Do you have a child feeding via NGT?

[DaintreeDream]

My DD is fed via NGT and has been since birth. I have hit a bit of a wall with her feeding and was hoping there might be some other Mums on her that are also currently feeding through NGT?

[kiwibird27]

Hi ya, Megan was fed via an NG and NJ since she was 1 week old, she is now fed through a gastrostomy button after having a fundo at 1 1/2 years, she is now 2 1/2, we have never ending feeding issues, In the beginning it was reflux, really severe, so we had to feed her into her bowel, even then she would only tolerate really low volume and would still vomit..... A few parents on her have NG tube experience, just wanted to welcome you... what advice r u looking for????

[Nowhere]

Hey there My dd Miki who is almost three si fed via a Broviack Jejensotomy now and will be for the for seeable future, She was fed Via a NG/NJ until she was 16 months old, then she had a G tube and at 19 months a GJ tube just after he second birthday she had a Jejensostomy but that failed due to complications ( with her not the surgen ) and then he placed the new Broviak J and its works a treat

any questions ask away


Can I ask why is your Little one tube fed

[HunnyBunch]

Hi all,
Thanks Miki's Mum for telling me about this thread. If I'd only looked further

My DS is being NG fed due to a heart condition, and having an infection in the sternum after heart surgery and therefore failure to thrive. It's been a tough road for him and a very long story, but thankfully he's taking the bottle again and we top up what he doesn't take orally.

Anyway, Daintree, ask away.

Thanks, Carolyn

[ReecesMum]

Hi there my name is Lea,

My son is 3 in march and he has been fed via NGT for just over 12 months now as he has always fed very poorly due to issues with his suck and swallow since birth.He does not eat many solids(pureed) as he has a tendency to gag and vomit all the time.We have Relux issues which causes stomach bleeding and is control somewhat by medication(Zantac syrup).He is currently only having btween 150-180mls of pediasure as he doesnt tolerated to much fluids before gagging and vomiting and barely gets 1 pureed meal a day if that.We have a paediatrician appointment at the end of this month to discuss a gatrostomy as he still struggles to gain weight.

[Harps4]

Hi Guys

My little man Kaden will be 1 on Thursday and he was NG tube fed from birth until 9 months of age. Kaden has had 2 open heart surgeries so was behind the eight ball from the start.

Kaden also had aspiration issues (milk would go into his lungs instead of his stomach) which is why we took so long to get off the tube. Also a left vocal chord palsy from his 1st surgery caused many issues.

I cannot praise the help of a speech pathologist and an occupational therapist enough- they got us tube free and i will be forever in their debt for it, they are amazing people.

I also would like to know why your little one is tube fed, it helps us to give some advice if we know more details.

Cheers

Leanne

[mytwoangelsC&A]

Hi all, i have a 1yr old dd who was NG fed from birth till the day after her first birthday. Her feeding problems were related to what i belive her heart surgery in relation to a condition she has called Turners Syndrome. Hubby and i found early on the time very difficult with severe reflux and colic and her total bottle refusal. I found the support from a medical point of view to be very poor in relation to her feeding. I am by all means no expert but am definatly here to listen and offer support to others.

[MeagsnEva]

Hi Daintree :-)
My daughter is 18mths old and has had a gtube button for around 4 mths (she started with a NG tube).
The button has made a huge difference, its much easier to manage! Its comforting to know that she is getting enough nutrition also (although she eats like a pig & is still breastfed!)
Molly has Angelman Syndrome and along with noticing developmental delay at around 6 mths her weight went into decline then. One of the signs (not always) can be failure to thrive.
Good luck with your tube & please message if you have any questions.
Meag