i just wanted to put these disorders, disabilities , things out there to find out if others are affected as i would like to talk more. i did start a thread about them somewhere, but i can't even find my own thread so who else would be able to?
I will let you know i have an almost 5 month old boy. when he was born he had a large head due to large multiobulated arachnoid cyst, these resemble when you blow bubbles and they stick together. after a couple of days he had an ultrasound which showed problems and we were sent to childrens hospital for tests.
that night he had a MRI and it was decided to be best for him to have an operation the next morning to puncture his cysts and allow the CSF to drain into his head. the operation went well.
on the first and 2nd MRI ( this was 1 month after operation) it was noted agenesis corpus callosum. this means that the part of the brain which connects the two halves of the brain is either missing or not formed correctly.
we have another MRI for april to look into this further.
I would like to know is anyone has experienced either of these and would like ot talk, thanks