naomis appt with the speech group..grrrr...

[Teley]

It is annoying when they won't believe the parent. The parent obviously knows best because they're with the child 24/7 and they can see the signs nobody else can! It just frustrates me that students going into the medical proffession are actually taught to disbelieve what patients are telling them and always reject self-diagnosis. That's what they're actually taught, so I wouldn't be surprised, but it does make me angry.
And waiting lists are soooooooo long!
.
I am going to mention what you said about two-language families, because we speak two languages at home, but that doesn't take away from the fact that DS does have speech delay, and it doesn't make his problem any less serious. There is a certain age where speech stops 'developing' in the sense that pronunciation doesn't change, and with age it becomes harder as well, so I wouldn't say their problem should be treated as any less.
But I agree that they whole system itself needs an overhaul, the waiting list is absolutely ridiculous, and then there's the way they treat the patients sometimes!

[naomis mum]

thanks guys for your thoughts...kiwibird...do you live in the liverpool health service area or do you access this service out of area? interested to know...

anyway, here is how we went today with the screening....much better....

so we went to the screening today and i must say i walked out of there happier than yesterdays group information session. The speechy really got a good look at how naomi doesnt use or tries to use language....vertually non existant. She also got a good look at her clumsy awkward walking, falling tripping etc...she was all over the office literally falling over toys, her shoes, herself...it was GREAT because it is exactly what i wanted her to see. Naomi was in fine form and didnt want to perform any of the activities she had planned, but she did interact and she did engage, but just didnt express herself with verbal language, so that was also good. The only thing she said in there was mamma....go figure.

Anyway, i discussed with her my concerns about dyspraxia and she said its a hard one and we went through her history etc. She even watched naomi trying to eat a sandwich while using her fingers to shove it into the correct position to be able to chew it etc...very interesting she said. So she saw her chewing/food issues etc too and even experience two reflux episodes in the office....woo hooo naomi...fine form, just as i said. I couldnt have been happier (isnt it sad to say that but i really wanted them to see all her issues on a whole kwim?).

Anyway, she said i needed to talk to the coordinator about Naomi and the one on one therapy. She did express concerns for her tone, as she was so clumsy and so off balance and said we should definately be getting an OT evaluation.

So when i got home i called the speech therapist coordinator and spoke with her. When they came out a while ago they cancelled her off the multidisciplinary testing (OT, speech, physio and pead) because they thought her motor skills were okay (mind you she stood still the whole visit..so i would love to know how they came to that diagnosis) but now after speaking with todays speechy she thinks she definately needs to be seen and may even be able to do a direct referral to be seen ASAP. Thank God...please please i am so praying for this to happen NOW. She also said that they would discuss the possibility of Naomi needing the one on one speech therapy due to her issues...

so that is where we are at. I feel alot better than yesterday and feel that i was heard and my concerns have been somewhat validated...

[punkbaby]

So frustrating i hope that your next appointment goes well, unfortunately even going private you have to wait for ages to get in as well Hope that she gets the help that she needs

[kiwibird27]

Yes I live in the area

[naomis mum]

thanks guys....

[LivinOnAPrayer]

Nicole im soooooo pleased!!
Thats great news! Well done Naomi lol I know what you mean about wanting her to be at her worst, i hope for that in those instances too. Keep us updated on when she gets in for ot and physio. I hope she gets sorted out