Don't be scared to try again...

**xanthia** · 20-06-2008 17:21

8 years ago I gave birth to my daughter.. she was induced at 42 weeks, and I had had a text book pregnancy...

Due to the great pain brought on by the oxitocyn drip I was given an epidural...

My daughter was born with contractures of all her joints and lock-jawed... none of this was picked up in ultrasounds...

She was whisked away from the delivery suite to "be fed" as she was lock-jawed and unable to attach to the breast.

They wouldn't let me leave the room till the epidural had warn off.. I was going crazy...

When they finally took me to the special care unit she was attached to so many machines and wires.. I was so confused and dazed I didn't know what to think...

She spent the first 6 weeks of her life in the special care unit.. and they kept finding little things wrong.. but never really giving me an answer.

At 6 weeks they finally let me take her home.. still being tube fed.. She woke up the next morning with a temperature of 38degrees so I took her to the childrens hospital. They admitted her and ran lots of tests.. till no answers. She was in and out of hospital for her first 3 months mostly sorting out reflux/ dehydration issues (she was bearly home for more than 1 day).

At about 4 months she started to have seizures (at 3 months she could roll over.. by 4 months she couldn't anymore) she spent most of the next 3 months in and out of hospital (bearly home for more than a day) while they tried to stop her seizures. She as having 3-6 a day and some of them went for over 2 hours..

Finally at 7 months old she had a seizure that went for over 4 hours (while she was in the hospital).. the doctors advised that it was best if I left it in "God's hands now"...

My beautiful angel passed away in my arms at only 7 months old.. still to this day I have no answers.. no official diagnosis..

After 7 and a half years I spoke to my geneticist about the risk of trying again.. he said that I had the same risk as anyone as this was a genetic anomolie and not hereditary..

So we tried again.. I ad more intensive ultrasounds in the hope of picking up any signs of my daughters condition early.. there were none..

6 weeks ago I gave birth to a beautiful baby boy.. he is perfect.. and he now smiles...

I still miss my little girl every day.. but I am thankful of the lovely gift I now have.. my son...

Never give up and speak to as many doctors/ specialist that you can.. If you really want children and you have lost a child for medical reasons don't give up hope...

There are many options out there..

good luck..

**jembelina** · 20-06-2008 17:25

**mummymimi** · 20-06-2008 17:29

Congratulations on the birth of your baby boy. I am so happy for you that such a sad story had a happy ending.

**TwoBlue** · 20-06-2008 17:33

I just wanted to say thankyou for sharing your story with us...

Your precious daughter will always be with you and will always be watching over you and your wonderful son.

**hayleysmummy** · 20-06-2008 17:34

I'm so sorry for the loss of your beautiful girl

Congratualtions on the birth of your son

The message you have sent across is beautiful and I'm sure other mums will benefit from reading your story thank-you for sharing

**Jinglebells** · 20-06-2008 17:47

Congratulations on the birth of your wee man

,

and thankyou for sharing your story of your wee angel

**Christelle** · 20-06-2008 21:14

Thank you so much for sharing

I too lost my daugther when she was 6 months old. She spent almost her entire life at the Childrens Hospital. She had an extremely rare blood disorder and to cut a long story short had a bone marrow transplant. She had a cardiac arrest, in the end.. .we still don't know why.

Anyhow we now have a beautiful healthy baby boy. He has made us smile again.

What area are u from? are you in Sydney?