The so called experts

[kiwibird27]

I am offically fed up. My daughter vomits, it's reflux, apparantly, but this is violent, every 45 minute kind of vomitting that occurs every week or so. then stops for a day then gradually gets worse.

We aren't even feeding her into her stomach the milk goes directly into her small bowel so she just vomits yellow bile instead.

I am so sick of the experts starting every conversation with "Well..we don't really know why but....." or "Your daughter is very special." This is every single one of the 6 teams involved with my daughter. Why are metabolic conditions so damned hard to work out???????????

Okay, she's vomitting again so better go

[Gloominous]

Sorry I've got no idea what your going through but just wanted to send big :hugs: :hugs: :hugs: to you and your daughter.

[bekkyboo]

Hey hun... I wanted to send you some :hugs: too, Us Junies have to stick together... Hope they can figure some things out for her soon.

[anjelaszka]

If it makes you feel any better I accidentally undid Ag's cap on her ng tube today and got "vomit" all over the carpet her bed etc, took me about 15 min to work out where the vomit was coming from because she wasn't vomiting (ah der) LOL

[jessgray]

:hugs: i hope you get answers soon just keep pestering them.

[kiwibird27]

If it makes you feel any better I accidentally undid Ag's cap on her ng tube today and got "vomit" all over the carpet her bed etc, took me about 15 min to work out where the vomit was coming from because she wasn't vomiting (ah der) LOL

Your sooo funny, have done that before!!!

[anjelaszka]

Thought you might like that.... on another note got an admission form in the mail today, looks like we're going back in on Mon 26th Feb, it says day stay (having stints removed post last op) but dunno, fingers crossed its day stay...

[kiwibird27]

Will we see u tomorrow????

[anjelaszka]

Is Thursday ok? Tomorrow Neuro appointment, Wednesday spending time with mum, Thursday mother in law is coming over to take care of the kids....

[kiwibird27]

How did the appountment go???????????

[Lunar]

I know a little girl that does the SAME thing! She is nearly 3 and has other 'problems' but they call it 'cyclic vomitting sydrome'.... I think.

She goes in cycles, she will be fine and then she will have a week or more where she just vomits and vomits... you touch her, she vomits, she moses, she vomits. She will then ease up and be ok for a few days and then it starts again.

Does this sound familiar???

[kiwibird27]

Yes! We are currently in the process of documenting everything to see if she has it. It takes a long time to diagnose and with Megan's other issues, it's hard to know which vomitting is from the meds, or from an infection like a cold etc etc. Also when we don't feed her, she doesn't vomit......will keep on documenting.

[anjelaszka]

Neuro app went fine, coming off one of the anticonvulsants (yay) but going up on one of the other anticonvulsants (yay), tell you all about it tomorrow, will come over about 11ish...

[MamaRabbit]

My Charlie throws up alot, they are still going down the reflux path even though he is 2 now. We are going in for day surgery on Friday to check for acid burn and investigate any other possible problems or causes.

Poor little guy. Aside from cringing from the foul taste he just gets on with it.

[kiwibird27]

Is he on Losec and Zantac??? They help alot!!! Megans vomitting stopped by itself yesterday??!!

[mummyof5]

Elle, how did Charlie's day surgery go???

[jessgray]

my ds2 tyson has reflux so the dr's say.he isnt on meds for it ita turning silent now it hasnt affected his weight gain though he is 7.22kg:laughing:
my ds1 had the tube down his nose for a little while as a newborn he turned into a projectile vomiter and all the drs just said it was his in ability to keep much down wasnt reflux:confused: eventually he just didnt vomit
hope you find the cause sooon