure.

  8. #8
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    Hi Brooke
    We have had a few of these threads, check out the following, I think it covers your situation:
    http://www.bubhub.com.au/community/f...ht=nuchal+fold

    I'll post more if I come across them

    Cheers

    xkwzit
    FORUM MODERATOR

  9. #9
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    xkwzit
    FORUM MODERATOR

  10. #10
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    I wish you and your family all the best Brooke

    Quote Originally Posted by maverick
    My wife and I have been trying to figure out when to get the Nuchal test done as our Ob gave us the week window for the test but we are unsure of when to start the count.

    Our GP came up with a due date using his little rotating calendar thingy using my wifes last MS of 5 May. However when we were in Newcastle organising our OB my wife had to have an internal ultrasound and the findings of that put the baby at 5 weeks and 5 days when using the calendar method my wife was 7 weeks 4 days at the time.

    So which do we use, the 5 weeks 5 days from the US or the calendar method? We are led to believe that it is a very short window of opportunity to have the NS test done.
    Maverick, dating pregnancy via ultrasounds is not an exact science so if you and your wife know the day of her last period I would go by that.

    "Nuchal translucency screening should be done when the fetus has a
    CRL of 45 to 84mm, which corresponds to 11 weeks and 3 days to 13 weeks and 6 days." http://ranzcog.edu.au/publications/s...nts/C-obs4.pdf

    The blood test is also usually done within a week of the NT scan (a week prior) I think....

    If you are unsure contact your GP or OB
    Also if your wife is not in a high risk category (under 18, over 30-35 or has family history of genetic abnormalities) then medicare will not provide a rebate on the cost of the scan so if you're gonna get it done make sure you book with someone who bulk bills or the costs can be quite high (we were asked for $250 )
    Sammie Steve

    *DS1 - Summer '06 DS2 - August '09*
    *Angel baby - Spring '06*
    Love bears all things, believes all things, hopes all things, endures all things. Love never ends...


 

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