Hemiplegia-Cerabral Palsy

[maddys_mum]

Hi,
I found out a couple of months ago that my daughter has hemiplegia. She is currently having physio and occupational therapy. She will be having a MRI at the end of Feb.Does anyone have a child with this? If there are any other mums out there that would like to share with me their stories,I would love to hear them.

Thanks

[xkwzit]

Hi MaddysMum

Hugs to you both. I have not got direct experience, but have done a quick google and found an Australian hemi parents website. They've got some resources there (including a chat room). Not sure if there as nice as we are :D , but they'll hopefully have loads of info and support for you.

And apologies if you've already found them.

The link is http://www.hemiparents.org/

[maddys_mum]

Thanks for that. Ive had a look aty that site but there isnt many members. Thanks for your suport.

[maddys_mum]

Thank you mrs casper, I really appreciate it! :)

[morgan04]

My daughter is now 4 with left hemi. I noticed lack of movement with her kicking had an mri at 4 months and a bleed was found in her brain. She has physio, ot, speech but is doing well at kindy and making friends. my greatest fear is being teased at school as she is quite emotional just like her mother!:rain:. I am crying just thinking about her. She has regular botox treatment and wears an afo on her left foot. If i can help let me know.

[morgan04]

please email me if needed. vanita.wade@internode.on.net

[DoulaRobyn]

My brothers girlfriend, who is 27 has hemaplegia. She leads quite a normal life and she has some spacicity (excuse the spelling) in one of her hands and one of her feet. She also walks with a bit of a limp since her last grand mal seisure. She is a lovely girl and I think with a bit more confidence in her body she would be a much more abled woman.

Since her last seisure she has been put on different medication and she has not had another fit. Her energy levels are higher too and she seems alot happier in herself.

I think what I notice is the most hard for her is that she has to relearn how her 'new' body works after a seisure. For example, since her last fit she wont try to tie up shoe laces or cut her food with a knife because she thinks she can't. I believe that she can, but just differently before. (I have a disability that is degenerative so I understand this to a certain extent).

She doesn't seem to have been affected long term mentally from the last two fits (she had two big ones in a space of a year but has gone for 15 years previously without having any fits, most of her fits were as a baby), she does however have a time period after a fit where she looses the ability to talk but her speech has improved now.

My brother and herself seem to have a great relationship and the hemaplegia does not get in the way. It does make for some challenging times, but then, we all have challenging times in our lives dispite being disabled or not.

Not sure if this information was helpful to you or not, thanks for letting me talk about her (in a nice way of course), I have never heard of anyone else having this. She says that hemaplegia is a form of epilepsy, is it actually cerebral palsy? - I will have to find some more info on this, her parents don't like to think there is anything wrong with her, I think that if they were more informed and also educated her better she would deal with life in a much more positive way, I think she tries to hide that there is anything wrong with her at all. She has a lovely personality, I hope that she becomes more secure in the body that she has and how it works.

I wish you and your daughter much happiness and health, enjoy your little one and spend alot of time laughing, that is my favourite cure :goodvibes:

[naiwen]

Hey morgan04, there are a few mums on here in the special needs section, you are welcome to come in and say high any time!