View Full Version : Heinemans nipple??!!
kiwibird27
13-03-2007, 13:36
Has anyone heard of this....friend of mine wasn't sure of the exact name!!! It's a teat to help babies that won't bottle feed to finally drink.Anyone??
Hi there
I am not sure if it is the thing you are talking about but there was a thread some time back and one of the mums was talking about a Haberman feeder. here is the thread http://www.bubhub.com.au/community/forums/showthread.php?t=34422&page=3
If it is the same thing you may be able to PM the person.
Hope this helps
i know what you are talking about a company called Medella makes them they are great for babies with a poor suck as like they advertise they reward even the poorest of sucks
As ti whether or not they work it depneds on why baby isnt feeding oraly if it is a case of a poor suck but they want to feed then they would be great but if it due to a true case of oral aversion or swallowing problems it may not help to much as it still has a teat simaler to that if a botle just easier
another great option with a baby strugling to feed is the fingure tube like BF mums use as a suply line you can atatch a syringe to the end of it and get bub to suck on either your finger or a dummy and slip the tube in the side so its not tube feeding as such as its not a internal tube and bub is still swalowing bt you can help them more and her moer contol over how fast
i just realised from another post that you dd is a TF i didnt realus it is that with a NJ GJ or nj just wondering
my DD has just been of her tube for 2 months now but still may need it again she looking like ahving a fundo very soon just got to retest to make sure not more issues first
does you DD suck on anything at all like a dummy or toys anything like that if so the suply line may be agood option to try sneak in bits when she isnt paying atention
good luck hope she feeds oraly soon
has she or is she going to ahve a fundo or is that not an option, what rate feed is she in with her continuos feeds are they dropping iot slightly to see if she will eat
kiwibird27
21-03-2007, 13:59
She is jejunally fed through a T tube they had to insert to fix a perforated bowel she got from an NJ !!! Nightmare. But at least we don't need to tape tubes to her face anymore!!! And for the mean time we don't need anymore surgeries to put in a proper gastrostomy. As long as this tube is in I am happy. She still vomits alot, but just bile stain so she can gain weight effectively like that. She's on Elecare, continuous 36 mls an hour 22 calorie. She sucks her dummy really well and mouths toys but won't suck anything that tastes of milk!!
She vomits 5 mls of milk or water and 1/2 teaspoon of solids so we aren't even trying to fed her, except for small licks of food for fun!!! She has been very sick 5/9 months in hospital so are just keeping her weight going and her growing until we either have a fundo (not convinced about it yet) or she grows out of it (which is common with kids with her disorder.) They think she may have a slight motility issue so I think a fundo would make this worse. She has also had enough surgery and would require a full open fundo not an endoscopic one, so it's a huge deal
We are hoping to start her feeding properly around 3!!!
It was a Haberman feeder, No good for Megan she doesn't like sucking milk so it wouldn't reward her at all!!!
She has Congenital Disorder of Glycosalation 1a
Tell me about your DD
oh the poor litle thing its so upseting to see your child suffer i realy hope she does grow out of it
Well my DD is neally one and also has her fair shair of health issues she she had pyloric stenosis repaired at 4 weeks old and we thought that would be the end of her problems as if sinse then she has had numerous usies with GoRD she get nueomonia from aspiration and had 2 bout of osophagitus from the acid in the reflux she is on omeprozola and ranatidine and gastrogel but still has a lot of problems her last ph study showed 270 reflux episodes in 24 hours and her reflux is causeing her to apnea and be FTT which sucks she has had her tube out for 2 months and is still ftt she was just as bad with it in as she refluxed more and cant have a g tube with out a fundo and we are trying to avoid fundo if we can
they are also suspcting she has some sort of motilaty disorder so she has a gastric emptying study done on monday we are still waiting on the results but its didnt look good thats all the nuslear medicine lady told me and if she does have motility isues we need to sort them out prior to the fundo or as you said it can make her worse
other than that she had laryngomalaia she had her second opertation to fix it yesturday actualy and it went well except she had a suizure afterwards which wasnt nice so now we have to get all that side of things checked out she also had global developement delays and low mucsle tone so that doesnt help and she is seeing a orthopedic surgean tomorow about ehr legs as tey are not straight so she may need splints as her feet turn under when we try and stand her up so we will see how that goes not looking forward to it but we will see it may be okay
so other than that and her heart murma and enlarged heart she is all good
there is always another kid out there worse of thats how i see it
kiwibird27
22-03-2007, 15:00
Motility Issues....I hate hearing that, not much they can do for it.
I know what u mean, through all of Megan's issues we still feel lucky!!!! She also has enlarged kidneys, global developmental delay, liver issues, clotting issues, obviously GORD, they didn't even both with a ph probe cause I refused to let them take her off her meds!!!
Our biggest issue with future surgeries are the fasting times, metabolic issues make it hard for them to tolerate feeding after a break, It usually takes a a month to get her tolearating again, so she lives on TPN and she has serious vein issues, Her central line lasted 2 weeks!!!
Glad the surgery went well, Are u still in???? We go to SCH Randwick in Sydney, are u here too???
Motility Issues....I hate hearing that, not much they can do for it.
I know what u mean, through all of Megan's issues we still feel lucky!!!! She also has enlarged kidneys, global developmental delay, liver issues, clotting issues, obviously GORD, they didn't even both with a ph probe cause I refused to let them take her off her meds!!!
Our biggest issue with future surgeries are the fasting times, metabolic issues make it hard for them to tolerate feeding after a break, It usually takes a a month to get her tolearating again, so she lives on TPN and she has serious vein issues, Her central line lasted 2 weeks!!!
Glad the surgery went well, Are u still in???? We go to SCH Randwick in Sydney, are u here too???
with the ph probe if you get them to do a empedence study that shows acid and none acid reflux that was they can stay on meds thats what we did for kenzee as there was no way they was taking her of meds just to do a test
thats makes it hard for her if they do surgery doesnt it so do you mean she cant toerate her j tube feeds for a while after surgery so they use the TPN, how does she go with the TPN with her liver issues des it afect that, how long has she had her J tube for just curios thats all cause we are still not ruling that out fior kenzee seen as the NG or G agrivate reflux with out a fundo and a fundo isnt a option if the DGE is not under controll so in that case a J tube and fundo may be the go for kenzee but we just dont know
oh i forgot to answer that bit No we arent in sydney we live in perth so we go to PMH
And yes motility isues suck the only thing that can sometimes help are certain meds but they are no good for cardiac babies
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