ReecesMum
08-06-2007, 16:19
First i would like to say i am new to this site,a very nice lady on another forum suggested this site.
Hi,
I'm a 24 year old woman with a 14 month old son who has had problems since the day he was born.I have been looking for a site that i would be able to talk to other mum's with children with special needs,maybe in the hope that someone out there could share the same problems as my son has but i very much doubt this as my son has a rare condition.:no:
Anyways here is my story;
At 39 weeks of gestation;
I went in for a regular check-up at the clinic to be told that my blood pressure was high and i had protein in my urine.I was then told i was not going home,the panic finally kicked in "I was gonna have a baby and i was gonna be induced.
The next morning;
7am:The doctor had told me that i was not favourable but they would induce me anyway.So being a first time mum i trusted the doctors words and boy i was wrong for doing that.Within the first hour i was in terrible pain so they gave me a pethadene shot then within half hour asked me if i wanted an epidural,so i took it.
12 hrs later:
I was still only 3cms dilated and my partner could sense something was wrong so he demanded to see a doctor but the midwifes were telling him it wasn't his decision.Then we finally saw a doctor and he informed us that if i was to go through the whole labour i would end up with a very sick baby.He suggested i have an emergency caesarian,so we decided that was the best option.They prept me for surgery i was awake through it and my son was born at 8:22pm and i just caught a glimpse of him before i was put under.I woke nearly four hours later to see my partner saying goognight to me and that we had a pefect little boy.
8 hrs later;
My son was having seizure like syptoms his sats were dropping and he had trouble breathing and it is procedure to give them anti-convulsants.Mind you none of us were informed till the following morning when my partner came in.
Few days later;
Doctors eventually told me it was a suspected absence of the corpus collosum which would mean he could have a small disabiltie or the worst would be cerebal palsy.And that if he had a relapse it might be more humane to let him go.That was a big desicion but it had to be made.
Few more days later;
We found out that it was not the absence of corpus collosum but the absence of septum pellucidum instead which was not too bad as it only affect mainly the optic nerve giving him SOD (Septo optic dysplasia).Which doesn't explain the brain damage that they had informed us he had.I believe that was from a traumatic birth with lack of blood and oxygen to the brain.
He has hypoxic ischaemic encephalopathy,septo optic dysplasia(SOD),suspected epileptic episodes,severe development delays(speech is a 6 months everthing else is less than 3 month),growth problems head circumference low percentile(2.5cm since birth),weight is low percentile(7.4kg),height is average(74cm).
He cannot crawl,walk,sit up,grab things,say words,hug,play etc
Afterall this he is still my angel.Just wish he could have had a more normal life and been able to see the world through his own eyes.:angel:
ReecesMum.
"I think special kids are only given to special mums."
(A quote from they lady who told me about this site.)
When i read this quote i took a moment to think about it and i realised that it must be true cause not everyone can look after a special kid.Yes its hard but we do it don't we!!!
Hi,
I'm a 24 year old woman with a 14 month old son who has had problems since the day he was born.I have been looking for a site that i would be able to talk to other mum's with children with special needs,maybe in the hope that someone out there could share the same problems as my son has but i very much doubt this as my son has a rare condition.:no:
Anyways here is my story;
At 39 weeks of gestation;
I went in for a regular check-up at the clinic to be told that my blood pressure was high and i had protein in my urine.I was then told i was not going home,the panic finally kicked in "I was gonna have a baby and i was gonna be induced.
The next morning;
7am:The doctor had told me that i was not favourable but they would induce me anyway.So being a first time mum i trusted the doctors words and boy i was wrong for doing that.Within the first hour i was in terrible pain so they gave me a pethadene shot then within half hour asked me if i wanted an epidural,so i took it.
12 hrs later:
I was still only 3cms dilated and my partner could sense something was wrong so he demanded to see a doctor but the midwifes were telling him it wasn't his decision.Then we finally saw a doctor and he informed us that if i was to go through the whole labour i would end up with a very sick baby.He suggested i have an emergency caesarian,so we decided that was the best option.They prept me for surgery i was awake through it and my son was born at 8:22pm and i just caught a glimpse of him before i was put under.I woke nearly four hours later to see my partner saying goognight to me and that we had a pefect little boy.
8 hrs later;
My son was having seizure like syptoms his sats were dropping and he had trouble breathing and it is procedure to give them anti-convulsants.Mind you none of us were informed till the following morning when my partner came in.
Few days later;
Doctors eventually told me it was a suspected absence of the corpus collosum which would mean he could have a small disabiltie or the worst would be cerebal palsy.And that if he had a relapse it might be more humane to let him go.That was a big desicion but it had to be made.
Few more days later;
We found out that it was not the absence of corpus collosum but the absence of septum pellucidum instead which was not too bad as it only affect mainly the optic nerve giving him SOD (Septo optic dysplasia).Which doesn't explain the brain damage that they had informed us he had.I believe that was from a traumatic birth with lack of blood and oxygen to the brain.
He has hypoxic ischaemic encephalopathy,septo optic dysplasia(SOD),suspected epileptic episodes,severe development delays(speech is a 6 months everthing else is less than 3 month),growth problems head circumference low percentile(2.5cm since birth),weight is low percentile(7.4kg),height is average(74cm).
He cannot crawl,walk,sit up,grab things,say words,hug,play etc
Afterall this he is still my angel.Just wish he could have had a more normal life and been able to see the world through his own eyes.:angel:
ReecesMum.
"I think special kids are only given to special mums."
(A quote from they lady who told me about this site.)
When i read this quote i took a moment to think about it and i realised that it must be true cause not everyone can look after a special kid.Yes its hard but we do it don't we!!!