I have a 4.5 month old daughter who was diagnosed with reflux at 10 weeks. She was continually unsettled, screaming/arching during feeding, vomiting etc.
She was prescribed Zoton which for the first 2 weeks was a saviour (she was happy and relaxed for the first time ever!). Then the Zoton ceased to work and she was prescribed both Zantac (0.5mls three time daily) and Losec (5mg daily) as her symptoms had worsened (so too had the projectile vomiting). She has been on Zantac and Losec (increased to 10mg daily) for a month now and I am not seeing significant improvement (unlike initially on the Zoton) and if anything she has probably worsened. She is still a projectile vomiter (even out her nose) and I have tried multiple formulas including Nan 1HA, S26 AR (suffered an allergic reaction), Soy, Goat, Karicare AR, thickening formulas with Karicare Thickener, Novolac AR and currently Novolac HA which I think is about as good as it's going to get. She has also been seeing a chiropractor for 2 months with little relief. I have also done the 'sleeping on an incline, the being upright after a feed, smaller feeds more often, burping often' etc etc to no avail.
I think if another doctor tells me 'she'll grow out of it, there's nothing we can do' (so far 2 GP's and a paediatrician) without even seriously investigating then I think I'm going to explode! They assume that because she's healthy in size (she now weighs 7.4kg though she is now only averaging 50-80g weight gain a week) that she can't be suffering too bad. The only reason I got her medication changed was because she had a screaming episode and threw up everywhere in the doctor's office .
I've even suggested the possibility of her having an allergy/intolerance which was 'shrugged off' so too a request for further investigation in case there had been more damage from the reflux than thought, or even potentially the thought that it may be something else entirely! I have a Biomedical Science degree and a Masters yet I have never been made to feel so stupid in all my life! My mum has had 5 children and with all her experience describes my daughter as a 'handful' and doesn't know how I cope. Lucky for my daughter, I'm extremely patient and it takes an awful lot to make me crack (though I think I'm getting closer to my threshold!!!). I've even tried taking my mum to see the doctors with me and she came out just as frustrated as I did!
Just recently I have had a couple of people mention that my daughter appears 'yellow' in skin tone (not the whites of her eyes, just her skin) which I too had noticed and I was wondering if this could potentially be from the medications? Her sleeping has become very average (she used to be a great sleeper but now averages 3 40 minute naps during the day and doesn't sleep through the 10-12 hours overnight anymore). I'm just dreading another trip back to the doctor.
Is there anything else you can suggest I do or consider that I haven't already done?
Many thanks in advance.