MRI today

[rollercoastermum]

My daughter aged 7 had a brain MRI today under a GA.
They also took lots of bloods to do many different tests on including chromosomal and the likes.
I dont know how long it will take for the results.
She has global deveopmental delay, hypermobile hips/knees/ankles, hearing loss, food allergies, squint, speech issues, low muscle tone, ASD characteristics, Cafe Au Lait spots and more..
She has a history of having seizures although has been seizure free since around 20mths of age. Her first seizure was when she was 3 days old.
It was thought at one stage that she has cerbral palsy but that is not so..

I hope the results from todays tests dont take too long to come through...:fingerscrossed:

[studyingECS]

:fingerscrossed: that everything goes well:hugs:

[Niki]

u hope all the test come back ok :hugs: :hugs: :hugs:

[Ashleigh<3]

:hugs: Just thought you and your fam needed these, :hugs:

[Lunar]

:fingerscrossed: for some answers.

The tests may take a few weeks tho, did they give you a rough estimate as to how long it would take? They usually give you a time frame.

I really hope you get some answers, there is nothing worse than being stuck in limbo:gloomy: .


:hugs:

[iluvmeboyz]

oh you poor thing i hope that she will be ok and the results are going to be good i'll pray for you

[MamaRabbit]

Hi RollerCoasterMum, I hope you get some answers soon. My litte rabbit is going through the same motions at the moment, he has global development delay which is a little unexplained. He received a long winded, never heard of diagnosis at 6 weeks of age after some seizures. The MRI picked this up. He has been seizure free for over 2 years now and we are currently waiting the results of various other tests should another syndrome or condition be contributing to his delay, it can take quite some time depending on where they are sent for analysis. We have a 6 week wait for one, an 8 week for another....last year we waited 7 months for some genetic test results.

I hope you find the answers you need to find peace. I try to remind myself that my Charlie is still Charlie, today, tomorrow, always regardless of what test they want to perform on him.

All the best.

[rollercoastermum]

My daughter had her first seizure at 3 days of age.
Before this she had been having "blue episodes" and was put in special care nursery for monitoring.
She has been seizure free since she was 20 mths old. - as prev posted.
At one stage Cerebral Palsy was questioned but apparently not the case.
I did full on Speech/Physio and Ot with her from 3mths of age.
I was told that without all the hard work and effort I put in that I wouldnt have the little girl I have today:crying:
I wasnt given a timeframe for the results to come back.
I will go and make an appt with the referring dr tomorrow and I guess they'll know how long it may be and for how far away to make the appt.

[gremily]

:hugs: Best wishes for a speedy result, RCM:hugs:

[Nowhere]

i hope they get the results to you soon, and that it is all okay

[iluvmeboyz]

:hugs: :hugs: i hope you get the results soon :hugs:

[Foxymoron]

:hugs: I hope you get some answers soon:hugs: